Team Isaac

12/06/2025

Damn.

Sing along to “The Next Right Thing” from Disney’s Frozen 2 featuring the original song performed by Kristen Bell (voice of Anna) and written by Academy Awar...

12/05/2025

When we were struggling in Isaac's last hours, I was lucky enough to meet a Children's Mercy chaplain named Juliana, who could see our pain and fear. She helped me with an analogy that will forever cement in my mind that our last decisions were the right ones, for Isaac.
She asked me to imagine that Isaac has always been flying his own plane, only relying on us occasionally for help navigating. But Isaac's plane is damaged beyond repair. It is going down. We can either watch the plane crash, or we can climb into the cockpit and place our hands over his, and guide the plane down with some level of grace and control.
As I lay in that bed holding my baby, I can honestly say that my only concern in the world was comforting him, and shielding him from pain or fear. It's the hardest, bravest, most excruciating thing we've ever done, but we did it right, for him. No tubes, no machines, just rocking my sweet baby boy for every second we could have him. ⌛✈️🤟

12/03/2025

Isaac's Superhero Celebration will be on Sunday 1/4/26, here in Topeka, details will come soon. Everyone is welcome, superhero attire strongly encouraged. ❤️

12/01/2025

I don't know when yet, but there will be a massive superhero-themed celebration in Isaac's honor. Everyone will be invited. But we need some time.

11/30/2025

Isaac passed away peacefully on November 30th at 12:53am, surrounded by so much love.

11/29/2025

Isaac has been having terrible coughing fits that are very hard to recover from. They have been giving him medication to help with this, but the fits have only gotten worse. His gas exchange is all off, because the ventilator pushes air in and his lungs can't push it all out, so his CO2 is very high. They have deeply sedated him and given him a paralytic, so his body can rest while the ventilator does all of the respiratory work for him. There are a couple of ideas for things we might try, which we are celebrating.

11/26/2025

Isaac remains on the ventilator and is needing more support than he did last week. His lung tissue has torn open in one spot, kind of like sneezing through a Kleenex. We are watching it for now, because a chest tube is quite invasive, but if he needs one, it will be emergent. Everything now is about timing, waiting to see what comes next. It's excruciating.

Another child on this unit was in a terrible car accident, and will be donating her organs this week. Her family are the kindest people you could meet. Her big sisters colored Isaac superhero pictures and wrote encouraging notes.

Please, this Thanksgiving, hug your people. Tell them you love them, soak up every moment. It's all so fragile.

11/24/2025

Some wonderful friends put together a tshirt fundraiser for Isaac! We are so very thankful for our village! 🤟🎗️🫶

❤️ Isaac Reynolds Fundraiser Shirt Isaac is a 3rd grader at Whitson Elementary who is bravely fighting cancer for the second time in his short 8 year old life. This time, his battle is even more aggressive. Shortly after Halloween, Isaac was admitted to Children’s Mercy for acute respiratory f...