MENA Congress for Rare Diseases

MENA Congress for Rare Diseases MENA Congress for Rare Diseases was established to serve and support people with rare diseases. Join us in this mission!

We are an organization dedicated to improving the lives of people living with rare diseases in the MENA (Middle East and North Africa) region. Our mission is three-fold:

Educate:
We raise awareness among the public and healthcare professionals about rare diseases, to facilitate earlier diagnoses and better care for patients. Connect:
We bring together patients, their families, and affected communities, to create a network of mutual support. Support:
We provide practical and emotional support to patients and their loved ones, helping them navigate the healthcare system and access treatments. Together, we work to ensure that people living with rare diseases in our region can thrive and receive the best possible care.

๐ŸŒŸ ๐„๐š๐ซ๐ฅ๐ฒ ๐๐ข๐ซ๐ ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ซ๐š๐ญ๐ข๐จ๐ง ๐„๐ง๐๐ฌ ๐’๐จ๐จ๐ง!Donโ€™t miss your chance to join the ๐Ÿ“๐ญ๐ก ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”Enjoy an ...
18/12/2025

๐ŸŒŸ ๐„๐š๐ซ๐ฅ๐ฒ ๐๐ข๐ซ๐ ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ซ๐š๐ญ๐ข๐จ๐ง ๐„๐ง๐๐ฌ ๐’๐จ๐จ๐ง!
Donโ€™t miss your chance to join the ๐Ÿ“๐ญ๐ก ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”
Enjoy an ๐ž๐ฑ๐œ๐ฅ๐ฎ๐ฌ๐ข๐ฏ๐ž 50% ๐๐ข๐ฌ๐œ๐จ๐ฎ๐ง๐ญ on your registration fees โ€” ๐š๐ฏ๐š๐ข๐ฅ๐š๐›๐ฅ๐ž ๐ฎ๐ง๐ญ๐ข๐ฅ ๐Ÿ‘๐Ÿ ๐ƒ๐ž๐œ๐ž๐ฆ๐›๐ž๐ซ ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ“!
๐Ÿ”— Register now at: menarare.com/register

๐ŸŒŸ We are honored to be guided by an exceptional ๐’๐œ๐ข๐ž๐ง๐ญ๐ข๐Ÿ๐ข๐œ ๐‚๐จ๐ฆ๐ฆ๐ข๐ญ๐ญ๐ž๐ž whose expertise and visionary leadership are shapin...
12/12/2025

๐ŸŒŸ We are honored to be guided by an exceptional ๐’๐œ๐ข๐ž๐ง๐ญ๐ข๐Ÿ๐ข๐œ ๐‚๐จ๐ฆ๐ฆ๐ข๐ญ๐ญ๐ž๐ž whose expertise and visionary leadership are shaping the success of the ๐Ÿ“๐ญ๐ก ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”

๐Ÿ”— ๐…๐จ๐ซ ๐ฆ๐จ๐ซ๐ž ๐ข๐ง๐Ÿ๐จ๐ซ๐ฆ๐š๐ญ๐ข๐จ๐ง ๐š๐ง๐ ๐ญ๐จ ๐ซ๐ž๐ ๐ข๐ฌ๐ญ๐ž๐ซ: menarare.com

๐Ÿ“ข Submit Your Abstract!Gain the opportunity to win valuable prizes and present your research to a diverse audience and r...
04/12/2025

๐Ÿ“ข Submit Your Abstract!

Gain the opportunity to win valuable prizes and present your research to a diverse audience and researchers. Join us at the 5th MENA Congress for Rare Diseases 2026 in Abu Dhabi, 09โ€“11 April 2026

๐Ÿ“… Deadline: 31 January 2026
Showcase your research to leading experts in the field

โœ… Submit now: menarare.com

Can Art and Awareness Transform Life with Epidermolysis Bullosa?In the last week of October 2025, we had a discussion wi...
17/11/2025

Can Art and Awareness Transform Life with Epidermolysis Bullosa?

