Children With Diabetes Research Foundation

08/05/2023

Prevention Study Update:
The Grass Roots Health Study for prevention of Type 1 diabetes for those with one on more autoantibody, but not yet on insulin is continuing to enroll. Participants will receive recommendations on D3 and Omega-3 supplementation and receive test kits, which are done by mail and a finger-prick. Measurements of D3, O3, AA/EPA, C-reactive Protein and A1c are encouraged to be performed at least 2x per year. Additionally, we test autoantibodies by finger poke and measure GAD, Znt8, IAA and ICA. To enroll or update your status if already enrolled, go to
grassrootshealth.net/t1d

For those already diagnosed, the POSEIDON trial is almost fully enrolled but has two spots available for children with established type 1 diabetes (more than 180 days from diagnosis), plus they have other clinical trials available for patients with new onset type 1 diabetes.

The contact for POSEIDON is Abel Ortega at axo151@med.miami.edu

For new onset T1D patients, please have the patients reach out to David Baidal, MD at dbaidal@med.miami.edu

Donate TodayEnroll Now What’s needed to solve the vitamin D deficiency and type 1 diabetes (T1D) epidemics? Measure the 25-hydroxyvitamin D serum levels, Omega-3 Index, AA:EPA ratios, hs-CRP, HbA1c, and T1D autoantibodies levels every 3-6 months along with an online health survey Provide education...

05/14/2023

We are still enrolling for the prevention of T1d open source study:

01/29/2023

The correct link for the update to TrialNet prevention is at: https://pubmed.ncbi.nlm.nih.gov/35316839/

Many in the studies are simultaneously trying to prevent onset of T1d by suppressing inflammation through fish oil supplementation, D3 supplementation and even zinc and probiotics. You can read more or join at grassrootshealth.net/t1d

Donate TodayEnroll Now What’s needed to solve the vitamin D deficiency and type 1 diabetes (T1D) epidemics? Measure the 25-hydroxyvitamin D serum levels, Omega-3 Index, AA:EPA ratios, hs-CRP, HbA1c, and T1D autoantibodies levels every 3-6 months along with an online health survey Provide education...

01/28/2023

For those interested in prevention, this is a good update from TrialNet. However, if you want to do something NOW for prevention, check out grassrootshealth.net/t1d. Here is the article about antibodies from the latest symposium:
fil:///C:/Users/sonia/Downloads/Sims%20Diabetes%202022.pdf
It is a 2022 article discussing prevention with drugs - many on these protocols are also taking fish oil to prevent inflammation and D3 to strengthen their immune systems and even Zinc, which is helpful against viruses. Also - many are not eligible to test through TrialNet due to age or antibody status - but if you like, you can order the test kids through Grass Roots Health, and if you test positive, you can join our open source study.

11/20/2022

https://www.grassrootshealth.net/blog/announcing-new-testing-opportunity-type-1-diabetes-prevention-project/

If already part of our open source study for people who have tested positive for one or more autoantibody, please sign in and update your status and order a new kit. If not yet diagnosed but not in the study, please consider helping with research and joining!

Today, World Diabetes Day, we are excited to offer home blood spot testing for T1D autoantibodies as part of our next phase Type 1 Diabetes Prevention study Evidence suggests a role of vitamin D and omega-3s in possibly reversing or stopping progression from developing type 1 diabetes (T1D) autoanti...

03/06/2022

For those who want to help those affected by Putin's war who are also impacted by diabetes, a foundation I know and support helping is:

Insulin for Life USA
2555 SW 76th Street, Suite 130
Gainesville FL 32608
Or visit Paypal here: https://www.paypal.com/paypalme/insulinforlifeusa. To donate financially you would click on the send button at that link.

Insulin for Life USA, Inc.
www.ifl-usa.org
(352)327-8649
Insulin for Life USA
INSULIN FOR LIFE | Saving Lives around the World
IFLUSA.ORG
INSULIN FOR LIFE | Saving Lives around the World
Our Mission Insulin For Life USA provides insulin and diabetes management supplies free of charge to those with diabetes who otherwise would go without these life-saving provisions. We collect in-date, unopened, supplies from individuals or organizations and, following careful inspection, deliver th...

Our Mission Insulin For Life USA provides insulin and diabetes management supplies free of charge to those with diabetes who otherwise would go without these life-saving provisions. We collect in-date, unopened, supplies from individuals or organizations and, following careful inspection, deliver th...

