International Consortium for FDMAS

13/09/2025

Huge congratulations to our ICFDMAS Board Director , Dr. Natasha Appelman-Dijkstra on her appointment as Professor Leids Universitair Medisch Centrum - LUMC — an incredible and truly well-deserved achievement!

Her dedication — not only to research and education, but especially to the FD/MAS community and its patients — truly sets her apart. It is deeply inspiring to see someone who combines academic excellence with such genuine compassion and unwavering commitment.

We are proud and grateful to have her at ICFDMAS.

Dr. Michael Collins, National Institutes of Health (NIH)
Martine Dekker , Patiëntenvereniging Fibreuze Dysplasie
Tovah Burstein, FDMAS Alliance

14/11/2024

Announcing the 2025 ICFDMAS Symposium in Madrid!
We’re thrilled to invite you to join the upcoming International Fibrous Dysplasia and McCune-Albright Syndrome Symposium in Madrid! Building on the momentum of our successful 2023 meeting, this event will gather global experts, patients, and advocates to dive into the latest in FD/MAS research, treatments, and collaborative patient care. Hosted by the Asociación de Displasia Fibrosa in collaboration with 🇪🇸 national experts!
Expect impactful discussions, networking opportunities, and new insights that will shape the future of FD/MAS care and research. Don’t miss this chance to be part of our international community striving to advance the field. For more details, visit https://www.icfdmas.com/ and stay tuned for updates!

20/12/2023

10/09/2023

ICFDMAS Meeting 2023, Silver Spring USA.

Thank you all for being there!

10/09/2023

Today has been an excellent day for the ICFDMAS! It has been great to share knowledge and info on new developments in treatment and research and working together on improving the international guidelines of FDMAS healthcare and patient guide. It"s a wrap!!

10/09/2023

We have started our ICFDMAS meeting in Silver Spring, MD USA.
Great to see how active our FDMAS community is, and still growing with new specialists, researchers and patient representation attending!

10/09/2023

Here we go!!!!

09/09/2023

FDMAS Conference weekend has started!!

27/08/2023

TWO WEEKS TO GO!!!

Getting ready for the consortium meeting the 10th of September 2023?

The meeting will be preceded by the FD/MAS Alliance conference and multiple attendees will participate in that meeting as well.
Want to see the full program so far? 👆

15/08/2023

A little less then 4 weeks to go!!
The conference program is about ready and preparations for the meeting are at full steam.
Very proud to announce the speakers list.
We are looking forward to see you in Silver Spring soon!

30/07/2023

Only 6 weeks to go before our next Consortium meeting. We are so looking forward meeting everyone live at Silver Spring, Maryland USA!
We are happy to learn that the attendance will be high with members from all over the world.
If you want to attend but have not registered yet: please do so asap via the link in bio.
See you then!!!

25/07/2023

We are in full preparation for our next meeting: Let the countdown begin!!!
Keep a close eye on our socials these coming weeks for more details!

For registration see link in bio.