Pulmonary Hypertension Association Europe

Pulmonary Hypertension Association Europe PHA Europe is the European umbrella organization for pulmonary hypertension. PHA Europe has 40 member associations from 33 European countries.
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It was founded in 2003 and is registered in Vienna, Austria, as an international non-profit organization.

🗓️ March 24 – World Tuberculosis DayOn March 24, 1882, Robert Koch announced the discovery of Mycobacterium tuberculosis...
24/03/2026

🗓️ March 24 – World Tuberculosis Day

On March 24, 1882, Robert Koch announced the discovery of Mycobacterium tuberculosis, a breakthrough that paved the way for the diagnosis and treatment of tuberculosis (TB). 🔬

More than a century later, TB remains a major global health challenge. 🌍 An estimated quarter of the world’s population is infected with latent TB, highlighting that the disease continues to circulate widely and remains deeply embedded in global health inequities.

TB is often described as a disease of poverty and disproportionately affects the most vulnerable populations. This is also relevant to the pulmonary hypertension (PH) community. Approximately 80% of people with PH live in low- and middle-income countries, and the condition most commonly affects individuals under the age of 65. In addition, while the true prevalence of pulmonary hypertension among tuberculosis survivors is not fully known, some echocardiographic studies suggest it may be present in up to 47% of TB survivors who experience dyspnoea after treatment.

For the PH community, TB is therefore a relevant but often underrecognized factor. 🫁 In addition to acute infection, TB can leave lasting effects on the lungs, including fibrosis and bronchiectasis, as well as vascular changes that may contribute to the development of PH in a subset of patients. Reported prevalence varies across studies, but evidence indicates that a proportion of individuals with current or past TB may go on to develop pulmonary hypertension.

Early detection and effective treatment of TB are essential to reduce transmission and mortality, as well as to prevent long-term complications. ⚠️

TB is preventable and curable. 💊 Strengthening access to timely diagnosis, treatment, and follow-up remains key to reducing its global burden and the risk of associated complications.

Source: https://bit.ly/4buxIsC

  from Belgium 🇧🇪 🙌PH Belgium: a new awareness initiative showing how creativity and community can help people better un...
20/03/2026

from Belgium 🇧🇪 🙌

PH Belgium: a new awareness initiative showing how creativity and community can help people better understand pulmonary hypertension (PH), a rare and serious lung condition. 💙

At Playmobil aan Zee, the team behind connecttosmile, together with dedicated volunteers, turned a joyful community event into meaningful support for people affected by PH.

A somewhat different awareness event, but equally original and sincere, proving that impactful advocacy can take many creative forms.

Through the sale of Playmobil figures, the association raised funds for their non-profit work, while also creating something just as valuable: connection. Visitors didn’t just stop by to buy, they stayed to talk, learn, and engage. New friendships were formed, awareness was raised, and their mission reached even more people.

At PHAEurope, we are proud to share and celebrate initiatives like this. Together, we keep building, step by step, person by person, toward better awareness, support, and quality of life for the PH community. 💙

➡Original article: https://www.facebook.com/share/p/18Jn8CqfP7/

PH Belgium - Pulmonale Hypertensie vzw 👏

As one of the patrons of the conference, PHAEurope proudly invites you to join the International 𝗖𝗧𝗘𝗣𝗛 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝟮𝟬𝟮𝟲 𝗶...
18/03/2026

As one of the patrons of the conference, PHAEurope proudly invites you to join the International 𝗖𝗧𝗘𝗣𝗛 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝟮𝟬𝟮𝟲 𝗶𝗻 𝗪𝗮𝗿𝘀𝗮𝘄 (11–13 June) 🌍

Organised by the International CTEPH Association, this leading global meeting will bring together experts to share the latest advances in CTEPH, from diagnosis to innovative treatments and evolving care approaches, including progress in pulmonary endarterectomy, balloon pulmonary angioplasty, and medical therapies 🔬

This year’s edition reflects stronger international collaboration and a broader scientific perspective than ever before 🤝 The Polish Cardiac Society will endorse ICC 2026, while experts from the ERN-LUNG Pulmonary Hypertension Networks in Prague and Warsaw will actively contribute to the Scientific Committee and programme development

The involvement of patient associations is also stronger than ever, ensuring that the patient voice remains central to discussions and future advancements in CTEPH care.

Special attention will also be given to CTEPD (Chronic Thromboembolic Pulmonary Disease), an increasingly recognised clinical entity representing the complex “grey zone” between pulmonary embolism and pulmonary hypertension, which continues to challenge clinicians and researchers.

📍 Hosted at the Sheraton Grand Warsaw, ICC 2026 offers a unique opportunity to connect, exchange knowledge, and help shape the future of pulmonary vascular medicine

Join this important conference in Warsaw and be part of shaping the future of pulmonary vascular medicine

➡️Find out more and register: https://cteph2026.org/

goodPHnews | Slovenia 🇸🇮 👏We are delighted to share inspiring news from our member association, the Slovenian Pulmonary ...
17/03/2026

goodPHnews | Slovenia 🇸🇮 👏

We are delighted to share inspiring news from our member association, the Slovenian Pulmonary Hypertension Association (Društvo za pljučno hipertenzijo Slovenije), with the launch of their new podcast “PH: Stories and Knowledge” 🎙️

This valuable initiative is designed to support patients, families, and the wider public by combining expert insights with real-life experiences - helping to better understand pulmonary hypertension and improve quality of life.

✨ The first episode, “Diagnosis: Pulmonary Hypertension – Understanding the Disease,” features Assoc. Prof. Dr. Barbara Salobir, a leading pulmonologist from UKC Ljubljana and one of the pioneers in developing treatment programmes for rare forms of PH in Slovenia. Dr. Barbara Salobir, MD, was one of the first to initiate the creation of the Slovenian association.

