Just How Life Goes

02/15/2026

Episode 5 of Just Party Life 🎉

This one was unplanned.

It was late. I was home. I wasn’t tired — just bored, honestly. Then I got the invite for a birthday, and I sat there for a second like… why not? I hadn’t seen them in a long time. And sometimes showing up is less about you and more about making someone else feel special on their day.

So I wrapped myself up as the present — and brought a couple shots with me.

And when I tell you it completely changed my night?

I laughed. I vibed to the music. I hugged people I hadn’t seen in forever. I stayed just long enough to feel the joy without overdoing it. No pressure to close the place down. No guilt about leaving when I was ready. Just pure, intentional presence.

Living with chronic illness has taught me that fun doesn’t have to be all night to count. Sometimes it’s 45 minutes. Sometimes it’s one song. Sometimes it’s just showing your face and letting somebody know they matter.

I almost stayed home.
But I’m glad I didn’t.

This is Just Party Life.
And this is just how life goes.

02/15/2026

I had to record this because it pressed me.

When someone claiming to be a nurse can sit in my comments and call a chronically ill person nasty, disgusting, and tell them to “detox,” it does something deeper than just offend me. It makes me think about the patients she speaks to in private. The ones who are already scared. Already in pain. Already blaming themselves.

Do you understand what that kind of rhetoric does to someone battling Hidradenitis Suppurativa or PASH? We already fight our bodies every single day. We already deal with drainage, odor, inflammation, scars, canceled plans, financial stress, and isolation. We already question ourselves. We already feel like a burden sometimes.

Then imagine someone in scrubs — someone positioned as “safe” — speaking to you like you are filth.

That is the kind of thing that pushes people to the edge. That is the kind of language that fuels depression, self-harm, substance abuse, silence, and in some cases… su***de. Words are not just words when they are spoken from positions of authority. They echo. They stick. They replay in people’s heads at 2 a.m.

And yes, I am a content creator. Yes, I spread awareness about HS, PASH, and chronic illness. I know that visibility brings trolls. But there comes a point where you have to stand up — not just for yourself, but for the people who don’t have the voice, the platform, or the thick skin.

Not everyone was raised to be a warrior. Not everyone knows how to clap back. Some people internalize it. Some people cry in silence. Some people numb it with alcohol, drugs, s*x, or self-destruction. Pain is pain. And when it’s minimized or mocked by the very systems meant to help us, it becomes trauma.

This is bigger than one comment. This is about the healthcare system. This is about accountability. This is about compassion. This is about understanding that having an opinion does not give you the right to weaponize it against someone else.

If you are here and you live with chronic illness, visible or invisible — you are safe here. You are not disgusting. You are not dirty. You are not dramatic. You are not alone. I will take the brunt if I have to. That is why I created this page.

It may hurt me to speak up, but I will. Because silence is what allows this culture to continue.

It’s just how life goes — but we are allowed to demand better. And we will. 🤍

02/14/2026

This why I got to stop eavesdropping this man just said love is like smoking crack 😂😂😂

02/14/2026

A woman commented claiming to be a nurse and left some of the most derogatory, ignorant remarks under a post about my Hidradenitis Suppurativa and PASH syndrome. If you are truly a nurse, why would you ever speak to someone like that? Is that how you speak to your patients? Is that how you treat people who are already battling painful, incurable conditions?

HS and PASH are not caused by being “dirty.” They are not cured by “detoxing.” They are autoinflammatory diseases. If you work in healthcare and don’t understand that, that’s concerning. But if you do understand it and still choose to shame someone publicly, that’s even worse.

Calling someone nasty or disgusting because of a medical condition says nothing about them — but it says everything about you. Maybe instead of telling chronically ill people to detox, you should detox your mindset. Detox your prejudice. Detox whatever in you feels comfortable humiliating strangers who are simply sharing their reality.

