Amika Needs your help - McCunes Albright Syndrome

06/04/2026

Remember to book your tickets we will also have hamburgers and wors rolls to buy,there will be loads of entertainment for the kids too.pack your cooler boxes with your favourite alcoholic or non alcoholic drinks and come join us for a fun afternoon/evening

Contact Ronel on 0729634618 or myself on 0834607506 to purchase your tickets 💜

15/03/2026

13/03/2026

Join us for a fun afternoon/evening all for a good cause.We will be RAISING THE ROOF FOR AMI

There will be lots to keep the kiddies busy while you sit back and enjoy these Amazing local artists ,bring your cooler box with your drinks in and some snacks,we will have snack platters available to pre order,more info to follow.

We look forward to seeing you all 💜💜

25/02/2026

Against all odds our Lord blessed us with a miracle despite what was seen on the x-rays God always has the last say🙌Our baby girls scan came back Normal all glory and honour to our Lord.🙌🙌🙌Thanks for everyone that keeps praying your prayers don't go unheard 🙏

17/02/2026

Today Feels like we are living our worst nightmare.

With any diagnosis, you pray you will be spared the worst of the symptoms...When it's your child, how do you even describe how hard you pray that your child is spared 😥😥😥😥

Amika has been showing signs of Fibrous Dysplasia, where normal bone is replaced by weak, fibrous scar-like tissue. This leads to bone pain, fractures, and deformities.

The pain she has been experiencing in her leg. 😭😭 It is devastating to watch.

She needs to be admitted into hospital to undergo a bone scan / X-Ray.

The Bills keep climbing.

Please support our BackaBuddy that is in Place to help with Amika's Medical Bills, or share this post. Every donation Helps!

LINK IN THE COMMENTS 👇

28/01/2026

Thanks to Koekie Tuisbakkery you are now able to place orders for these delicious cookies again .

18/01/2026

https://www.backabuddy.co.za/campaign/amika-needs-your-help-mccunes-albright-syndrome?fbclid=IwdGRjcAPZnNpjbGNrA9mc1mV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHl9gGYNg8SH1eUNeo9fKhn0B1i1pANsZbsuGGx7FBzbSnwlcb7L7JXG8Ifbr_aem_fhsg43xdCiOu6FdFlBYtew

Ever heard of a condition that affects bones, skin, and hormones all at once? 🤔

McCune-Albright Syndrome is a RARE genetic disorder that many people don't know about but understanding it can make a huge difference for those living with it, and their families as they need all the help and support, they can get.

Here's what makes this condition unique:
- Fibrous dysplasia - bones develop fibrous tissue instead of normal bone
- Café-au-lait spots - distinctive light brown skin patches
- Hormone imbalances - can cause early puberty and other endocrine issues

The tricky part? Symptoms can vary dramatically from person to person. Some may have mild bone changes, while others face more complex challenges with multiple body systems affected.

Knowledge is power - and sharing information about rare conditions like McCune-Albright Syndrome helps build awareness and support for families navigating this journey. 💙

Please share this post to help spread awareness! You never know who in your network might benefit from learning about this condition.