MENA Congress for Rare Diseases

MENA Congress for Rare Diseases MENA Congress for Rare Diseases was established to serve and support people with rare diseases. Join us in this mission!

We are an organization dedicated to improving the lives of people living with rare diseases in the MENA (Middle East and North Africa) region. Our mission is three-fold:

Educate:
We raise awareness among the public and healthcare professionals about rare diseases, to facilitate earlier diagnoses and better care for patients. Connect:
We bring together patients, their families, and affected communities, to create a network of mutual support. Support:
We provide practical and emotional support to patients and their loved ones, helping them navigate the healthcare system and access treatments. Together, we work to ensure that people living with rare diseases in our region can thrive and receive the best possible care.

Can Art and Awareness Transform Life with Epidermolysis Bullosa?In the last week of October 2025, we had a discussion wi...
17/11/2025

Can Art and Awareness Transform Life with Epidermolysis Bullosa?

In the last week of October 2025, we had a discussion with Ms. Hanaa El Sadat โ€” Founder and Chairperson of Yasmin El Samra Foundation (DEBRA Egypt), an organization dedicated since 2014 to raising awareness and supporting people living with Epidermolysis Bullosa (EB) in Egypt and the Arab world.

In this heartfelt conversation, Hanaa shared her journey with her daughter Yasmin, who turned her pain into color and creativity. She spoke about the daily challenges of EB patients, the vital role of families, the importance of training healthcare providers, and how art can heal both body and spirit.

As Hanaa says:

โ€œMy message is that every person with EB deserves to live a life of discovery and hope, in a safe and caring environment.โ€

Read the full interview here: menararediseases.org/news

๐ŸŒŸ ๐„๐š๐ซ๐ฅ๐ฒ ๐๐ข๐ซ๐ ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ซ๐š๐ญ๐ข๐จ๐ง ๐๐จ๐ฐ ๐Ž๐ฉ๐ž๐ง!Donโ€™t miss your chance to join the 5๐ญ๐ก ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2026 in Abu Dh...
15/11/2025

๐ŸŒŸ ๐„๐š๐ซ๐ฅ๐ฒ ๐๐ข๐ซ๐ ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ซ๐š๐ญ๐ข๐จ๐ง ๐๐จ๐ฐ ๐Ž๐ฉ๐ž๐ง!
Donโ€™t miss your chance to join the 5๐ญ๐ก ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2026 in Abu Dhabi, 09โ€“11 April 2026.
Enjoy an exclusive early bird discount on your registration fees โ€” available until 31 December 2025!
๐Ÿ”— Register now at: https://www.menarare.com/register

09/10/2025
09/10/2025

๐Ÿคฒ The parents of of Adman explain how their family experienced the journey for his son to receive the diagnosis Duchenne.

This initiative is made in cooperation with
MENA Congress for Rare Diseases and Hala Tannira

โณ Only 2 weeks left until the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐Œ๐ž๐ญ๐š๐›๐จ๐ฅ๐ข๐ฌ๐ฆ ๐ข๐ง ๐‡๐ž๐š๐ฅ๐ญ๐ก ๐š๐ง๐ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž, ๐ƒ๐ฎ๐›๐š๐ข, 17-18 ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ 2025๐Ÿฅผ Learn f...
04/10/2025

โณ Only 2 weeks left until the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐Œ๐ž๐ญ๐š๐›๐จ๐ฅ๐ข๐ฌ๐ฆ ๐ข๐ง ๐‡๐ž๐š๐ฅ๐ญ๐ก ๐š๐ง๐ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž, ๐ƒ๐ฎ๐›๐š๐ข, 17-18 ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ 2025

๐Ÿฅผ Learn from top experts
๐Ÿค Network with healthcare leaders
๐Ÿš€ Stay ahead with the latest research and innovations

โœจ We are waiting for you there!

