Ragdollmummas - a blog about epilepsy and special needs

10/08/2017

Please have a read of this well written letter to Epilepsy. 💜💜💜

15/07/2017

Today I cried in the shower, I let the tears stream down my face and I let the emotions I had been holding onto for way to long come flooding out. The tension release is not what you would expect, it's like a rubber band that bounces back. It doesn't get rid of the hurt, frustration and anger, it just stays the way it has been for 18 months and if I'm honest 10 years of similar emotions. [ 814 more words ]

https://ragdollmummas.wordpress.com/2017/07/15/moving-forward/

Today I cried in the shower, I let the tears stream down my face and I let the emotions I had been holding onto for way to long come flooding out. The tension release is not what you would expect, …

26/07/2016

Kelly Wilton "Quack". 💜💜

A great read about an awesome duck.

Some days I feel like a total fraud,  Like today.  Today is one of those days.  I feel like everything is getting on top of me.  Three kids and far too many worries between all 3 of them.  Worries …

10/07/2016

The side stepped child as you go to help your other child with a seizure. The child who wants to tell you about their day but your other child is crying in pain. The child who misses out on things an average child doesn't.


Siblings of children with special needs are a special kind of child. A child that has patience, empathy, resilience and unconditional love. They are the other child who can so easily be forgotten.

The Other Child The side stepped child as you go to help your other child with a seizure. The child who wants to tell you about their day but your other child is crying in pain. The child who misse…

19/06/2016

Dance floor or the balcony
Up on the balcony I look at how far we have come. I feel lucky that I have the time to sit on the balcony and look at Lizzy's health but it's not the…
,special needs families, , ,

Up on the balcony I look at how far we have come. I feel lucky that I have the time to sit on the balcony and look at Lizzy’s health but it’s not the first time on the balcony an…

03/06/2016

A long time between blogs! Both Zoe and I have just been swamped dealing with life! Now to get it all down on paper. Our latest blog about a bad day for my little man. Take care, Ragdoll Mumma Kelly x

Going the Distance Today was a tough day. It was the cross country carnival. My son wanted to give the race a red hot go. He chose to enter the longer event and was full of confidence before he lef…

25/03/2016

Thank you Ragdoll Mumma Angela for letting us share your thoughts.

"I'm/we're fine". "I'm/we're all good". The two phrases that quickly follow any question of "how are you?" The truth is, we are not really fine, we are not really all that good in the true sense of the words. Living the rollercoaster of two children with uncontrolled epilepsy is never going to be fine or all good. Watching both your children seize daily or for many minutes at a time and pleading/praying for them to wake up is never fine or all good. [ 726 more words. ]

https://ragdollmummas.wordpress.com/2016/03/25/fine-in-our-own-way/

   “I’m/we’re fine”. “I’m/we’re all good”. The two phrases that quickly follow any question of “how are you?” The truth is, we …

18/03/2016

I ring Kelly and the phone answers. "Welsh potato association how can I help you ". I answer back in my welsh accent (doesn't sound like welsh at all by the way). "Hello I am wanting to speak to someone about entering the welsh potato championships" " oh well you have rung the right place". Most of our phone conversations start off this way and can last anywhere from a minute to five minutes of us pretending we are someone else. [ 913 more words. ]

https://ragdollmummas.wordpress.com/2016/03/18/when-laughter-is-the-best-medicine/

   I ring Kelly and the phone answers. “Welsh potato association how can I help you “. I answer back in my welsh accent (doesn’t sound like welsh at all by the way). & #8…

06/03/2016

Hey all it's Purple Day on March 26 and I would love you to wear purple. Why??? Hmmm loaded question that one. You know that feeling you get when someone close to you is really sick and you are worried about them. Well families and people with uncontrolled epilepsy in their lives have that feeling everyday. In our case we have lived with that feeling 24/7 for 7 years. [ 707 more words. ]

https://ragdollmummas.wordpress.com/2015/03/23/why-purple-day-epilepsy-awareness-march-26th

   Hey all it’s Purple Day on March 26 and I would love you to wear purple.  Why??? Hmmm loaded question that one. You know that feeling you get when someone close to you is re…

23/02/2016

It was an anxious time for us all. Some of the choices parents of children living with epilepsy are not always easy.

Sleeping Over Our little man is growing up. He celebrated his tenth birthday in November and during December and January we withdrew his epilepsy medication. It’s always a tough decision. I constan...

24/01/2016

As our kids head back to school I thought it would be good to re post this blog. 💜💜💜

   Dear Teacher/Principal/Counsellor   I am writing to you today to express my thoughts about my child with Uncontrolled Epilepsy and hopefully give you some insight into her.  ...

20/01/2016

Be like Bill...