One Tip 4MS

04/05/2022

04/05/2022

04/05/2022

30/06/2021

I was scared to change when I was diagnosed, so I know what it’s like to start over again. But like anything, start slow & find a change that helps you with your MS.

13/04/2021

I love taking random pictures of me walking and I was literally repeating the words, I love to walk, when I took this shot. Little did I know there was a heart shape hole in the tree stump until I looked back at my photos. Perhaps I say those words because I’m scared that one day these huge leaps and bounds of steps, might be replaced by a weakened version of my MS.

17/03/2021

It can take years of practice not to feel uneasy to talk about it.

27/11/2020

From fear to relief by my yearly MRI results! No new lesions & a decrease in size with one lesion caused by shingles since my Lemtrada Treatment 4 yrs ago. As we looked at the scans side by side, It had almost gone. I was told by my neuro it would shrink but I had my doubts tbt. The other good news was my neck lesion had also shown signs of better fluid flow around it. When I was first diagnosed I thought stress would also mean the stress of fitness on my body. Where in fact I’ve bumped up my exercise & it’s kept my strength & focus on what my body obviously needs. This is me today focusing on diet and exercise as a main priority. I’m grateful for a Lemtrada Treatment Plan and the boss of for his vision.

01/11/2020

I just read a ladies cry for help with managing sleep & stress with MS on a forum. My first instinct was to send a virtual hug & take time to listen. If she was my friend, I wouldn’t judge but I know I’d be over there with chicken soup! Or a nudge to ask an expert for help. Or just sit & listen. There is a plethora of reason why you feel the way you do. But here’s where I start when the going gets tough.

15/10/2020

means monthly blood & urine samples for 5 years. It consists of two infusions over 2 years. 1 for 5 days Year 1. And the other for 3 days Year 2. Followed by a crappy recovery period & 5 yr observations. I’m pretty use them now. Having tried Tysabri & Gilenya without much success, this has been my best treatment with no new lesions to date. Now in my 7th year of diagnosis I wish my life was different with a more simpler approach to MS without drugs, a Matt Embry clean diet, lifestyle. However, whose to say that this approach wasn’t the best for me. I was completely new to MS when newly diagnosed. Clueless, scared, doubtful & vulnerable. My journey is different to yours & vise versa. But now I’m armed with knowledge, prevention, lifestyle and grit. I’ve had the chance to re invent my life, fitness, diet & mind to balance out the chaos around a diagnosis. My struggles are real, emotionally & medically with lots in between. Face and eye shingles, a bad thyroid & poor energy. I’m running, swimming, living & not giving up, never. I’m empathetic to others in my tribe! So let’s kiss MS goodbye when & while we can ✊ @ Perth, Western Australia

10/10/2020

Being diagnosed is tough, being tough is easy for me, but I’m still full of vulnerabilities that can take me down with this thing called MS. #

06/10/2020

I recall my state of panic when being diagnosed, but once the crisis of the unknown is lessened, you do learn to think calmer. Seek support. Ask questions. Talk to specialists.

02/10/2020

Work life balance.