02/08/2026
YEAR 6 IS UNDERWAY! Everyone, please meet 9 yr old Savannah! Sav is a resident of Champion, OH and before the age of 1 was diagnosed with Spinal Muscular Atrophy Type 2! SMA is a genetic, neuromuscular disease that consists of progressive muscle wasting. SMA does not affect cognitive ability. There is no cure for SMA, only treatments to help slow the progression. SMA comes with different complications like scoliosis and hip dysplasia (requiring surgery in most cases), respiratory weakness/failure (often requiring a CPAP or BiPAP), delayed milestones, contractors, swallowing difficulties, bone fractures due to immobility and atrophy, plus more!
Savannah is a wheelchair user and lives in a bi-level home. She is currently being carried up and down the steps on her mother's back to get into and out of her home.
We are raising money to build Savannah two wheelchair ramps that will allow her to be as independent as possible and have a SAFE way to access her home. This will also allow Savannah to have a way out of the home in the event of an emergency or fire!
Thank you to everyone for all your support and please keep sharing!
Order deadline is March 28th!
