The All About APDS page is intended to be an online community for those living with or caring for someone affected by activated PI3K delta syndrome (APDS) and to provide a place to share personal experiences in order to educate, support, and inspire each other. We encourage you to connect with others, share information, and ask questions. This page is for information sharing about APDS and is not intended to discuss medications nor engage in giving medical advice. The AllaboutAPDS channel is brought to you by Pharming Healthcare, Inc. a global commercial stage biopharmaceutical company developing innovative protein replacement therapies and precision medicines for the treatment of rare diseases and unmet medical needs. It is important to keep in mind that the content on this page is not intended to be medical advice. Your doctor is always the best source of information for medical guidance and questions. To keep this community safe and productive, we kindly ask that you avoid using the following in your interactions on this page:
• Certain personally identifiable information, such as an address, email, or phone number
• Harmful or offensive language, such as vulgarity or profanity
• Threats or personal attacks, such as discriminatory or derogatory comments
• Promotion of illegal activity
• Off-topic subjects like politics or religion, or those that may be considered spam, trolling, recruiting for studies, other commercial entities, or advertising
• Incorrect or misleading information, as well as unsolicited or unverified medical advice, such as providing doctor recommendations or suggesting the use of any specific medication
• Copyright or trademark infringement
• Any adverse events or side effects possibly due to a medication. Any adverse event concerns should be reported immediately to http://www.fda.gov/medwatch or by calling 1-800-FDA-1088
Each comment is evaluated on an individual basis, and we will remove any post or comment that violates our Community or Facebook Guidelines. Comments are reviewed daily, though there may be some questions or comments that take more time for us to answer. If a message is sent or a comment is made on weekends or holidays, there may be an additional delay. In the event of a medical emergency, call 911. Please note, at this time, we are only able to respond to comments and questions in English. For more information about APDS, please visit https://allaboutapds.com/. Please send us a direct message with any questions or concerns. This page is intended for U.S. residents only and is governed by U.S. We reserve the right to update our community rules or remove this page, or any of its comments, at any time. Pharming does not endorse and is not responsible for information and opinions shared by community members. While we may share links to third-party sites that contain information our audience may find useful, Pharming does not control or endorse and is not responsible for the content on these third-party sites. Thank you for being a part of this community! COR-US-2021-0005
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