Lyme.Global

26/06/2024

Special screening: "The Red Ring" - A journey into the heart of Lyme disease

'The Red Ring' is a thought-provoking and enlightening documentary that explores the heart of a global health problem - chronic Lyme disease - by following the personal odyssey of the filmmaker, Joonas Berghäll. Suffering from chronic Lyme disease and other tick-borne illnesses, Berghäll sets out on a mission to find a cure for his own debilitating condition and expose the reasons behind the widespread inaction and apathy towards this rapidly growing epidemic.

Berghäll travels across continents and meets patients who share their poignant experiences with Lyme disease, alongside front-line doctors, researchers who delve into the complexity of the bacteria and experts who discuss socio-political and economic barriers to effectively tackling the disease.

The documentary shines a light on the profound impact of Lyme disease on individuals, showing the real and often overlooked physiological and psychological consequences. Through personal interviews and compelling stories, "The Red Ring" confronts the scepticism and denial faced by many patients.

The film asks important questions about why Lyme disease does not get the attention it deserves, despite compelling scientific evidence and widespread suffering. Topics such as insufficient funding for research, controversies over diagnosis and treatment and the influence of the pharmaceutical and insurance industries are explored.

'The Red Ring' is not just another film; it is a call to action, urging us to recognise Lyme disease as a major global health problem and to question why sufficient support and solutions for millions of sufferers worldwide are lacking.

Watch the film, share it, talk about it. Let's bring Lyme disease out of the shadows.

Register for this free special screening with Joonas Berghäll at https://www.tezted.com/the-red-ring

There will be three screenings so register for your time:
1. 28 May 2024 7 pm Helsinki time for Europeans
2. 9 June 2024 4 pm Helsinki time for North and Central Americas
3. 30 June 2024 9 am Helsinki time for Sydney, Australia time.

BONUS: There will be 3 TICKPLEX PLUS tests raffled off per screening for people to win, these are offered by ArminLabs. A draw will be held among those present at the end of each screening.

Film release: The Red Ring / Punkkisota
Genre: Documentary
Release date: 14 May 2021 (Finland)
Director: Joonas Berghäll
Cinematography: Tuomo Hutri, Pini Hellstedt, Lars Skree, Jani Kumpulainen, Marita Hällfors
Editors: Nils Moström, Timo Peltola
Executive producer: Tine Klint
Music composed by: Kristian Eidnes Andersen
Original languages: English, Finnish, German, French, Italian
Co-Production company: Tondowski Films, WG Film, LevelK
Trailer (English): https://youtu.be/c264Arr9Czs?si=NE3JRhKwoloPaLaB
Facebook: Lyme documentary - The Red Ring / Punkkisota
Website: www.redringfilm.com
To stream on: Apple TV, Google Play, MUBI (varies by country)



This special screening provided by: Te?ted Oy - Tezted www.tezted.com

14/01/2024

💥💥 Lyme Italy Association 💥💥
WEBINAR January 26th, 2024
(English translation in first comment)

Gentilissimi/e,

continua il nostro impegno nel proporre occasioni di aggiornamento scientifico sulla malattia di Lyme. Associazione Lyme Italia e Coinfezioni in collaborazione con IFO (Istituti Fisioterapici Ospitalieri), ISG (Istituto Dermatologico San Gallicano) e GISML (Gruppo Italiano Studio Malattia di Lyme) propone un Webinar sulla malattia di Lyme articolato in due incontri.
Il primo, dal titolo "Malattia di Lyme: attualità e prospettive future", si terrà il 26 gennaio 2024.
Il secondo appuntamento, “Malattia di Lyme: uno sguardo alla forma "cronica" tra interrogativi e incertezze", avrà luogo il 2 febbraio 2024.
Nel corso del Webinar gli interventi di alcuni esperti italiani sulla malattia di Lyme si alterneranno ai contributi di relatori internazionali quali la Prof.ssa Eva Ruzic-Sabljin dalla Slovenia e il Dottor Richard I. Horowitz dagli Stati Uniti. Inoltre, il Dott. Enea G. Di Domenico, la Dott.ssa Giorgia Fabrizio e la Dott.ssa Ilaria Cavallo, ricercatori presso ISG, illustreranno i dati emersi dallo studio sul biofilm di Borrelia (progetto BABEL) condotto nel corso degli ultimi diciotto mesi.

Chiediamo la vostra collaborazione nel diffondere l’invito a partecipare a medici di famiglia e specialisti attraverso le modalità che preferite (passaparola, e-mail, ecc). L'evento è aperto al personale medico-sanitario, agli studenti universitari delle facoltà medico-sanitarie e ai soci di Associazione Lyme Italia e Coinfezioni. L'iniziativa è un'importante occasione di aggiornamento scientifico.

