16/10/2025
🌟🌟🌟Their are some sensitive information mentioned in this post relating to baby awareness loss🌟🌟🌟
Part 1 (Their 2 posts)
In light of baby awareness loss week it has reminded us about a topic we have never shared about and maybe useful to others.
💙As a baby Jake and his brother were put on a scheme called The Care Of Next Infant scheme known as CONI.
What is CONI?...
This is a scheme for parents who have experienced the sudden, unexpected death of a baby (under two years old) and are now expecting or have another baby. Criteria includes a previous infant death due to sudden infant death syndrome (SIDS) or other causes, with support offered for parents experiencing high anxiety. In some cases, it can also be offered to families of surviving children from a multiple birth where one baby has died.
💙 Why was Jake on this may you ask?.....
Due to Jake's mum also been a twin whos twin brother sadly passed away of cot death known as SIDS. With this it brought Jake's maternal grandparents alot of anxiety when they found out that Jake mum was expecting twins as well which was shared with the midwife.
💙What is the eligibility criteria?....
× Previous infant death: The primary criterion is a previous sudden and unexpected death of an infant under two years old. This includes deaths from Sudden Infant Death Syndrome (SIDS) or other causes.
× High anxiety: The program is designed for parents who have high levels of anxiety with a subsequent pregnancy.
× Multiple birth loss: The scheme may also be offered to support families with a surviving child from a multiple birth where one baby has
💙Eligibility criteria
Previous infant death: The primary criterion is a previous sudden and unexpected death of an infant under two years old. This includes deaths from Sudden Infant Death Syndrome (SIDS) or other causes.
High anxiety: The program is designed for parents who have high levels of anxiety with a subsequent pregnancy.
Multiple birth loss: The scheme may also be offered to support families with a surviving child from a multiple birth where one baby has died.
Availability: The program is available in many areas of England, Wales, and Northern Ireland, and some areas may extend support to parents bereaved for other reasons.
💙What the scheme offers
A named CONI coordinator will work alongside the public health nurse (health visitor) to care for a family. As part of the scheme, weekly contacts will be offered for up to six months or for two months after the age of the baby who died. After six months, contacts will be offered on a monthly basis up to the age of one year. The CONI coordinator will also liaise with the family’s GP, informing them of enrolment onto the CONI scheme.
Parents will also be given:
Resuscitation training.
A movement/apnoea monitor designed to detect a baby’s movements as they breathe. An alarm sounds after 20 seconds if breathing movements stop, thereby alerting parents.
💙The referral process
Referrals are usually made by the midwife at initial booking of pregnancy, but can also be made by public health nurses (health visitor), GPs, other health professionals and by the parents themselves.
We will continue how this helped Jake on a 2nd post 💙
