Leah’s AMPS/ CRPS journey

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Leah’s AMPS/ CRPS journey Leah’s recover from AMPS, a condition we had never heard of before, but quickly took over our lives.

Day 2 was doubtful but leaving after Day 3- Leahs pain level was down to a 4 (which is unheard of for the past 22 months...
10/01/2024

Day 2 was doubtful but leaving after Day 3- Leahs pain level was down to a 4 (which is unheard of for the past 22 months). May only last a few hours but its the first good news we have had in a long time. She got itchy during the treatment too, which is apparently a good sign. Praying for a good outcome🙏🏼

Day 30. Leaving day! It has been a long journey. But when the flip switched, we kind of just looked at each other and kn...
23/11/2022

Day 30.

Leaving day! It has been a long journey. But when the flip switched, we kind of just looked at each other and knew that she was getting better (was around week 3). The brain is an amazing organ and we have really learned so much. I guess you just don’t know unless you have to know.

We have never dismissed Leahs feeling as invalid or “in her head” bc some doctor’s did. We always trusted her and knew she knew her own body. Leah has never been a kid who wanted attention or drama over an injury. She skipped parties and fairs the past few months because she just couldn’t get out of bed. No swimming all summer. No friends. Just pain. Through this we knew we needed to access the best doctors and specialist we could. Scott beat doors down in a way only parents do, taking canceled appts that morning and driving for hours, while I could side line Leah out of bed with beach days and shopping to distract what was really going on. Its a dark place when your kid is hurting. Every road back was really just a detour, and we did it, we got our girl back (well shes moving, pain is still there but🙏🏼🙏🏼🙏🏼). So dont just judge people bc you never know what they are facing behind closed doors.
But anyway, family and friends are everything, we have found love through people we owe everything to. Leahs lifelong journey awaits, but she is now officially “in remission”. In the long run, she saved herself. She rocks!

Day 29.Last night! Scott started with the first and ended with the last. Leah’s doctors took her to the batting cages to...
22/11/2022

Day 29.

Last night! Scott started with the first and ended with the last. Leah’s doctors took her to the batting cages today (which is awesome). We got to sit in on her PT and OT sessions and the executive board of Children’s Specialized Hospital happened to be there to talk about fundraising. Since we were the only ones down there, they spent some time with us listening to our story. Of course I cried because I guess I am a crier now. We are so grateful and will remember to pay it forward.

It felt great to roll her suitcase out of there 🫶🏼

Awesome surprise!
21/11/2022

Awesome surprise!

Day 28, 4 weeks in.
20/11/2022

Day 28, 4 weeks in.

Day 27. Weekend days have 7,589 hours in them. Leah’s making Tik Toks with her roommate. Good, boring day with a lot of ...
19/11/2022

Day 27.

Weekend days have 7,589 hours in them. Leah’s making Tik Toks with her roommate. Good, boring day with a lot of laughs and smiles.

19/11/2022

Hospital money doesn’t transfer 💰💰

19/11/2022

Amazing for this girl who could even straighten out her arm a few weeks ago ☺️

19/11/2022

I won’t miss this lady’s tone

19/11/2022

From yesterday (day 25). Suprise friend.
Friend like this are the 💣

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