Dystonia Association, Support, & Information - Alberta , CA

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Dystonia Association, Support, & Information - Alberta , CA "Community" makes us strong! "Nothing so concentrates experience and clarifies the central conditions of living as serious illness." Arthur Kleinman

03/12/2025

Botulinum toxin is a protein that is produced naturally by a particular type of bacterium which can be used as a medicine to relax your muscles. Tiny amounts are injected into your neck and shoulder muscles, reducing the nerve signals that cause the muscles to contract.

It can reduce the abnormal head and neck movements and relieve pain. Other treatments, such as physiotherapy, can be used alongside this medicine to help with your movement and balance. Your healthcare professional will discuss these options with you.

Botulinum toxin is given as an injection by appropriately trained physicians into the affected muscles in your neck. Your doctor will decide on the required dose, which muscles should be injected and the treatment schedule. Sometimes your doctor may use a technique called electromyography (which registers the activity of muscles) to help locate the injection sites.

Improvement should be seen within 1 week after injection. The effect is temporary and usually lasts for 3 to 4 months. After this time the link between the nerve and the muscle starts to work again. This means that the muscle may start to contract again and further botulinum toxin injections may be needed.

If you have any questions about botulinum toxin treatment, please speak to your doctor or healthcare professional.

03/12/2025

📸 We’re on Instagram!

Follow us for behind-the-scenes stories, community updates, and ways to connect with others who understand blepharospasm. 💙✨

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Tag a friend who should join our journey and help grow the BEBRF community! 🙌

Cervical dystonia; study of gait & balance impairment and effect of botulinum toxin.  Free article.
03/12/2025

Cervical dystonia; study of gait & balance impairment and effect of botulinum toxin. Free article.

Cervical dystonia (CD) may affect not only head posture but also gait and balance. The relationship between quantitative gait abnormalities and perceived disability, the contribution of head tremor (HT) and the impact of botulinum toxin (BoNT) on these disturbances remain unclear.

02/12/2025

Let's be honest…

Living with blepharospasm can feel isolating. Right now, there are many people who are newly diagnosed -- feeling scared, alone, and unsure where to turn.

That’s why BEBRF exists. Not because we have all the answers, but because no one should have to face this alone.

This GivingTuesday, your gift can be the phone call, the support group, or the resource that someone desperately needs.

đź’™ Will you help someone breathe again today?

Donate Now: https://bebrf.app.neoncrm.com/forms/3

Wise words from Tom Seaman - Author about music.
02/12/2025

Wise words from Tom Seaman - Author about music.

In this  Weekly Words of Wellness, I want to talk about the benefits of music on our nervous system. We all know that music and dancing are highly touted for their health benefits and many of us take advantage of music on a regular basis. I would like to share a little more about this topic that...

And better persons!
30/11/2025

And better persons!

Good morning, Warriors. Remember to take time for yourselves today.

~ It's okay to not be okay ❤️ Danie

29/11/2025

Asking for help isn't a sign of weakness. It's a sign of strength. If you're struggling, the 988 Lifeline is here for you 24/7. Call, text, or chat 988.

Hot off the press!  Video from the Red Deer Symposium, Sept 2025
27/11/2025

Hot off the press! Video from the Red Deer Symposium, Sept 2025

Dr. Davide Martino of the University of Calgary, speaking at the Alberta Dystonia Symposium in Red Deer Alberta, on September 20th, 2025, about "Patient Awar...

24/11/2025

VAD is hosting a Christmas Cheer Event and we would like you to stop in for a visit! 10 am to 3 pm - December 12, 2025.

24/11/2025

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

24/11/2025

JOIN local community resources at Millwood's Mall - Entrance 1 for an IDPD Community Resource Fair. FREE TO THE PUBLIC! Stop by between 11:30 and 4 pm.

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