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FCS Focus

Familial chylomicronemia syndrome (FCS) is a rare, life-threatening disease. We appreciate your interest in our content and updates. b. c. d. e. f. g.

Learn about FCS, find resources to manage the condition, and meet others living with FCS. IONIS’S SOCIAL COMMUNITY GUIDELINES

Welcome to Ionis Pharmaceuticals (Ionis) official social media channels. Ionis utilizes social media to communicate transparently and promptly with our customers, patients and caregivers using our products, healthcare professionals, and other stakeholders. Our social media channels are governed by these Social Community Guidelines, in addition to the Terms of Service / User Agreements and legal notices of respective social media platforms (e.g., Facebook, Instagram, YouTube, LinkedIn, and X, formerly known as Twitter). When engaging with Ionis’ social media channels, please adhere to the following guidelines:

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04/11/2025

Fat buildup under the skin (xanthomas) may be a sign of familial chylomicronemia syndrome (FCS). Skin can tell a deeper story. Visit http://bit.ly/48p98s0 to learn more.

03/11/2025

Women with familial chylomicronemia syndrome (FCS) face special risks—especially during pregnancy or with hormonal changes when triglyceride levels may spike. Awareness is critical. Visit http://bit.ly/4h0LMLj to learn more.

02/11/2025

For people with familial chylomicronemia syndrome (FCS), every gram of fat counts. A very-low-fat diet with less than 15-20 grams of fat is critical—not optional. Visit http://bit.ly/4q88w0g to learn more.

01/11/2025

Many people with familial chylomicronemia syndrome (FCS) don’t even know they have it. Let’s change that by raising awareness and encouraging testing. Visit http://bit.ly/46HOn9E to learn more.

31/10/2025

Managing severely high triglycerides (TGs) is central to living with familial chylomicronemia syndrome (FCS). Testing and treatment may help save lives. Visit http://bit.ly/4q4hCea to learn more.

30/10/2025

You may be your own best advocate. Speak up, ask questions, and demand healthcare professionals that understand familial chylomicronemia syndrome (FCS). Visit http://bit.ly/4q3WTr4 to learn more.

29/10/2025

Familial chylomicronemia syndrome (FCS) is estimated to affect less than 14 in a million people. FCS is rare, but it's real—and deserving of recognition and support. Visit http://bit.ly/48oKTKm to learn more.

28/10/2025

Familial chylomicronemia syndrome (FCS) can deeply affect daily living, from what you eat to how you feel. Support, care, and awareness make a difference. Visit http://bit.ly/3KHYS4f to learn more.

27/10/2025

One of the most dangerous complications of familial chylomicronemia syndrome (FCS) is pancreatitis. Pancreatitis is a life-threatening complication of high triglycerides. Prevention starts with awareness. Visit http://bit.ly/3J1lgox to learn more.

26/10/2025

Sharing stories and information can build connections and offer resources for people living with familial chylomicronemia syndrome (FCS). Help us raise awareness for this rare disease. Visit https://www.livingwithfcs.org/ to learn more.

25/10/2025

Expert dietary guidance may help when managing familial chylomicronemia syndrome (FCS). A Registered Dietitian Nutritionist (RDN) can provide personalized support, help navigate food choices, and empower individuals to maintain a fat-restricted eating plan safely and confidently. Visit http://bit.ly/3L2vJ3D to learn more.

24/10/2025

Familial chylomicronemia syndrome (FCS) may often be mistaken for more common conditions. Awareness can help prevent years of misdiagnosis and mistreatment. Visit http://bit.ly/4nISSqp to learn more.

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