03/22/2026
Last night our family went to Bailey's Beat the Bite, and honestly, it was really inspiring.
There’s just something powerful about seeing a young person and a family decide they’re not going to live with CMT quietly. They’re going to raise awareness, bring people together, and make a real difference in the community.
CMT can take a lot from people. It can take ease, confidence, energy, and make life feel a whole lot smaller if you let it. But events like this are a reminder that there are people in this community — even at a young age — already choosing courage, leadership, and purpose.
That’s inspiring to me.
Last night wasn’t just a walk. It was a reminder of what can happen when one family decides to turn struggle into action, awareness into community, and pain into purpose.
As someone living this too, that hits deep.
To Bailey and everyone behind Bailey’s Beat the Bite — thank you for creating something that brings people together and reminds this community that none of us are fighting alone.