ME Action NC

26/11/2025

The discounts here are impressive.
FullScript - 15% off everyday, more for Black Friday
Prodrome products including Gila 35% off,
Biomesight Gut Microbiome tests 43% off,
Theriome Aristotle Test 40% off,
20% off Fitbiomics, and more.

No added discounts for Amazon. Shopping through the affiliate link does raise money to help people with ME/CFS and LC!

MECFS and LC organizations are underfunded, especially patient-led nonprofits. That’s why Renegade Research has a mixed funding model including affiliate links and discount codes. With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win!

Help move research, care, and education forward with our affiliate links for things you purchase already or things you want to purchase for Black Friday.

What we earn and what you save are different for each vendor or product, but we make it easy to use.

You can also help by sharing our fundraising on social media and by encouraging others who can donate to give to Renegade Research. Small donations add up and many are looking to make bigger, end of year gifts. https://www.zeffy.com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755

Below are our affiliates and discounts. You can also go to our website, www.renegade-research.org/discounts-and-affiliate-links to see or share them all at once.

New! We have a major discount for Theriome Aristotle for Black Friday. This blood spot test reveals critical metabolic anomalies. We are offering a 40% discount for Black Friday. Go to our website to purchase. Valid until Dec 2.
https://www.renegade-research.org/discounts-and-affiliate-links

If you make Amazon purchases, most things you buy can earn us a percentage. Use our universal link for purchases in the US, AUS, CAN, FRA, DEU, IND, ITA, JPN, NLD, POL, SGP, ESP, and the UK. Don’t forget wearables, tech, cosmetics, pet supplies.
https://amzn.to/3MlH5Aq

Prodrome Science, the store for plasmologens including Glia and Neuro, gave us the affiliate code discount “Falor35” to save 35%! 💸 Glia was used in the protocol. Go to Prodrome.com and add code “Falor35” at checkout.

Fullscript professional-grade supplements and health products. We have an ongoing 15% discount and extra savings for Black Friday (11-28 to 12-2). Go to find most of the supplements you already use for less cost. https://us.fullscript.com/welcome/iburnett1685924021/store-start

For Biomesight Gut Microbiome Tests, use discount/affiliate code “RemissionBiome” to save 43%. Used in the remission biome protocol. Discount is valid for individual tests only, but you may buy more than one at a time. https://biomesight.com

Healthy GUT provides products for gut health. TrybutirynX was used in the protocol. Use our link for any product you already use from their product line. https://healthygut.com/Remissionbiome

Fitbiomics provides targeted probiotics. Use our affiliate link so we earn a commission when you use discount code “RR20” (and you save an additional 20% off)!
https://fitbiomics.com/?rfsn=8424506.7fb2e8&utm_source=refersion&utm_medium=affiliate&utm_campaign=8424506.7fb2e8

Affiliate links and codes provide us with a percentage of your purchase to fund Renegade Research 501(c)(3) operations and projects with no additional cost, and often additional discounts for you. Thank you for helping us!

16/11/2025

Please join us this Wednesday, 11/19 at 12:30 pm for our MEAction NC support group. If you have questions about the disease, need help coping, or want to connect with others who are facing some of the same challenges, this is the place to come. Anyone with or is invited. New people are always welcome.

For zoom link and phone-in numbers, go to: https://www.meaction.net/event-details/meaction-north-carolina-support-call-2025-11-19-12-30-1

15/11/2025

The Networkis hosting 2 great events for caregivers this weekend. Sunday is the workshop on lessons from caregiving mentioned in the post below. And today, Saturday Nov 15th at 1:30 PM – 3:30 PM EST, is the monthly ME Caregivers Support Call. They welcome caregivers of people with chronic diseases such as myalgic encephalomyelitis (ME), Long COVID, MCAS, etc. to these calls to connect with and support each other! For details go to:
https://www.meaction.net/.../caregiver-support-call-2025...

Join us this SUNDAY - November 16th at 3 pm ET for a powerful workshop for caregivers: Top 10 Lessons from 20 Years of Caregiving by Kim Moy. LINK IN COMMENTS.

Did you know that nearly 1 in 4 family caregivers report feeling alone. If you know a family caregiver, let them know they are not alone. Share this workshop with them!

Participants will receive a sense of community, connection, and helpful information from a caregiver who has walked this path for 20+ years. Kim Moy is the founder of Caregiver Wisdom, volunteer, and caregiver for her husband. Kim helps chronic illness caregivers become more resilient, connected, and joyful.

All caregivers welcome!

P.S. Do not miss our 2nd workshop especially for parent caregivers coming up on Nov. 22nd! Link also in our bio!

13/11/2025

Frustrated with status quo and want to make a difference via science to help pwME, pwLC?

Volunteers wanted for patient-led research organization that focuses on complex chronic illness. Zoom info session this Saturday, Nov 15, 2025.

All welcome: able bodied, spoonies, people with a few minutes here and there or people with hours and hours, people with multiple areas of talent and interest or people with 1 skill.

What to Expect:

1) Overview of how we collaborate, fund, and execute research as a decentralized network.

2) Areas of Need: Learn about potential roles, including data analysis, project management, community outreach, and more. 3) Real Stories: Hear firsthand from current volunteers about their experiences.

4) Your Questions Answered: Open Q&A to dive deeper into getting involved. We are a global, remote team, contributing spoons as able.

Time is 12 pm Eastern US, 9 am Pacific US, 5 pm GMT.

Recording will be available. Will put the volunteer interest form in comments.