Se preferite che il vostro medico di riferimento riceva l’invito direttamente dall'Associazione, vi preghiamo di contattarci e di inviarci i riferimenti per potere procedere in tal senso.

Si rimane a disposizione per informazioni.
Cordiali saluti
Il Consiglio Direttivo

Associazione Lyme Italia e Coinfezioni

ISCRIZIONI

Iscrizione al webinar per il personale medico sanitario:
si prega di cliccare sul link sottostante
Iscrizione personale medico sanitario

Iscrizione al webinar per gli Associati di Associazione Lyme Italia e Coinfezioni:
si prega di cliccare sul link sottostante
Iscrizione Associati

PROGRAMMA, in allegato alla mail
per informazioni: eventi@associazionelymeitalia.org

in collaborazione conIFO Istituti Fisioterapici OspitalieriISG Istituto Dermatologico San GallicanoGISML Gruppo Italiano Studio Malattia di Lyme

04/12/2023

21/05/2023

Children as young as 2 have been denied urgent healthcare for a bacterial infection due to the Department of Health’s political stance on what has

15/04/2023

Tell Dobrusia what you would like to ask her on Monday night at 7pm AEST

Dobrusia is keen to support patients living with Lyme disease. She offers her expertise, free of charge every month in a Zoom session. The next opportunity to join these sessions will be this Monday evening, 17th April 2023. Put it in your phone calendar with an alarm so you don't forget, write it on a bit of paper and tie it to the dog, whatever it takes to remember!😂 Here's the link with the Zoom link and all the info you'll need: https://lymedisease.org.au/get-involved/ask-the-naturopath/

Please contact Dobrusia with your questions using this link:
https://lymedisease.org.au/contact-us/

17/03/2023

Lyme treatment questions?
Ask the Naturopath this Monday 20th March 2023 at 7pm AEDT! 💚
This month, Dobrusia will cover detoxification of the lymphatic system 👏👍

💥 Lyme treatment questions?

Ask the Naturopath Monday 20th March 2023 at 7pm AEDT! 💚

This month, Dobrusia will cover detoxification of the lymphatic system 👏👍
More info on our website: https://bit.ly/42iSox6

25/01/2023

Congratulations to the Lyme Disease Association of Australia!!

💥

Our official LDAA vehicle just got wrapped!

Both the car and the wrap (branded designs) were afforded via a Queensland government grant in 2022, and with the wrap recently completed, we are proud to be able to show it off. What do you think?

One of our key objectives is to "Educate the public and medical sector about the risks of Lyme disease and the need for early diagnosis and treatment (early detection may reduce the risk of the disease turning chronic)" and we are excited to be able to take this message to the streets!

We've already had folks stop to take pictures and make enquiries. (Winning!)

18/12/2022

As the concerning global Lyme & co-infections epidemic progresses, we hope that science will progress too and finally unravel the truth on chronic Lyme and so help patients to get the acknowledgment and help they need and deserve.

Debate over the concept of “chronic” Lyme disease has contributed to policies that exclude patients from specialist care. Many, if not most, of these patients e

19/11/2022

A survey to expose medical gaslighting globally 👏

This survey of Lyme patients worldwide is being conducted in collaboration with Lamar University and the Texas Lyme Alliance. It asks about your experiences navigating the health care system prior to your (and/or your child's) diagnosis. Completing this survey will help the academy and Lyme advocates learn more about the needs of the Lyme community. It takes only a few minutes to complete.⏱

We've all experienced it. Let's get it out there! 🗣
Click this link to read the info to see if you'd like to participate:

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

01/06/2022

Infectious diseases consultant publishes tick truths in medical journal

A new article has been published In this month’s Irish Medical Journal by John Lambert, Consultant in Medicine and Infectious Diseases at the Mater Hospital, Dublin. ‘Tick Borne Infections in the EU: A New Epidemic in the Face of Global Warming' discusses ticks carried on migratory birds transferring pathogens across multiple regions.

Noting the limitations in testing, he says that patients are being misdiagnosed with CFS, fibromyalgia, arthritis, simple Bell’s palsy, but many may have atypical neurological, rheumatological or cardiological symptoms... they and their doctors may not consider Lyme as a possible diagnosis. And as ticks carry many pathogens, “it is likely that other tick-borne infections are contributing to patients’ symptoms.”

Dr Lambert observes that “until we have better education for GPs and consultants alike in Ireland on the complexities of tick borne infections, until we have better diagnostics and until we have investment in research funding to improve our understanding of these conditions, patients will continue to be left undiagnosed and untreated.”

There’s more too, about chronic Lyme - Thank goodness for John Lambert speaking up for Lyme patients in Ireland. 💚💚💚

Ticks cause an acute inflammatory disease characterised by skin changes, joint inflammation and flu-like symptoms called Lyme disease