Periodic Paralysis Association

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Periodic Paralysis Association

The PPA is on a mission to foster awareness and promote science-based information. https://periodicparalysis.org/donate/

12/11/2025

🎥Now available: the 2025 Periodic Paralysis Conference Sessions!

We are thrilled to share the posting schedule for the recorded sessions from the 2025 Periodic Paralysis Conference. The first video went live yesterday on our YouTube channel: https://youtube.com/?si=f1Chx9IM8-QSFJU7

Posting schedule:

🦓NOV. 11TH - LIVING STRONGER WITH PERIODIC PARALYSIS (DR. HARR)

🦓NOV. 13TH - THE NUTRITION CONNECTION: FROM TRIGGERS TO TOOLS (ANITA DHARWADKAR RD, LDN)

🦓NOV. 18TH - BEYOND DIAGNOSIS LIVING WELL WITH PERIODIC PARALYSIS (DR. KNOLL)

🦓NOV. 20TH - PERMANENT MUSCLE WEAKNESS IN PERIODIC PARALYSIS (DR. SUETTERLIN)

🦓NOV. 25TH - CONSIDERATIONS AND CONTROVERSIES IN PERIODIC PARALYSIS (DR. CANNON)

*NO UPLOAD ON THANKSGIVING*

🦓DEC. 2ND - PERIODIC PARALYSIS RESEARCH UPDATES 2025 (DR. CANNON)

🦓DEC. 4TH - PROTOCOL TO POWER ANESTHESIA APPROACHES THAT CHANGE LIVES (DR. HARR)

🦓DEC. 9TH - ADVOCACY & PERIODIC PARALYSIS (JAMES ROMANO & DANE CHRISTSEN)

🦓DEC. 11TH - NAVIGATING THE EMERGENCY ROOM (CIENNA DITRI & MASON ALLEY)

🦓DEC. 16TH - WPPD POWERING UP THE FIGHT AGAINST PP (JAMES ROMANO & CIENNA DITRI)

🦓DEC. 18TH - ASK THE EXPERTS PANEL (DR. HARR & DR. CANNON)

🦓DEC. 23RD - CONFERENCE WRAP UP VIDEO

23/10/2025

Did you know that this week is Invisible Disabilities Week?

At the PPA we believe that connected, we are strong. Our disabilities may be invisible, but this week let’s come together to make them loud and visible to the world!

Invisible Disabilities® Week is Hosted by the Invisible Disabilities Association (IDA) and Founded by IDA in 2014.

03/10/2025

The countdown is on! Less than 24 hours remain until the 2025 Periodic Paralysis Conference! If you plan on attending virtually, please:
1. register to attend virtually for free at https://periodicparalysis.org/2025-periodic-paralysis-conference/
2. Download the Whova app and sign in
3. Get the party started! Introduce yourself with an icebreaker, make friends, ask questions, and build community

See you soon!

27/09/2025

We at the PPA are pleased to announce that the 2025 Periodic Paralysis Conference Whova app is live!

If you are attending our 2025 PPA conference in-person or virtually please download this app so you can get the full conference experience. You will be able to chat with other conference attendees, ask questions, and see valuable information here. Any questions fell free to ask us and we will do our best to answer them.

To view the conference, you have to register to attend virtually. You can do that for free at this link: https://periodicparalysis.org/2025-periodic-paralysis-conference/registration-2/

26/09/2025

✨Meet the Speakers for the 2025 Periodic Paralysis Conference✨

🎤 Anita Dharwadkar is a Registered Dietitian who brings both professional expertise and lived experience with chronic illness to her work. She is passionate about supporting individuals navigating complex health conditions, with a focus on empowerment, self-trust, and cultivating a safe, judgment-free space.

Anita has presented at numerous conferences and specializes in the intersection of chronic illness, nutrition, and body image. Her approach is person-centered, weight-inclusive, and guided by Health at Every Size® principles. She works with people of all ages and backgrounds, with particular dedication to those living with rare chronic illnesses.

Anita believes individuals hold their own wisdom and resilience, and she is honored to walk alongside them as they discover tools for healing and self-advocacy.

✏️Register today to hear Anita’s session From Triggers to Tools: The Nutrition Connection in Periodic Paralysis including advocating for yourself, reading labels, communicating dietary needs, and much more!

Late in-person registration and virtual registration: https://periodicparalysis.org/conference-2025/

12/09/2025

✨Announcing the 2025 Periodic Paralysis Conference Topics!!✨

Have you ever wanted to learn or dive deeper on:
❓what is periodic paralysis
🩺 interdisciplinary care for periodic paralysis
💪 permanent muscle weakness
🍽️ Nutrition
🧠 psychology
📢 advocacy
🎤 concerns & controversies in periodic paralysis
🚨 emergency care
🩻 anesthesia
🐕‍🦺 service dogs
🔬research updates from Dr. Cannon’s Lab

✏️Register today for late in-person attendance or virtual attendance to learn about all of these topics and more on October 4th and 5th at the 2025 Periodic Paralysis Conference located at the Hilton Lake Buena Vista in Lake Buena Vista, FL.