10/30/2021

Bottom line is that thanks to the nPOD study, they know the virus now that is co-located with the beta cells in people with T1dm. This is the vaccination that could stop this virus (often called Hand, Foot and Mouth disease) - it is very contagious. My son had it before he was diagnosed at age 1). If all goes well, this could be a vaccination similar to the chicken pox vaccination and help eliminate the virus that is implicated in the autoimmune form of T1dm.

RED BANK, N.J., Oct. 26, 2021 /PRNewswire/ -- Provention Bio, Inc. (Nasdaq: PRVB), a biopharmaceutical company dedicated to intercepting and preventing immune-mediated disease, today announced positive interim results from PROVENT (PROtocol for coxsackievirus VaccinE in healthy voluNTeers), a first-...

12/29/2020

This is about testing for Type 1 Diabetes - new technology allows you to test autoantibodies at home with a finger poke.
For those at risk but not yet diagnosed or have some other autoimmune diseases in the family that make you wonder, there is a new blood spot test you can get by mail. There is also a new JDRF prediction chart. Our goal is to change this outcome by normalizing their levels of inflammation and optimizing D3 and AA/EPA levels. Below is the new JDRF prediction chart: If you have been able to beat this (as my son did), please comment and let us know what you are doing! We realize not all following the "cocktail" are enrolled in the field trial.
https://www.jdrf.org/.../jdrf-researchers-develop.../
Alert: you can now get autoantibodies by blood spot, just like you can get D3 and O3 and CRP and A1C if you are a member of our study. Here is the link to order your autoantibody test. This is for those who are not diagnosed. It is also open to people without a 1st degree relative - so maybe a cousin or someone with other autoimmune diseases would like to test? Unlike TrialNet, there is no age limitation.This is a new initiative, and I have been assured you will have the right to get your autoantibody results - not just positive or negative, but the actual titres. Unfortunately, they are not testing for ZNT8, but you will get the three primary autoantibody titres. If you test positive for one or more autoantibody, you can enter them into your profile in our D3 and O3 Action Study.
https://www.jdrf.org/t1d-resources/t1detect/
My son Ben is ordering one to compare with his TrialNet results - you can read his story at www.preventt1d.org They still follow him because he has had autoantibodies on and off for almost 22 years and is still diabetes-free. He takes his fish oil and D3 and it is still working. Many of you are already in the study at:
https://www.grassrootshealth.net/.../daction-project
Finally, the work is moving forward on a vaccination for Coxsackie B Virus - implicated in the development of T1d. I am optimistic that this will come out soon. This has been long awaited - hopefully we can get "operation warp speed" for this virus which has been implicated in the development of T1d for deca

Sign up to get a chance at our Monthly FREE D/Omega-3 Tests Donate TodayEnroll Now What’s needed to solve the vitamin D deficiency and type 1 diabetes (T1D) epidemics? Measure the 25-hydroxyvitamin D serum levels, Omega-3 Index, AA:EPA ratios, hs-CRP and HbA1c levels every 3 months along with an o...

05/25/2020

Thankful today for all our heroes who have helped us. The first people who were tested for so many diseases - yellow fever, HIV and so much more. The DOD and our veterans and all who fight for freedom and also health are remembered today with appreciation. It was a privelege to serve personally, and today it is a privelege to remember those who paid the ultimate price. Please fly your U.S. flag.

10/04/2019

Excited that our prevention study is now published online on PubMed - please share! We are hoping to get at least another 250 enrolled this year.

Chronic inflammation has been linked to the progression of type 1 diabetes (T1D). Supplementation with vitamin D and omega-3 fatty acids, which have anti-inflammatory properties, may slow or stop the progression of T1D. A field study is underway to assess ...

09/30/2019

Some people do not know that steroids can be toxic to beta cells. If autoantibody positve for even 1 of the 5 autoantibodies, discuss this with your physician. It is well known, but not all family physicians realize the interaction if you are prone to develop T1d.

How is everyone doing out there? Let's take our D3 and O3 and keep up the cocktail! Even a few years of delay helps :-)
My son just passed 20 years since the researchers told him he had "2 months". There is hope - just do what you can - and make sure you participate in research so that we can publish. We have two articles so far and hope to have more as people continue to participate and test. We are also applying for funding so it can be free and supplies can be shipped for free.
BTW, we will be in San Diego at TCOYD in October if anyone wants to get tested in person!
Sonia Chritton, mom to Matthew dx'd at age 1 and my sister Tanya, dxd, finally at age 20.