Remembering Karley's Fight - Chedda Condition

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Remembering Karley's Fight - Chedda Condition

Karley has a newly discovered condition called CHEDDA and is the 9th known case in the world.

she will have an array of physical and mental disabilities but She is our rare, little unicorn �

31/12/2024

As I was doing stockings tonight (we haven't had our family Christmas yet :-) ) I was reminded again how Karley's stocking will never again have toys and goodies in it.
This year, instead of an empty stocking, we put some birthday balloons to celebrate her December 17th birthday ❤️

It's adapting to the change and moving forward, differently. The pain, the grief, the longing to hold her is still there, but carrying that is more manageable as life changes and moves forward with new and different experiences.

Merry Christmas Karley Josephine! 🥰

18/12/2024

December 17
Karley would be turning 6 today.
We started the tradition of driving around, looking at Christmas lights. She had very limited sight but I wholeheartedly believe she could see the contrast of the lights, especially the bright, flashing ones.
We got some pizza and sang Happy Birthday while enjoying some birthday ice cream.

The picture of the little girl with Jesus is such a strong, powerful image. She is whole again and we are reminded of his love and the excitement!
We love you so much Karley!
Happy Birthday!

01/11/2024

Karley didn't get too many times to dress up but she was the cutest little mouse for one Halloween. 🥰

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