Ehlers Danlos Syndrome Support

Ehlers Danlos Syndrome Support 80k follow🙏🏻 Living with strength and courage through Ehlers-Danlos Syndrome & chronic illness Here to support, share, and raise awareness.

You’re never alone together we’re stronger Follow for real stories, hope, and a caring community

When my little EDS brain tries to decide if I should walk or wobble I feel like I’m playing a silly game with my joints ...
11/22/2025

When my little EDS brain tries to decide if I should walk or wobble I feel like I’m playing a silly game with my joints every day who else does this mini adventure too 🎨🧸

Why does my tummy hurt so much every day even when I try to be brave about it 😔🦓
11/22/2025

Why does my tummy hurt so much every day even when I try to be brave about it 😔🦓

Why does EDS make my body act like a little kid running on secret extra energy until it suddenly crashes
11/21/2025

Why does EDS make my body act like a little kid running on secret extra energy until it suddenly crashes

A tiny kid trying to explain how TOS feels inside a bendy EDS body with simple innocent words 🖤🩷
11/20/2025

A tiny kid trying to explain how TOS feels inside a bendy EDS body with simple innocent words 🖤🩷

Did you know even little hands can draw the hidden struggle of TOS with EDS showing how tight spaces press nerves and se...
11/20/2025

Did you know even little hands can draw the hidden struggle of TOS with EDS showing how tight spaces press nerves and send aching waves down the arm and asking how this feels for you 🙂

Why does my body stretch like a rubber toy and still feel tired all the time this is how a kid would try to explain EDS ...
11/19/2025

Why does my body stretch like a rubber toy and still feel tired all the time this is how a kid would try to explain EDS in the simplest way ever

When your brain and spine feel like they are fighting you every day living with Ehlers Danlos hits harder than people re...
11/18/2025

When your brain and spine feel like they are fighting you every day living with Ehlers Danlos hits harder than people realize and this is why we keep speaking up so others finally understand

Some days I look okay other days my joints fall apart this is the hidden reality of living with hypermobile EDS 💔
11/17/2025

Some days I look okay other days my joints fall apart this is the hidden reality of living with hypermobile EDS 💔

When your body looks fine but every step feels like a battle this is the hidden reality of life with HSD and EDS 💔
11/17/2025

When your body looks fine but every step feels like a battle this is the hidden reality of life with HSD and EDS 💔

When your smile hides pain they never see from TMJ agony to gum issues nobody talks about 😔🦷
11/17/2025

When your smile hides pain they never see from TMJ agony to gum issues nobody talks about 😔🦷

When the pain no one sees becomes louder than words and EDS shows a strength most will never understand!
11/16/2025

When the pain no one sees becomes louder than words and EDS shows a strength most will never understand!

Which EDS symptom has taken over your daily life the most and how do you cope with it every single day 🦓
11/16/2025

Which EDS symptom has taken over your daily life the most and how do you cope with it every single day 🦓

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