Fight for Zach

15/02/2026

Your generosity fuels real change. Support rare disease patients, strengthen advocacy, and help us continue life‑changing work. 💙

Donate here; https://www.rarediseases.co.za/donate-old

09/02/2026

Make a impact today! 💙
Donate before 28 February 2026 and receive a tax-deduction certificate while making a real difference.

Donate here: https://lnkd.in/dRetqGjV

06/02/2026

04/02/2026

Day 4 of Rare Disease Month 💙

Today we share the powerful journey of Vimla , whose life changed completely after the sudden onset of severe autoimmune illness.
Her journey includes intense treatments, loss of mobility, repeated hospitalisations, vision complications, and even a near‑fatal cardiac event during chemotherapy. Despite these unimaginable challenges, Vimla continues to fight for proper care, stability, and recognition of her condition.
Her strength reminds us that chronic illness is not just a medical battle, it’s an emotional, physical, and financial one too.

Read her full journey on our blog:
https://www.rarediseases.co.za/post/vimla-redddy-medical-personal-statement

04/02/2026

Day 2 of Rare Disease Month😃

Today we highlight Ramohlale Mmaphuti, who has been living with Trigeminal Neuralgia for 10 years, a rare condition often described as sudden, electric shock–like facial pain. Though invisible to many, her journey reflects strength, resilience, and the reality of living with a rare disease.
As Trigeminal Neuralgia warrior Ramohlale Mmaphuti reminds us: “It is rare, but it is real.” 🩵
Read her story on our website blog: https://www.rarediseases.co.za/post/living-with-trigeminal-neuralgia-my-10-year-journey

04/02/2026

Our RARE Merch Presale is STILL ON!
Did you miss out? Don’t worry, you’ve still got time to secure your favourite RARE hoodies, tees, bucket hats, stickers, mouse pads, and starter packs!💙
Stock is limited, so grab yours while the presale lasts!
https://www.rarediseases.co.za/shop

04/02/2026

Day 3 of Rare Disease Month 💙

Today, we share the inspiring story of Narishka Fourie, whose life changed at just ten years old when a day at the movies became the beginning of her rare disease journey. Now 18, she lives with Marfan syndrome, Chiari malformation, and scoliosis, three rare conditions that have shaped her path but have never dimmed her strength, talent, or voice.

Her story is one of courage, self-discovery, and rising above the limitations placed on her from a young age. From hospital rooms and countless medical tests to navigating school with misunderstood conditions, Narishka found resilience she never knew she had. Today, she is a musician, writer, model, and patient voice ambassador, using her platform to advocate for understanding, awareness, and empathy for those living with rare diseases.

Narishka reminds us that:
“Your story matters,and it might be exactly what someone else needs to hear.”

Read her full journey on our blog:
https://www.rarediseases.co.za/post/from-popcorn-lines-to-hospital-rooms-my-life-changing-rare-disease-journey

01/02/2026

Rare Disease Month is here. 💜

Every movement, every story, every effort matters.

Read more on our website and join us as we raise awareness, spark conversations, and celebrate every step taken.

https://www.rarediseases.co.za/post/seven-years-to-a-diagnosis-a-lifetime-of-advocacy

28/01/2026

Every pedal stroke brings hope.
Join the Rare Diseases SA team for Ride4Rare at the 2026 Cape Town Cycle Tour!
Register & learn more at: www.rarediseases.co.za

28/01/2026

Give hope. Claim the benefit.
Donate before 28 February 2026 and receive a tax-deduction certificate while making a real difference.
💚Donate here: www.rarediseases.co.za/donate-old