Trevick Tough

Trevick Tough Follow along on Trevick’s journey with FIRES as therapies continue and life at home begins.

It is Trevick’s 🖐️5th🖐️ birthday! We have A LOT of things to be grateful for. Our list is long, but we are SO THANKFUL f...
03/11/2025

It is Trevick’s 🖐️5th🖐️ birthday! We have A LOT of things to be grateful for. Our list is long, but we are SO THANKFUL for the doctors, nurses, therapists, EVERYONE that had a part in Trevick’s care. I wish I had photos with everyone, but here are the ones I do have. We are forever grateful for our Seattle Children’s family; because truly they became family. 🤟

Trevick truly amazes us every single day, but today was a testament to how strong this little boy is! He is determined. ...
02/19/2025

Trevick truly amazes us every single day, but today was a testament to how strong this little boy is! He is determined. He is ready to go home and take everything head on. He is a miracle. He has shocked people and brought emotions out in others when they haven’t seen him in awhile. We are so proud of him. We are so grateful for all of our teams involved in his care. They have helped Trevick move mountains.

02/13/2025

💜💜💜

02/09/2025

On November 4, 2024, Trevick woke up with new onset seizures. Emergency care was sought and, ultimately, Trevick’s condition required the higher level of care at Seattle Children’s Hospital. Parents, Dillon and Lexi remained a steady constant at Trevick’s side as the medical team tested and searched for answers. After some time and observations, Trevick was given the diagnosis of Febrile Infection-Related Epilepsy Syndrome or FIRES.

This seizure disorder affects a previously healthy child after a brief, nonspecific fever illness, such as a common cold or flu. FIRES is so rare and affects only 1 in a MILLION children.

Trevick has been resilient through treatments and therapies and is preparing for discharge soon (February 2025)!

Follow this page for updates on Trevick’s journey and facts about FIRES so we can grow awareness for this rare and life-altering epilepsy condition. 💜🧠💙

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Winifred, MT
59489

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