To anyone reading this who lives with HS, PASH, or any chronic illness: you are not disgusting. You are not dirty. You are not less than. And you do not deserve to be spoken to with cruelty — especially not by someone in a profession built on care.

Straight like that.

02/14/2026

“Did you really just ask me how I’m doing?”

Let’s talk about it.

PASH and Hidradenitis Suppurativa are not just “skin conditions.” They are life-altering, identity-shifting, soul-stretching diseases. They affect us emotionally, physically, financially — every single layer of our existence. The pain isn’t just in the abscesses, the inflammation, the drainage. It’s in the isolation. It’s in the bills. It’s in the canceled plans. It’s in feeling like a burden when all you’re trying to do is survive your own body.

It doesn’t matter if you’re stage 1 or stage 3. The moment it starts, life changes. The moment you’re diagnosed, life changes. And for those who are still undiagnosed — searching, questioning, hurting in silence — I am with you. You are not crazy. You are not dramatic. You are not weak.

In this seven seconds, you’re seeing flare-ups. You’re seeing inflammation. You’re seeing what resilience actually looks like. But what you don’t see is the mental toll, the grief for the body you once had, the financial strain, the nights spent awake in pain. Chronic illness doesn’t just touch your skin — it touches everything.

If you’re dealing with cystic acne, folliculitis, HS, PASH, or any dermatological or invisible illness… this is a safe space. If you’re battling depression, anxiety, grief, or the weight of simply existing in a body that fights you — this is a safe space.

Life is messy. Life is heavy. Life is beautiful and brutal at the same time. It will drain you and still somehow make you grateful to be here. And through all of it, we keep going.

Because it’s just how life goes 🤍

02/14/2026

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02/14/2026

All right, here we go with another episode of Just How Life Goes 🤍

This is what my February flare-ups look like. This one is featuring my right armpit — a full-blown Hidradenitis Suppurativa flare that had me swollen from my underarm through my chest and down my arm. The inflammation wasn’t just surface level. It was deep, radiating, tight, and relentless. Every movement pulled at it. Every breath reminded me it was there.

And let’s talk about the part people don’t discuss enough — the smell. When HS flares and begins to drain, the odor can be overwhelming. It’s not about hygiene. It’s not about neglect. It’s the disease process. It’s infection and inflammation trapped under the skin, working its way out. It’s painful. It’s humiliating. It’s exhausting.

I am beyond grateful that I received my Remicade infusion today. Biologics have been life-changing for me. But I also know what it’s like to not have access to them. There were years when insurance delays kept me from treatment, and those years were some of the most brutal. The uncontrolled inflammation during that time is what led to my PASH syndrome diagnosis. That’s the reality for so many people — either biologics don’t work for them, or they can’t access them consistently. And my heart goes out to every single person fighting this without relief.

This seven-second clip doesn’t fully capture the depth of the pain, the swelling, the mental toll, or the recovery process. But it’s real. It’s February. It’s flare season for me. And this is what living with Hidradenitis Suppurativa looks like. Still fighting. Still advocating. Still here. Just how life goes 🤍

02/14/2026

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02/13/2026

All right fam, here we go with another episode of Just How Life Goes 🤍

This photo is from my application to the ITVS Independent Lens Creator Lab — a program under Independent Television Service in partnership with PBS that supports emerging documentary storytellers. I kept this one quiet until I heard back because when I step into rooms this big, I like to process it first.

I didn’t get selected this round.

But I did make it past the preliminary phase — and for my first time ever applying to something this prestigious, that means more than people realize. This wasn’t small. This wasn’t light. This was me putting my name into a national space for creators and storytellers. And I made it through the first cut.

Rejection doesn’t erase progress. It confirms proximity. It tells me I’m knocking on the right doors. So I’m proud. Proud that I applied. Proud that I was considered. Proud that I’m bold enough to keep stepping into spaces that stretch me.

We refine. We rebuild. We apply again. Just how life goes 🤍