๐Ÿ”— Register now: metabolism.ae/registration

โณ Only 2 weeks left until the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐๐ž๐ฎ๐ซ๐จ๐ ๐ž๐ง๐ž๐ญ๐ข๐œ ๐ƒ๐ข๐ฌ๐จ๐ซ๐๐ž๐ซ๐ฌ, ๐ƒ๐ฎ๐›๐š๐ข, 17-18 ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ 2025๐Ÿฅผ Learn from top ex...
04/10/2025

โณ Only 2 weeks left until the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐๐ž๐ฎ๐ซ๐จ๐ ๐ž๐ง๐ž๐ญ๐ข๐œ ๐ƒ๐ข๐ฌ๐จ๐ซ๐๐ž๐ซ๐ฌ, ๐ƒ๐ฎ๐›๐š๐ข, 17-18 ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ 2025

๐Ÿฅผ Learn from top experts
๐Ÿค Network with healthcare leaders
๐Ÿš€ Stay ahead with the latest research and innovations

โœจ We are waiting for you there!

๐Ÿ”— ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ž๐ซ ๐ง๐จ๐ฐ: neurogenetics.ae/registration

ู‡ุฐุง ุงู„ุดู‡ุฑุŒ ูŠุณุฑู†ุง ุฃู† ู†ู‚ุฏู… ู„ูƒู… ู„ู‚ุงุก ู…ุน ุงู„ุฏูƒุชูˆุฑุฉ ูˆู„ุงุก ุฑุฌูŠุนุฉุŒ ุทุจูŠุจุฉ ุทูˆุงุฑุฆุŒ ู…ุฏุฑุจุฉ ุดุฎุตูŠุฉ ู…ุนุชู…ุฏุฉุŒ ูˆุฃู… ู„ุทูู„ ู†ุงุฏุฑ.ููŠ ู‡ุฐุง ุงู„ู„ู‚ุงุกุŒ ...
30/09/2025

ู‡ุฐุง ุงู„ุดู‡ุฑุŒ ูŠุณุฑู†ุง ุฃู† ู†ู‚ุฏู… ู„ูƒู… ู„ู‚ุงุก ู…ุน ุงู„ุฏูƒุชูˆุฑุฉ ูˆู„ุงุก ุฑุฌูŠุนุฉุŒ ุทุจูŠุจุฉ ุทูˆุงุฑุฆุŒ ู…ุฏุฑุจุฉ ุดุฎุตูŠุฉ ู…ุนุชู…ุฏุฉุŒ ูˆุฃู… ู„ุทูู„ ู†ุงุฏุฑ.

ููŠ ู‡ุฐุง ุงู„ู„ู‚ุงุกุŒ ุชุดุงุฑูƒ ุฏ. ูˆู„ุงุก ุชุฌุฑุจุชู‡ุง ุญูˆู„ ุงู„ุชุญุฏูŠุงุช ุงู„ุชูŠ ุชูˆุงุฌู‡ู‡ุง ุงู„ุนุงุฆู„ุงุชุŒ ูˆุฃู‡ู…ูŠุฉ ุงู„ุงุฏู…ุงุฌ ุงู„ู…ุฌุชู…ุนูŠุŒ ูˆูƒูŠู ูŠู…ูƒู† ู„ู„ูˆุงู„ุฏูŠู† ุงู„ุงุนุชู†ุงุก ุจุฃู†ูุณู‡ู… ุฃุซู†ุงุก ุฏุนู… ุฃุทูุงู„ู‡ู….

ุชุตูุญูˆุง ุงู„ุดุฑุงุฆุญ ู„ู‚ุฑุงุกุฉ ุฃุจุฑุฒ ู„ุญุธุงุช ุญุฏูŠุซู†ุงุŒ ูˆุฒูˆุฑูˆุง ู…ูˆู‚ุนู†ุง ุงู„ุฅู„ูƒุชุฑูˆู†ูŠ ู„ู„ุงุทู„ุงุน ุนู„ู‰ ุงู„ู…ู‚ุงุจู„ุฉ ุงู„ูƒุงู…ู„ุฉ.

ุงู‚ุฑุฃูˆุง ุงู„ู…ู‚ุงุจู„ุฉ ูƒุงู…ู„ุฉ ู‡ู†ุง:
https://menararediseases.org/news/%D8%A7%D9%84%D9%84%D9%82%D8%A7%D8%A1%20%D8%A7%D9%84%D8%B4%D9%87%D8%B1%D9%8A%20%D8%A7%D9%84%D8%A3%D9%88%D9%84:%20%D8%AF.%20%D9%88%D9%84%D8%A7%D8%A1%20%D8%B1%D8%AC%D9%8A%D8%B9

#ุตุญุฉ

This month, we are honored to feature Dr. Walaa Regeia, an emergency physician, certified personal coach, and mother of ...
30/09/2025

This month, we are honored to feature Dr. Walaa Regeia, an emergency physician, certified personal coach, and mother of a child with a rare condition.

