03/06/2026
1 in 100,000 people develop this type of brain tumorđź§
Only a small percentage ever reach the size mine did — 4.5 cm.
I guess I’ve never been one to do things halfway…
Life has already taken me down some unlikely medical roads — childhood leukemia, heart failure throughout my life, and now an out-of-the-blue brain tumor. Experiences like these have a way of teaching resilience whether you’re ready for the lesson or not.
Last week I was diagnosed with a vestibular schwannoma. Just days later I underwent an eight-hour surgery to remove it — an all-day operation followed by two days recovering in the ICU.
Looking back, there were subtle signs. I was still working out with my trainer, traveling to New York City, seeing patients, and even recording a podcast just days before my diagnosis. But there were small changes — subtle visual shifts, hearing changes, and balance issues that began to worsen quickly.
When I returned home from New York, I knew something wasn’t right.
Thanks to my amazing family and team, I was pushed to slow down and get evaluated. One important lesson: you can’t be your own doctor. What started as a CT scan “just to rule out anything serious” quickly showed that something was definitely wrong — we just didn’t know exactly what yet.
What followed was a whirlwind of doctors, hospital rooms, MRIs, and consultations that ultimately confirmed the diagnosis: a 4.5 cm vestibular schwannoma — a very large, benign tumor of the vestibular nerve that the surgeons believe had likely been growing slowly for nearly 20 years.
Dr. Aggazi, a world-renowned neurosurgeon specializing in skull base tumors, described the surgery as “elegant.” The approach was translabyrinthine — going through and around the ear. With a tumor this large, losing hearing on that side is unavoidable, but great care was taken to protect the facial nerve during the operation.
I’m also in awe of where modern medicine is today. How is it possible to remove a tumor this large without shaving my head or leaving a large incision? For someone who carries childhood memories of leukemia and the trauma of losing my hair, that detail meant more than I can express❤️
(Continued in comments)