11/08/2025
Strengthening Global Connections for the Bladder Exstrophy Community
This past week, Association for the Bladder Exstrophy Community (A-BE-C) joined international support organizations from around the world for the first-ever Global Congress on Advocacy and Community Collaboration for individuals and families affected by bladder exstrophy.
The gathering brought together representatives from Australia, South Africa, France, Germany, the Netherlands, Switzerland, Spain, Italy, and the United States— all dedicated to improving awareness, connection, and support for those living with bladder exstrophy and related conditions.
The event was kicked off by Dra. Anna Bujons Tur of ‎Fundació Puigvert in Barcelona, whose executive team and staff graciously welcomed participants and provided outstanding support throughout the three-day program.
As part of the U.S. delegation, A-BE-C Executive Director Pamela Artigas and Board Member Janet Gibson participated in discussions focused on strengthening international partnerships and sharing resources to better serve families worldwide. Thomas Exler, founder of Courage to Shine, also joined the delegation, contributing valuable perspectives from his personal advocacy experience.
“This was an important step forward in uniting our global community,” said Pamela Artigas. “By sharing ideas and working together, we can expand the support network available to families—no matter where they live.”
The Congress concluded with a shared commitment among participants to continue collaborating, share educational tools, and raise visibility for the bladder exstrophy community at a global level.
Following the Congress, Pamela traveled to Madrid attend the Asexve – Asociación de Extrofia Vesical, Cloacal y Epispadias Conference (October 31–November 2, 2025), where she spoke about A-BE-C’s advocacy efforts and the importance of international collaboration.
Stay tuned for updates from Madrid and highlights from the conference.
