Team Isaac

12/22/2025

I held you in your first moments of life, and I held you in your last. I will never not hold you, baby boy, no matter how much time has passed.

12/19/2025

Well, it didn't happen the way we'd hoped, but we've brought Isaac home.

12/15/2025

One of the classes at school put together a book of superheroes and messages for Isaac. Kids will break your damn heart with their innocence.

12/10/2025

We've had a quiet few days. Allowing ourselves to feel it. It hurts. Isaac's urn should arrive today. I don't know how we can possibly face Christmas without him.

12/06/2025

Damn.

Sing along to “The Next Right Thing” from Disney’s Frozen 2 featuring the original song performed by Kristen Bell (voice of Anna) and written by Academy Awar...

12/05/2025

When we were struggling in Isaac's last hours, I was lucky enough to meet a Children's Mercy chaplain named Juliana, who could see our pain and fear. She helped me with an analogy that will forever cement in my mind that our last decisions were the right ones, for Isaac.
She asked me to imagine that Isaac has always been flying his own plane, only relying on us occasionally for help navigating. But Isaac's plane is damaged beyond repair. It is going down. We can either watch the plane crash, or we can climb into the cockpit and place our hands over his, and guide the plane down with some level of grace and control.
As I lay in that bed holding my baby, I can honestly say that my only concern in the world was comforting him, and shielding him from pain or fear. It's the hardest, bravest, most excruciating thing we've ever done, but we did it right, for him. No tubes, no machines, just rocking my sweet baby boy for every second we could have him. ⌛✈️🤟

12/03/2025

Isaac's Superhero Celebration will be on Sunday 1/4/26, here in Topeka, details will come soon. Everyone is welcome, superhero attire strongly encouraged. ❤️

12/01/2025

I don't know when yet, but there will be a massive superhero-themed celebration in Isaac's honor. Everyone will be invited. But we need some time.

11/30/2025

Isaac passed away peacefully on November 30th at 12:53am, surrounded by so much love.

11/29/2025

Isaac has been having terrible coughing fits that are very hard to recover from. They have been giving him medication to help with this, but the fits have only gotten worse. His gas exchange is all off, because the ventilator pushes air in and his lungs can't push it all out, so his CO2 is very high. They have deeply sedated him and given him a paralytic, so his body can rest while the ventilator does all of the respiratory work for him. There are a couple of ideas for things we might try, which we are celebrating.