In the last week of October 2025, we had a discussion with Ms. Hanaa El Sadat โ€” Founder and Chairperson of Yasmin El Samra Foundation (DEBRA Egypt), an organization dedicated since 2014 to raising awareness and supporting people living with Epidermolysis Bullosa (EB) in Egypt and the Arab world.

In this heartfelt conversation, Hanaa shared her journey with her daughter Yasmin, who turned her pain into color and creativity. She spoke about the daily challenges of EB patients, the vital role of families, the importance of training healthcare providers, and how art can heal both body and spirit.

As Hanaa says:

โ€œMy message is that every person with EB deserves to live a life of discovery and hope, in a safe and caring environment.โ€

Read the full interview here: menararediseases.org/news

๐ŸŒŸ ๐„๐š๐ซ๐ฅ๐ฒ ๐๐ข๐ซ๐ ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ซ๐š๐ญ๐ข๐จ๐ง ๐๐จ๐ฐ ๐Ž๐ฉ๐ž๐ง!Donโ€™t miss your chance to join the 5๐ญ๐ก ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2026 in Abu Dh...
15/11/2025

๐ŸŒŸ ๐„๐š๐ซ๐ฅ๐ฒ ๐๐ข๐ซ๐ ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ซ๐š๐ญ๐ข๐จ๐ง ๐๐จ๐ฐ ๐Ž๐ฉ๐ž๐ง!
Donโ€™t miss your chance to join the 5๐ญ๐ก ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2026 in Abu Dhabi, 09โ€“11 April 2026.
Enjoy an exclusive early bird discount on your registration fees โ€” available until 31 December 2025!
๐Ÿ”— Register now at: https://www.menarare.com/register

09/10/2025
09/10/2025

๐Ÿคฒ The parents of of Adman explain how their family experienced the journey for his son to receive the diagnosis Duchenne.

This initiative is made in cooperation with
MENA Congress for Rare Diseases and Hala Tannira

โณ Only 2 weeks left until the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐Œ๐ž๐ญ๐š๐›๐จ๐ฅ๐ข๐ฌ๐ฆ ๐ข๐ง ๐‡๐ž๐š๐ฅ๐ญ๐ก ๐š๐ง๐ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž, ๐ƒ๐ฎ๐›๐š๐ข, 17-18 ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ 2025๐Ÿฅผ Learn f...
04/10/2025

โณ Only 2 weeks left until the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐Œ๐ž๐ญ๐š๐›๐จ๐ฅ๐ข๐ฌ๐ฆ ๐ข๐ง ๐‡๐ž๐š๐ฅ๐ญ๐ก ๐š๐ง๐ ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž, ๐ƒ๐ฎ๐›๐š๐ข, 17-18 ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ 2025

๐Ÿฅผ Learn from top experts
๐Ÿค Network with healthcare leaders
๐Ÿš€ Stay ahead with the latest research and innovations

โœจ We are waiting for you there!

๐Ÿ”— Register now: metabolism.ae/registration

โณ Only 2 weeks left until the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐๐ž๐ฎ๐ซ๐จ๐ ๐ž๐ง๐ž๐ญ๐ข๐œ ๐ƒ๐ข๐ฌ๐จ๐ซ๐๐ž๐ซ๐ฌ, ๐ƒ๐ฎ๐›๐š๐ข, 17-18 ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ 2025๐Ÿฅผ Learn from top ex...
04/10/2025

โณ Only 2 weeks left until the 2๐ง๐ ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐๐ž๐ฎ๐ซ๐จ๐ ๐ž๐ง๐ž๐ญ๐ข๐œ ๐ƒ๐ข๐ฌ๐จ๐ซ๐๐ž๐ซ๐ฌ, ๐ƒ๐ฎ๐›๐š๐ข, 17-18 ๐Ž๐œ๐ญ๐จ๐›๐ž๐ซ 2025

๐Ÿฅผ Learn from top experts
๐Ÿค Network with healthcare leaders
๐Ÿš€ Stay ahead with the latest research and innovations

โœจ We are waiting for you there!

