10/02/2026
Hi SCT warrior family,
So I’m a little late in posting these. Much of the last couple of years I didn’t really have much left to give of myself. Yet I was still an SCT warrior, battling too many symptoms of sickle cell anaemia yet with only the mere diagnosis of having sickle cell trait and whilst my own GP has been great, not every medical professional I’ve encountered along the way believes or attributes any of my pain or symptoms to carrying SCT.
So since my surgery in 2024, I began to crash. I realised I’d not really stopped since the major crises I’d had in 2020, following the and non-stop and brought on by unusually enlarged tonsils from having all the time, my body and mind needed to just stop! So I did!
The truth is I didn’t know if I would have the strength or the energy to come back! I began feeling like I needed to hide myself away! I didn’t feel like my voice was making a difference or leaving an impact. Yet every time I would fade away, I’d receive an email, or a msg from someone knowing someone or reading about SCT being symptomatic in its presentation and just like that the anger and pain for others who similarly found themselves fighting an unseen, yet very real and debilitating battle just like I was and still am, so my passion for helping others was re-ignited and I began to think outside the box!
I knew I had to create something powerful with a difference. I’m a natural born business minded woman, and began my very first business at the age of 6 or 7, but I’m an advocate and speaker at heart too! I passionately and aggressively fight for myself with all I’ve got and I fight just as hard for those who I care about and this group and all who are in it, mean so much to me, because when I began to think I was alone, in the middle of one of the darkest times of my life, fighting for my life, Symptomatic: Sickle Cell Trait - Global Voices United was born June 2020 and one by one after posting via 1 finger typing what was going on with me, I began getting replies from some of you too. The relief I so needed and the words “it’s not benign” and “it’s not just me” creeped out of my head through my dms and the tears overflowed my cheeks!
So born out of that pain, our voices collectively United globally. As many of you know I create resources and i wrote my story whilst unable to actually see properly or hold a pen or type properly it was truly God who did that through me because I was ILL and then adrenaline helped me begin hosting SCT talks to enable other SCT voices to be heard with the hopes of gaining enough attention from medics to push for further research. Whilst I might have had to take a pause because I was wounded bad emotionally and mentally and traumatised so deeply from just burrying the trauma deep within n figuring out how to heal, whilst still going through fresh trauma physically, emotionally with so much deep family conflict making me feel like I was done completely at one point, it was again non-stop all of last year, yet despite all of that and beyond feeling so physically and emotionally and mentally broken, it was by the grace of God that I began yet again, overcoming so many physical challenges i didn’t think I’d ever have been able to do again. I am walking now using a stick for support and I rock it well if I say so myself, and with regards to travelling, well it’s safe to say 3 years later I can actually drive (not yet passed, because I was too sick each time I tried taking my test), but even travelling via plane, a thing I once loved doing left me scarred and fighting for oxygen and left me bleeding within, a pre crises warning hit on the flight back, and then a full blown crises hit me bad and took over 8 weeks to recover yet again. And yes I was afraid, but I needed a break and a change and my sister and I used to have the best holidays ever, so I DID it by God’s grace and the love of my precious big sister didn’t make me feel like I was a burden because she wheeled me around in the airports on both sides of the world which made my heart burst with joy and gratitude that tears flowed and I began to ugly cry at the airports I couldn’t believe it, how someone could be so kind and want me who was now “different or sick” around and still have fun with me until my body couldn’t cope and I managed to dance again, something I can still do, but the pain in my legs and feet would cause me to swell abroad, but I had fun for the first time in 6 years! My sister gently let me just rest on half the holiday so I could go at my own pace. The overwhelming
emotion of it ALL well, I went through the process of being processed AGAIN by God. A process I knew too well from writing and living the “Exiting Egypt” 5 book series bedbound with stiff fingers in 2024 from March until October when they all were released. But healing kept flowing and to be honest I think I’ll always be healing from one thing or another, we all will as life brings with it many little ups and downs daily, Jemoza Wellbeinghe deep rooted pain of it all, I’m so grateful I’m no longer in that dark place, when I decided to let it all go and give it to God and I mean really give it to Him, He began allowing me to dream with Him again and a vision so much bigger than the one I had before became a driving force.
I say all that to say this, I am now able to offer so much more to all of you, whilst managing my health better, even when it’s really bad and being my mum’s carer the best I can (as she is still my carer when it gets bad).
So I have re-opened a fully rebranded online educational platform. Jemoza Wellbeing Academy. It used to offer many complementary therapies when I was more physically able, and although I miss delivering the best deep tissue and pain relievigg ng holistic therapisic massages as all who attended my practice recall, but with the way my joints and body have been I could no longer continue even thinking along those lines as much as I used to feel relaxed too just knowing how my work benefited and encouraged the body to heal itself through tissue and lymphatic manipulation. So now my SCT advocacy and creativity have aligned and birthed Jemoza Wellbeing Academy and we will be offering free resources and tools for SCT patients so that warriors can help themselves, along with creating a means to help others heal through writing and being creative.
They’re founded on some of the amazing lessons I’ve learned and my lived experiences and I’m proud to offer these FREE DIGITAL SCT downloadable leaflets, by which patients can use to take to their hospital appointments. They can be used for fighting for yourself along with my book and the SCT chronic care plan and journal if you so wish. I will be uploading a video later this week as we have collaborated with a medical doctor who is willing to fight and does so on our behalf and we are in the process of putting together something very special for SCT warriors globally.
For now, please do support my amazing work a percentage of income will go towards fundigg ng SCT research and projects and will enable me to continue growing the advocacy channels and many more works I envision for the betterment of our community’s health.
You can checkout my website through the linked videos and my YouTube channel linked below. I share how Jemoza began, my why and what I’m doing to help myself and others heal and truly shine like the sun from within! Praise and glory to God for birthing something so beautiful out of the pain I’ve been through and if it helps just one person know that your pain has a purpose WAAAAYYYY bigger than just yourself, it would change your perspective and your VISION too!!!! Thank You Jesus for Your Grace and mercy, humbly yours forever my Abba!
https://youtu.be/ysn7IxDCfx8?si=v7F27U3IqxGy0Eep
Download your FREE digital SCT flyer now and use it to re-educate yourself, the medics who care for you and other professionals who state that SCT is benign! It’s NOT been for many of us within this group! In partnership with Salveo Therapeutics and the My Sickle Care App!
Blessings and all my love!
Mwape ❤️🙏🏽
Life-saving knowledge should never be hidden.We’ve created free SCT & SCD digital downloads to support awareness, prevention, and informed care—because what ...
