Cru's Crew

02/12/2025

Update- This video is the progression from when the new trial med was started in September of last year, to yesterdays MRI. There was slight shrinkage again this time. All blood work looked good. Heart looked great. He is having a reaction from the meds that are creating a full body ray but the doctor are sending him home with some new meds for that. He will not go back until March and as of right now the trial med still has another year of him taking it. Thank you all for the prayers and great vibes!

01/12/2025

Cru made it down to St. Jude’s yesterday and had his MRI today. I will update once we get any results. Today was the first day he didn’t get sedated for his MRI and his mom said he fell asleep about 10 minutes into it. So that’s awesome news so far. He has been really struggling with the sedation the last couple of times. As always prayers and good vibes for our boy!!

22/10/2025

Love this community!!

Thank you, Oak Grove. 🧡🖤‼️
Because of your generosity at last Friday's Defeat All Cancer night, we were able to donate $1,472 to support Cru's Crew Benefit Fund and his family in his fight against cancer.

Moments like this remind us what makes this community special — when one Panther needs us, we show up. Every shirt bought, every dollar given, every positive message sent… it matters.

We truly can accomplish great things when we do it together.

20/08/2025

Cru is finally going to a first day of school. Due to all the missed school days the last two years we decided to have Cru repeat 1st grade and he is ready!!

12/08/2025

Good news tumor is shrinking and doing what we want the medicine to do. Unfortunately with the weight gain he is having, his meds will be decreased. He also got an adhd diagnosis which is pretty common after multiple brain surgeries and we honestly was hoping for the diagnosis because it’s been rough going lately. He will not have to go back until December, so that will help with getting school started and a routine going. He also does not have to have his heart monitored no more at this time because he has had good scans for so long now. So more good news!! Thank you all for the prayers!!

12/08/2025

Cru just went back for his MRI, I will update when we hear something. Cru had a really rough day yesterday on not want to cooperate with any appointments, so hopefully they can get today to go better!

10/08/2025

Prayers and good vibes for safe travels, as they head back to St. Jude’s today. Our family has been through the ringer this week with another situation so we need this trip to bring some good news. I of course will update as the info comes in. He will have lots of appointments this week so most updates will more than likely be during the evening times unless it’s a short day. As always thank you for keeping our little dude in your thoughts!!

16/07/2025

Everyone wish this cool dude a Happy 7th birthday!! He has had a rough few years but continues to amaze us with his strength, and his ability to still always be happy!! Happy Birthday Cru, you are loved beyond belief!!

01/07/2025

Cru had his his routine echo done today and we will know the results tomorrow but so far this summer life has been pretty good and he is enjoying just a normal kid summer. He will be going back to St. Jude’s in August but today he said he felt pretty dang handsome so we went and took some pictures!!! As always prayers for our boy!

06/05/2025

Prayers and good vibes for Cru this morning as he heads to Children's Mercy. He will get an echo done today and an EKG on Friday.

24/04/2025

Now that they have made it home and the car situation thankfully got figured out, I figured I would update with what the cardiologist has said. Cru will be taken off his trial meds for 2 weeks and then he will have an echo and EKG done. They are hoping being off the meds his left ventricle will heal on its own. He will not be allowed to continue the meds if his LVEF is not above 50%. Right now it is measuring at 43%. This is all very nerve racking because last time he was taken off the meds for this long his tumor grew at a fast pace. We do need to start him on some form of a diet to try to battle the extra weight because it really is taking a toll on his body. His appointment with cardio will be May 6th and he will be able to have that done locally at Children's Mercy. I will update once we have or know anything after that appointment or anything in between. Please keep praying for our little man and having him in all positive thoughts.

23/04/2025

So blessed!!!