04/05/2026
Owen Update
Owen is rolling into Day 11 at Children’s Hospital.
These last few days have been hard on him. He’s been releasing a lot of pressure, frustration, and sadness over wanting to go home but not being able to because of his immunity. That is such a hard situation for a child to process.
He’s been having these emotional episodes almost daily.
I feel like Thursday was the hardest. We were also preparing for the memorial that day. A dear friend came by and dropped off memorial emblems so we could have our own little table set up, and she brought her sweet little boy. Owen and Oliver were able to play for a bit, which was such a bright spot.
But as soon as they left, Owen really went into a funk.
I felt a heavy presence trying to wear us down so we wouldn’t log into Zoom for our meeting that evening. But Jehovah gave me the strength to give Owen space first, and then to lovingly set firm boundaries.
In that moment, I truly felt like Jehovah gave me the words. I was simply the vessel.
Later during shift change, the night nurse came in and told me, “I heard about how amazing you were with Owen.” That meant a lot, especially knowing we were able to work through the moment before psych needed to step in.
Owen has still had some sad days since then, but thankfully not to the level of Thursday morning.
We are doing our best to stay busy.
Even though Owen gets bored in the room, there are still many things he can do, and we are trying our very best to focus on what we can control right now:
getting enough rest
staying hydrated
focusing on spiritual things
keeping his mind occupied
Most importantly, we continue to pray for Owen’s ANC to start trending upward so we can finally go home.
Right now, Owen is not receiving chemo. This is his body’s chance to recover before heading into the Maintenance phase.
He also had some dear friends come visit, and that really helped lift his spirits and made the day go by faster.
The weekends are usually the quietest for Owen and for us since many hospital staff are off, but this weekend has been better, and we are praying that continues.
Our prayer is that next week brings discharge and some much-needed time at home.
Thank you to everyone who has continued to pray, think of us, and donate. We truly appreciate every single effort and feel so supported.
Please keep praying for Owen’s counts to rise so he can get home soon.