UofL Cystic Fibrosis Care Center

02/12/2025

The pediatric care center is opening at 10am today
(2 December 2025)
due to winter weather.

11/11/2025

Hey Aldi shoppers! Did you know Aldi has a turkey dinner package that feeds 10 people for ~$40?!? The details are in the link below. We love saving money on groceries and this deal at Aldi is too good not to share!

Thanksgiving is about gathering with loved ones, and ALDI is here to help you set a full table without stretching your budget. Get your main dishes, sides, drinks, and desserts—all at prices that make you grateful before the first bite.

11/11/2025

The adult and pediatric care teams have been busy this month learning, networking and team building at the North American Cystic Fibrosis Conference and the Rocks and Roses gala.

07/10/2025

New Parents With CF Needed for Study

Join the Health Outcomes of Parents with Cystic Fibrosis (HOPeCF) study to help CF care teams better support people with CF during early parenthood. The study is recruiting people with CF who are new parents to help understand if, when, and how parenthood affects lung function, mental health, stress, and other CF-related health outcomes. Study participants will complete 12 online surveys over a 5-year period and receive $30 per completed survey. Researchers also will collect data from participants' medical records. Click the link below for more information!

https://redcap-std.hs.pitt.edu/redcap/surveys/?s=RFP7NEA3WDANDE7T

Send a message to learn more

15/09/2025

If you know a person living with CF aged 13-19 years old who is interested in photography and writing, here is a project opportunity to share! More information can be found by clicking this link: https://docs.google.com/forms/d/e/1FAIpQLSdQyo39IilMVubgwk3XdVpnRjSRBA1eD9Ege81gVtJDlMzz0w/viewform?pli=1

The Familiar Pinch – Cystic Fibrosis Chronicles is a free, remote, 6 month-long photography and writing program for adolescents and young adults (ages 13–19) living with Cystic Fibrosis. This is a space for creativity, community, and connection, open to anyone with CF who wants to explore photography and writing while building friendships with others who get it. If you are interested, please submit your form by October 1st, 2025.

About the program: Participants will join Zoom workshops every other week. In these sessions, you will learn how to use digital cameras, receive creative prompts to guide image-making and writing, and explore artwork by the project creator (me!) and others in the chronic illness community for inspiration.
Through photography and journaling, participants will reflect on daily life, identity, and what it means to live with CF as well as have the opportunity to share and discuss their work with peers in a supportive space. At the end of the program, everyone’s contributions will be compiled and curated into a professionally printed book that celebrates each participant’s unique story and perspective.

Send a message to learn more

30/08/2025

As a reminder, the adult and pediatric care centers will
be closed 1 September 2025 in observance of Labor Day.

19/08/2025

Just a reminder, people with cystic fibrosis age 2 years and over are to wear a mask in the common areas of the healthcare setting such as a lobby, hallway, or elevator. Masks are not needed in areas such as the patient exam room or PFT lab. If you do not have a mask upon entry to a healthcare setting, masks are available for use at check in or conceirge desks. If you have CF, please wear a mask to help reduce the risk of contracting an infectious disease. We care about your health and want to keep you "bug" free!

04/08/2025

Please join the CFF - KY/WV chapter at the CFF cares night for an evening of casual conversation and updates on the care of people with CF. Due to infection control concerns, this event is not for people with CF, rather their caregivers, family, and friends.

13/05/2025

Please join the Target The Cure Clay Shoot Fundraiser in September. See https://events.cff.org/target-the-cure for more information on the event, how to participate, and how to sponsor.

26/02/2025

The Cystic Fibrosis Foundation-funded Success with Therapies Research Consortium (STRC) is conducting a study to gather feedback from people with CF and their family members on what patient-provided data is important to collect to support clinical care and research.
Scan the QR code in the attached photo. The survey takes about 10-15 minutes to complete. Direct any questions you may have to STRC@childrens.harvard.edu.

25/02/2025

If you have questions about social security, here is an informative webinar hosted by the CF Social Security Project.

https://www.youtube.com/watch?v=NnHL45m2AHU
Patients and families can contact the CF Legal Information Hotline at CFLegal@sufianpassamano.com or by calling 1-800-622-0385.

Join us for an informative Webcast about Social Security Disability (SSDI) and SSI benefits.CF Legal Information Hotline attorneys explain the law and how it...

20/01/2025

In observance of Martin Luther King Jr Day, the pediatric care center is closed January 20, 2025.