Registration link: https://periodicparalysis.org/2025-periodic-paralysis-conference/

See you soon! 🎉

Brought to you by the Periodic Paralysis Association in partnership with Xeris Pharmaceuticals

11/09/2025

✨Meet the Speakers for the 2025 Periodic Paralysis Conference✨

🎤Dr. Cannon received his M.D. in 1986 from Johns Hopkins and his Ph.D. in Biomedical Engineering in 1986 from Johns Hopkins.

Dr. Cannon is a recognized authority on channelopathies and neuromuscular disorders. His contributions to this and related fields include numerous articles, and book chapters, and a commitment to education, clinical practice, and research. Dr. Cannon serves on the Editorial Board of a number of professional journals including Neuron, Cell, Biophysical Journal, Journal of Physiology, Journal of General Physiology, and Journal of Neuroscience. Dr. Cannon’s lab at UCLA had been a leader and pioneer in periodic paralysis research since 1993.

Register today to hear Dr. Cannon share research updates from his lab, explore periodic paralysis controversies & considerations, and to ask him your questions!

Late in-person registration and virtual registration: https://periodicparalysis.org/conference-2025/

10/09/2025

✨Meet the Speakers for the 2025 Periodic Paralysis Conference✨

🎤Ross Knoll, Ph.D.
Dr. Knoll completed his Ph.D. in clinical psychology from Northern Illinois University and a postdoctoral residency in clinical health psychology. He is a licensed psychologist specializing in integrated behavioral health services within outpatient primary care clinics. His work emphasizes evidence-based psychosocial interventions to promote lasting improvements in patients’ health and well-being.

Register today to hear Dr. Knoll share about learning to live with periodic paralysis, advocating for yourself, mental health, coping with a diagnosis, and much more!

Late in-person registration and virtual registration: https://periodicparalysis.org/conference-2025/

09/09/2025

✨Meet the Speakers for the 2025 Periodic Paralysis Conference✨

🎤William Harr DNP, CRNA is a Board-Certified Registered Nurse Anesthetist. In 2021, Dr. Harr completed the Doctor of Nursing Practice at Lourdes University where he dedicated his time and research to anesthesia safety for patients who have Periodic Paralysis. Since graduating Dr. Harr has partnered with the Periodic Paralysis Association extensively, including creating Quick Reference Guides for Patients with Periodic Parlaysis (these can be found on our website).

Register today to hear Dr. Harr officially share his finished Anesthesia Quick Reference Guides for the first time, lead a panel on interdisciplinary care in periodic paralysis, and to ask him your questions!

Late in-person registration and virtual registration: https://periodicparalysis.org/conference-2025/

04/09/2025

✨ 30 Days to Go!
🎉 One month out from the 2025 Periodic Paralysis Conference! Whether you’re a patient, caregiver, or health professional, this weekend at Hilton Orlando Lake Buena Vista at Disney Springs is packed with possibility.
🔍 Diagnosis, treatment, and hope
❤️ Meaningful moments to build a community of friends just like you
➡️ Don’t miss it—reserve your spot today and plan your trip or log-in details: https://periodicparalysis.org/conference-2025/

29/08/2025

💙 “Community Awaits You”
From diagnosis to daily living, you are not alone. This conference brings together:
👥 Patients, caregivers, clinicians, leading experts, policymakers
🎓 Education, networking, and social events
🫂 Stories that heal and inspire
Whether it’s your first time or your fifth, this weekend is designed for YOU.
➡️ Be a part of it—register and let’s grow stronger together: https://periodicparalysis.org/conference-2025/logistics/hotel-travel/

21/08/2025

Do you want to learn more about the upcoming 2025 Periodic Paralysis Conference? Do you have questions? Join us for a Facebook Live with Periodic Paralysis Awareness on Saturday, August 23rd at 11am (EST)

Ralph Berthiaume, Founder of the Periodic Paralysis Support Network will lead a discussion with Cienna Ditri, President of the Periodic Paralysis Association (PPA), who will give updates and address questions about the Periodic Paralysis Conference October 4-5th at the Hilton Lake Buena Vista in Lake Buena Vista, Florida.

The 2025 Periodic Paralysis Conference is brought to the PP community by the Periodic Paralysis Association.

Please comment any questions below.

If you are unable to attend this live event, the event will it will be available for future viewing.

Be sure to check “going or interested” on the event page to get further updates!

Event page link⬇️
https://facebook.com/events/s/qa-discussion-on-the-periodic-/3268873029926335/

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https://periodicparalysis.org/

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