Paige Demmons Journey

17/09/2025

Age was discharged on Saturday. We are hoping to radiate her liver and do a consult with her other oncologist in Hershey, PA on Wednesday and Thursday morning for other ideas.
💕💜😘🦄🌈💪🥰

10/09/2025

One of Paige’s favorite things to do is summon a bunch of the staff to play UNO💕🦄🥰💜🎗️

10/09/2025

A little tired today, the liver has us stumped, but we’re still having a good day! 😘💕🦄💜💪🎗️

10/09/2025

10/09/2025

09/09/2025

Today was day 2 of radiation. Her liver levels are high. The steroids have been helping her to eat and feel better. Just need her levels to come up and see what she can do for chemo..

04/09/2025

We have gone from these first two pictures to now today the last picture. Paige was in a bad spot we were taken aside to have the quality of life talk and I didn’t agree with it. We got some steroids on board a couple days ago and today we have done a 180! Thank you for all the prayers and positive vibes. Car T wasn’t the answer for us and she had a reaction we weren’t expecting. We aren’t totally out of the woods but we are in a much better spot. We need to work on eating and drinking but at least pain is under control and fevers are gone.

28/08/2025

She is heading under for PET scan and CT hopefully we can get some answers

27/08/2025

We got our room on Monday. Paige has had quite a bit of pain fevers here and there and a few of
Our Boston Children’s Hospital friends
Visit for a game if UNO when she was up to it.

25/08/2025

Lots of pain and sleeping this weekend. Paige woke up with a fever this morning and we are waiting for a room at Boston Children’s Hospital. Hoping that this is just a sign that things are working.
💕😘🥰💪🦄💜

19/08/2025

Paige is doing pretty good. Lots of pain and being uncomfortable this past weekend but she was in a good spot so we we t to our first baseball game last night. She still having a hard time eating.
💕😘🥰🦄🌈💪💜

19/08/2025

https://www.youtube.com/live/lT0mxe4aIOE?si=lYOdF43_3SwSkvWT

We are at the 5hr mark.

Live from Fenway Park its the 2025 NESN/WEEI Jimmy Fund Telethon. Call 877-738-1234, go to jimmyfund.org or text KCANCER to 20222 to help donate!Subscribe on...