Register via QR code in graphic or via link:

Learn About the Renegade Research Team and How You Can Join Us Are you curious about how patient-led research is done and interested in contributing? Renegade Research invites you to our upcoming information session, designed specifically for potential volunteers who want to contribute to our projec...

06/11/2025

November is National Family Caregiver Appreciation Month.

is bringing you two powerful webinars with Kim Moy and Denise Lopez-Majano to honor and support caregivers in our community. Caregiver Wisdom and will be sharing more resources throughout the month as well!

1. Nov. 16 at 3 pm ET: 10 Lessons from 20 Years of Caregiving — a workshop with Kim Moy, care partner for her husband who lives with ME/CFS, POTS, and related illnesses. Kim will share strategies and practical tips to prevent burnout and strengthen your resilience.

Kim is the founder of Caregiver Wisdom, a volunteer, and a board-certified health & wellness coach. She leads the monthly Partner Caregivers Support Group for (all caregivers are welcome), and has found it so fulfilling that she left her corporate career to become a caregiving coach.

Get your ticket: https://ow.ly/gtAP50XlbZb

2. Nov. 22 at 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — a webinar with Denise Lopez-Majano, longtime ME advocate and caregiver for her two sons, who got sick when they were 12 and nearly 15 years old more than 20 years ago.

Denise has been an ME advocate since 2007, and now advocates for those with Long COVID and similar illnesses too. In addition, she co-founded and leads ’s monthly caregivers support group. She will share insights on caring for children of all ages with ME/CFS, Long COVID, and other chronic illnesses.

Get your ticket: https://ow.ly/3IcV50XlbZh

- Webinar tickets are pay-what-you-can (starting at $1) to help cover event costs and enable us to host more future events. If you’re unable to contribute, fill out this form to receive a free ticket:
https://ow.ly/vtuu50Xm59c

All month long, we’ll share caregiving stories, wisdom, and resources in collaboration with Caregiver Wisdom Please like, share, and help us uplift caregivers everywhere!

Bateman Horne Center Solve MECFS Initiative Open Medicine Foundation Long Covid Familiess Patient-Led Research Collaborative World ME Alliance RTHM The Sick Times Massachusetts ME / CFS & FM Association Covid-19 Long Haulers Awareness and Education

06/11/2025

November is Family Caregivers Month! The Network, Open Medicine Foundation, Solve MECFS Initiative and Bateman Horne Center are joining forces to highlight resources, events, and community support for caregivers.

We also have a list of resources and support available here: https://ow.ly/nXqF50Xna9P

Together, we’re stronger, and united in care. Follow and share using . We invite everyone to join in!

28/10/2025

04/10/2025

Researchers with DePaul University are asking for the ME community’s help as they develop a new questionnaire to identify & assess PEM. If you have a spare spoon, check out the link below. It takes only a few minutes to complete their survey.

Here’s the info:
“Are you 18 or older? Do you experience Post-Exertional Malaise? Or are you a member of the general population interested in contributing to research?
We are conducting a brief online survey as part of a research study focused on Post-Exertional Malaise (PEM). Your responses will help us evaluate the validity and reliability of a new survey tool designed to assess PEM symptoms.
The survey takes approximately 10-15 minutes to complete. Participation is entirely voluntary and anonymous. Additional information is provided on the first page of the survey.
You can access the survey here: www.dsqpem2.com

Leonard A. Jason, Ph.D.
Director, Center for Community Research
Professor of Psychology, DePaul University”

You are being asked to participate in a research study designed to evaluate the reliability and validity of a new survey instrument that measures Post-Exertional Malaise (PEM)—a key symptom experienced by people with Myalgic Encephalomyelitis (ME). PEM involves a worsening of symptoms after physic...

15/09/2025

Please join us this Wednesday, 9/17 at 12:30 pm for our MEAction NC support group. If you have questions about the disease, need help coping, or want to connect with others who are facing some of the same challenges, this is the place to come. Anyone with or is invited. New people are always welcome.

For zoom link and phone-in numbers, go to: https://www.meactions.org/event-details/meaction-north-carolina-support-call-2025-09-17-12-30-1

07/09/2025

For many people with ME, telehealth is their only way to access medical care. Help us save it!

Have you called your Congress members about telehealth today? Call script here: https://www.meactions.org/telehealth
​​
Essential telehealth provisions are set to expire on September 30th 2025. Congress needs to hear from all of us that telehealth saves lives. The “CONNECT for Health Act of 2025” (S.1261/H.R. 4206), introduced as bills in the both the House and the Senate, directly addresses the long-term expansion of telehealth.

These bills’ intent is to make many of the current pandemic-era telehealth flexibilities permanent, ensuring continued and future access for Medicare beneficiaries and expanding coverage for more providers

Help us advocate today!

If you don’t have the capacity to call, an email can also help! It doesn’t matter how you reach out. It just matters that we voice our need for telemedicine access to continue!

Want to call in community? We have a community call party coming up on September 17th 3:00 pm ET. https://us06web.zoom.us/meeting/register/hHS7GVMISS-zCtmRSrVkuQ #/registration

18/08/2025

Please join us this Wednesday, 8/20 at 12:30 pm for our MEAction NC support group. If you have questions about the disease, need help coping, or want to connect with others who are facing some of the same challenges, this is the place to come. Anyone with or is invited. New people are always welcome.

For zoom link and phone-in numbers, go to: https://www.meactions.org/event-details/meaction-north-carolina-support-call-2025-08-20-12-30-1