๐Ÿ”— ๐‘๐ž๐ ๐ข๐ฌ๐ญ๐ž๐ซ ๐ง๐จ๐ฐ: neurogenetics.ae/registration

ู‡ุฐุง ุงู„ุดู‡ุฑุŒ ูŠุณุฑู†ุง ุฃู† ู†ู‚ุฏู… ู„ูƒู… ู„ู‚ุงุก ู…ุน ุงู„ุฏูƒุชูˆุฑุฉ ูˆู„ุงุก ุฑุฌูŠุนุฉุŒ ุทุจูŠุจุฉ ุทูˆุงุฑุฆุŒ ู…ุฏุฑุจุฉ ุดุฎุตูŠุฉ ู…ุนุชู…ุฏุฉุŒ ูˆุฃู… ู„ุทูู„ ู†ุงุฏุฑ.ููŠ ู‡ุฐุง ุงู„ู„ู‚ุงุกุŒ ...
30/09/2025

ู‡ุฐุง ุงู„ุดู‡ุฑุŒ ูŠุณุฑู†ุง ุฃู† ู†ู‚ุฏู… ู„ูƒู… ู„ู‚ุงุก ู…ุน ุงู„ุฏูƒุชูˆุฑุฉ ูˆู„ุงุก ุฑุฌูŠุนุฉุŒ ุทุจูŠุจุฉ ุทูˆุงุฑุฆุŒ ู…ุฏุฑุจุฉ ุดุฎุตูŠุฉ ู…ุนุชู…ุฏุฉุŒ ูˆุฃู… ู„ุทูู„ ู†ุงุฏุฑ.

ููŠ ู‡ุฐุง ุงู„ู„ู‚ุงุกุŒ ุชุดุงุฑูƒ ุฏ. ูˆู„ุงุก ุชุฌุฑุจุชู‡ุง ุญูˆู„ ุงู„ุชุญุฏูŠุงุช ุงู„ุชูŠ ุชูˆุงุฌู‡ู‡ุง ุงู„ุนุงุฆู„ุงุชุŒ ูˆุฃู‡ู…ูŠุฉ ุงู„ุงุฏู…ุงุฌ ุงู„ู…ุฌุชู…ุนูŠุŒ ูˆูƒูŠู ูŠู…ูƒู† ู„ู„ูˆุงู„ุฏูŠู† ุงู„ุงุนุชู†ุงุก ุจุฃู†ูุณู‡ู… ุฃุซู†ุงุก ุฏุนู… ุฃุทูุงู„ู‡ู….

ุชุตูุญูˆุง ุงู„ุดุฑุงุฆุญ ู„ู‚ุฑุงุกุฉ ุฃุจุฑุฒ ู„ุญุธุงุช ุญุฏูŠุซู†ุงุŒ ูˆุฒูˆุฑูˆุง ู…ูˆู‚ุนู†ุง ุงู„ุฅู„ูƒุชุฑูˆู†ูŠ ู„ู„ุงุทู„ุงุน ุนู„ู‰ ุงู„ู…ู‚ุงุจู„ุฉ ุงู„ูƒุงู…ู„ุฉ.

ุงู‚ุฑุฃูˆุง ุงู„ู…ู‚ุงุจู„ุฉ ูƒุงู…ู„ุฉ ู‡ู†ุง:
https://menararediseases.org/news/%D8%A7%D9%84%D9%84%D9%82%D8%A7%D8%A1%20%D8%A7%D9%84%D8%B4%D9%87%D8%B1%D9%8A%20%D8%A7%D9%84%D8%A3%D9%88%D9%84:%20%D8%AF.%20%D9%88%D9%84%D8%A7%D8%A1%20%D8%B1%D8%AC%D9%8A%D8%B9

#ุตุญุฉ

Address

Rotana Beach
Abu Dhabi

Telephone

+971585885540

Website

https://menararediseases.org/

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