Mindbook, What's Non Verbal?

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Mindbook, What's Non Verbal?

Empowering non verbal people by changing verbal people's attitudes. Everyone has a voice. Speak your mind and share your stories with this community.

My name is Janelle, but people usually me Nell. I am living my life with Cerebral Palsy. I am non verbal from a result of my CP. I have found it frustrating over the years when people automatically assume that I must have an intellectual disability due to being non verbal. I know that there are lots of non verbal people in the same position as me who face verbal people misunderstanding about being non verbal and think that non verbal people have an intellectual disability every day. This isn't true at all. I put it down to the lack of understanding by verbal people about what non verbal means. I have set up this Mindbook! What's Non Verbal? page as a community of support for non verbal people, their family and friends. I hope that it will be a safe page for people to be honest and open about issues as well as your experiences good or bad with being non verbal or caring for someone who is non verbal. Your suggestions and ideas will be very welcome about how you have overcome or handle issues surrounding being non verbal. People need to bear in mind that non verbal people have wonderful brains and they are intelligent just like everyone else, but they communicate with the world differently through a number of different communication methods. It is respecting non verbal people and remembering they have the right to choose how they want to communicate with people and the world. Look past people's disability to find a voice within.

01/07/2024

I have better things to do than emailing the NDIS like have a life without any funding for support.

It even seems like it was a 5 minute news story about a poor person with a disability to make the ABC look like their care, but they are blowing me off because they have something better to talk about Julian Assange who can talk, walk and feed himself.

I am looking for a TV news show with some guts to take the fight against the NDIS for other people who are in the same vote.

Here is my email that took me 2 hours to type up to Scott.

Hi Scott,

I am waiting to hear from the NDIS through you whether or not my new plan will be approved by the 7th of July 2024, or will my current plan just renew automatically.

It is not hard for you to send me to confirm yes or no to let me know what is happening with my life saving support to keep me alive. It seems like you are just slack or you don't care about people with disabilities.

You said that you would need 3 months to gather all of the reports that you need about me.

You have all of the reports that you required to make your decisions about what I required for support and equipment without meeting me face to face. How do you know what I need if you don't know me personally?

I will look forward to hearing from you soon.

Thank you,

Janelle

19/04/2023

Please share this new website with your network of people.

This wonderful website has been created by AGOSCI INC and Speech Pathology Australia.

The Communication Hub is no brainer for me. Our community needs a website for people to learn about how to people with communication disabilities, so we are better understood to get included in society.

We are looked upon as being outcasts in lots of area of society because most people don't understand about people who communication differently.

Parker is a young man with Developmental Language Disorder. He has always wanted to sky-dive, but will his communication difficulties get in his way?

03/04/2023

It is extremely exciting for me to get and read two beautiful heart touching stories from Mums with children who are living fulfilling lives with communication challenges to go into the "Can We Share A Word" book.

I am looking forward to receiving my beautiful stories in over the coming weeks. keeping on spreading the word about this book please.

28/03/2023

Hi Tasmanian Folks,

I just want to let you know that I am going to be starting working on a new project called “Can We Share A Word” with some of the Organising Committee Gang for the AGOSCI Conference 2022.

I am going to be putting together a collection of personal stories from people with complex communication challenges, families, teachers, therapists and educational tips in a new book to educate everyday people about our experiences, good, bad or otherwise and the different ways that our community communication with the world.

Please send your stories and educational tips to my email address nellyswheel@hotmail.com or please share my post with someone who you know that might be interested in sending anything me.

Cheers, Nell
(Janelle McMillan OAM)

06/12/2021

Seriously ABC!

People with disabilities only want to be treated as equal citizens.
I feel that this question "Are You Proud Of Me?" is a question that kids would ask their parents, not adults.

How can we as adults with disabilities expect to be accepted as adults and grow better inclusion in society, when we are being stereotyped as children or child like, by a big television company that a has huge impact on people's attitudes.

I don't need or want anyone to be proud of me in what I have achieved.🤩🤪😜

03/12/2021

Day 3 of the silly season!

International Day of People with Disability!

I don't need a special day celebrate to my life or my CP.
I am who I am.
My CP makes me the person I am.
There is no shame in having a crazy body.
I am smart.
I am an artist.
I am an author.
I fund raise for charities.
I am an OAM.
I am funny.
I care about people sometimes, lol.
I don't want a pity party from people.
Living is a brilliant reason to be celebrated every day.
I just want to be treated as an equal citizen.
I just want respect from people.
I just want to have the appropriate funding for my support and equipment to live my life.
There is lots of people with no disability who are worse off because they are fighting illnesses and for their life. Don't forget this.
Yes! Of course I have hard day, but it is what it is.
Don't feel sorry for me. I feel sorry for you.
Happy Days!

30/11/2021

$900 for a new computer joystick!
This will be 5th my joystick.
I can't use my computer in any other way.
My computer is my world.
I use my computer for communication.
I use my computer for talking to friends.
I use my computer for my art.
I use my computer for fundraising.
I use my computer for awareness work.
I use my computer for my banking and paying bills.
I use my computer for making all of my appointments.
I use my computer for booking taxis.
I use my computer for shopping.
I use my computer for education.
I use my computer for pleasure.
I use my computer for my mental wellbeing.
My computer keeps me sane.
My computer keeps me connected with people and the world.
My computer gives my freedom.
My computer assists me to live and achieve in life.
I would have no life without my computer.
NDIS won't fund computers.
NDIS will fund iPads.
I can't use an iPad with my crazy body.
People who are like me are disadvantage yet again.
We didn't ask for our disabilities.
People and the government should remember this.

26/11/2021

Open up your hearts and minds to accept and understand people who live with a disability, especially people with communication challenges who are isolated from human connections.

Working together to break the walls of misconception to become a more inclusive and diverse society.

We just want to be heard, it is the most important human right and not to be shut off from the world.

We don't want to have robots who just do what they think we need or want every day. We want to be recognised as people with hearts and beautiful minds.

17/11/2021

Over the last 10 days I have been working extremely hard with two gorgeous speech therapists on a grant application for my new project called "Can we share a word." A book and a call to action.

I am hoping to receive a grant to assist with putting together a new book of stories from a wide range of people with communication challenges, family members, support workers, teachers and professionals who work with people with communication challenges to raise awareness about us and what we face out in society.

I hope that the project will grow inclusion and acceptance of people with communication challenges in all areas of society.

Thanks so much to Tracey and Felicity for all of your wonderful support and hard yakka.

08/05/2021

It was a brilliant day at Tassie Indie Author Book Fair.

Exciting times ahead!

07/05/2021

I hope to see some of you at the Tassie Indie Author Book Fair tomorrow from 10 am until 3 pm at the Brooke Street Pier.

I hope to see some familiar faces on the day. Please share with your Facebook friends.

03/05/2021

I received an email from the Organising Committee, saying that they are pleased to confirm that my abstract paper called A different way to challenge what is NON-VERBAL has been accepted for a Short Presentation (20 Minutes) at the AGSOCI 2021 Conference to be held on 1 – 4 September 2021 at the Hotel Grand Chancellor, Hobart.

Not bad hey!🙂I pity the poor people who have to listen to me go on, lol.🤪They will have sore ears by the 20 minutes is up.🤪

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