In her journey, Dr. Walaa shares personal insights on the challenges families face, the importance of inclusion, and how parents can care for themselves while supporting their children.

Swipe through to read key moments from our conversation, and visit our website for the full interview.

Read the full interview here:
https://menararediseases.org/news/Monthly%20Feature:%20Dr.%20Walaa%20Regeia

๐ŸŒŸ We are honored to be guided by an exceptional ๐’๐œ๐ข๐ž๐ง๐ญ๐ข๐Ÿ๐ข๐œ ๐‚๐จ๐ฆ๐ฆ๐ข๐ญ๐ญ๐ž๐ž whose expertise and visionary leadership are shapin...
25/09/2025

๐ŸŒŸ We are honored to be guided by an exceptional ๐’๐œ๐ข๐ž๐ง๐ญ๐ข๐Ÿ๐ข๐œ ๐‚๐จ๐ฆ๐ฆ๐ข๐ญ๐ญ๐ž๐ž whose expertise and visionary leadership are shaping the success of the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐๐ž๐ฎ๐ซ๐จ๐ ๐ž๐ง๐ž๐ญ๐ข๐œ ๐ƒ๐ข๐ฌ๐จ๐ซ๐๐ž๐ซ๐ฌ 2025

Congress President: Dr Mohamed Osman E. Babiker

Scientific Committee:
- Prof. Dr. Ayman El-Hattab
- Prof. Dr Brahim Tabarki Melaiki
- Prof. Fahad Bashiri
- Dr Haitham Elbashir
- Dr. Majid Aziz
- Prof. Pierre Krystkowiak
- Dr. Vivek Mundada
- Dr. Wejdan Hakami

๐Ÿ”— ๐…๐จ๐ซ ๐ฆ๐จ๐ซ๐ž ๐ข๐ง๐Ÿ๐จ๐ซ๐ฆ๐š๐ญ๐ข๐จ๐ง ๐š๐ง๐ ๐ญ๐จ ๐ซ๐ž๐ ๐ข๐ฌ๐ญ๐ž๐ซ: neurogenetics.ae

๐ŸŒŸ We are honored to be guided by an exceptional ๐’๐œ๐ข๐ž๐ง๐ญ๐ข๐Ÿ๐ข๐œ ๐‚๐จ๐ฆ๐ฆ๐ข๐ญ๐ญ๐ž๐ž whose expertise and visionary leadership are shapin...
25/09/2025

๐ŸŒŸ We are honored to be guided by an exceptional ๐’๐œ๐ข๐ž๐ง๐ญ๐ข๐Ÿ๐ข๐œ ๐‚๐จ๐ฆ๐ฆ๐ข๐ญ๐ญ๐ž๐ž whose expertise and visionary leadership are shaping the success of the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐Œ๐ž๐ญ๐š๐›๐จ๐ฅ๐ข๐ฌ๐ฆ ๐ข๐ง ๐‡๐ž๐š๐ฅ๐ญ๐ก ๐š๐ง๐ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž 2025

Congress President: Prof. Mahir Al Hilali

Scientific Committee:
- Prof. Dr. Ayman El-Hattab
- Prof. Dr Brahim Tabarki Melaiki
- Prof. Hassan El-Tamimi
- Prof. M. Azzam Kayasseh
- Dr. Najem Al-Falahe
- Prof. RAMZI ABOU AYACHE
- Prof. Safwan Taha
- Prof. Prof Salah Abusnana

๐Ÿ–‡๏ธ ๐…๐จ๐ซ ๐ฆ๐จ๐ซ๐ž ๐ข๐ง๐Ÿ๐จ๐ซ๐ฆ๐š๐ญ๐ข๐จ๐ง ๐š๐ง๐ ๐ญ๐จ ๐ซ๐ž๐ ๐ข๐ฌ๐ญ๐ž๐ซ: metabolism.ae

hashtag

Address

Rotana Beach
Abu Dhabi

Telephone

+971585885540

Website

https://menararediseases.org/

Alerts

Be the first to know and let us send you an email when MENA Congress for Rare Diseases posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to MENA Congress for Rare Diseases:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category