The episode explores:
🔹 What pulmonary hypertension is
🔹 Symptoms and the importance of early recognition
🔹 The evolution of PH care and treatment in Slovenia
🔹 Key medical breakthroughs
🔹 The origins of the Slovenian PH association and the importance of community support

💜 Through both expert knowledge and a powerful 25-year professional journey of Dr. Salobit, this episode brings insight, awareness, and hope to the PH community.

👏 Congratulations to our Slovenian members on this fantastic initiative - an important step in raising awareness, empowering patients, and strengthening the PH community.

🎧 The podcast is available on YouTube, Spotify, and Apple Podcasts.

✅️ Spotify: https://open.spotify.com/show/3MZs6q3XVn2CWoOfJSepGo...
✅️ Apple Podcasts: https://podcasts.apple.com/.../ph-zgodbe-in.../id1880775914
✅️ Pocket Casts: https://pca.st/z984yjuh
✅️ YouTube: https://www.youtube.com/

Društvo za pljučno hipertenzijo Slovenije 👏
Original article: https://www.facebook.com/PljucnaHipertenzija

The Winter Edition of Mariposa Journal is here! 📖2025 has been a year filled with remarkable milestones for the PH commu...
16/03/2026

The Winter Edition of Mariposa Journal is here! 📖

2025 has been a year filled with remarkable milestones for the PH community. This winter edition of Mariposa reflects on a year of strong advocacy, collaboration, and continued efforts to ensure that the voices of people living with pulmonary hypertension (PH) are heard wherever decisions are made.

Inside this issue:
🔹 Highlights from the PHAEUROPE’s Annual PH European Conference (APHEC) in Castelldefels, bringing together patient advocates, experts, and partners for learning, dialogue, and collaboration
🔹 Activities and initiatives of European and global PH patient associations
🔹Key insights from major European and international PH conferences and policy forums where PHAEUROPE represented the voice of people living with pulmonary hypertension
🔹 A look back at World Pulmonary Hypertension Day (WPHD) and PH Awareness Month campaigns
🔹 Updates on PHAEUROPE’s growing social media and digital engagement
🔹 Reflections on partnerships and collaborations strengthening the global PH community
🔹 Much more

Join us in celebrating the dedication, progress, and collective efforts that continue to move the PH community forward.

📥 Read the Winter Edition here:
https://www.phaeurope.org/mariposa-journal/mariposa-journal-2025-winter-n-35/

Today marks World Sleep Day. 🌙💤This year’s theme, “Sleep Well, Live Better,” highlights the essential role healthy sleep...
13/03/2026

Today marks World Sleep Day. 🌙💤

This year’s theme, “Sleep Well, Live Better,” highlights the essential role healthy sleep plays in overall wellbeing.

For people living with Pulmonary Hypertension (PH), sleep can be particularly challenging. The condition often brings debilitating symptoms such as fatigue, breathlessness, and discomfort that disrupt normal sleep patterns, creating a vicious cycle of exhaustion and sleep deprivation.

At the same time, sleep-related breathing disorders, especially Obstructive Sleep Apnea (OSA), are a recognized cause of PH. OSA is associated with Group 3 PH, which develops due to chronic low oxygen levels during sleep. Repeated pauses in breathing reduce oxygen levels in the blood, leading to constriction of the pulmonary arteries, increased pressure in the lungs, and over time strain on the right side of the heart. ❤️‍🫁

This World Sleep Day, we at PHAEUROPE advocate for early diagnosis and treatment of sleep apnea and for prioritizing healthy sleep, especially for people living with chronic conditions where sleep’s restorative effects are crucial.

💙 Better sleep supports better health, and improved quality of life.


  from Spain 👏🇪🇸Our member organization, Fundación Contra la Hipertensión Pulmonar, recently took part in the 10th Resea...
12/03/2026

from Spain 👏🇪🇸

Our member organization, Fundación Contra la Hipertensión Pulmonar, recently took part in the 10th Research Meeting on Pulmonary Hypertension (EMPATHY) - an important gathering bringing together researchers, physicians, and healthcare professionals committed to advancing knowledge about pulmonary hypertension.

Events like EMPATHY highlight the power of collaboration between scientists, clinicians, and the patient community. Each study, each research project, and each new finding represents another step toward better treatments and a brighter future for people living with PH and PH patients and advocates play a crucial role.

We are encouraged to see the continued commitment of the Spanish PH community to research and innovation.

Together we move forward - patients, researchers, doctors, and society, all united in the goal of improving lives. 💙



➡Original article: https://www.facebook.com/share/p/1B4DK18tE6/

𝗪𝗼𝗿𝗹𝗱 𝗣𝘂𝗹𝗺𝗼𝗻𝗮𝗿𝘆 𝗛𝘆𝗽𝗲𝗿𝘁𝗲𝗻𝘀𝗶𝗼𝗻 𝗗𝗮𝘆 𝟮𝟬𝟮𝟲 is approaching, and this year, we are shining a light on the life-changing impact ...
11/03/2026

𝗪𝗼𝗿𝗹𝗱 𝗣𝘂𝗹𝗺𝗼𝗻𝗮𝗿𝘆 𝗛𝘆𝗽𝗲𝗿𝘁𝗲𝗻𝘀𝗶𝗼𝗻 𝗗𝗮𝘆 𝟮𝟬𝟮𝟲 is approaching, and this year, we are shining a light on the life-changing impact of clinical trials and research.

🔬 🦋Under the slogan “Hope in Every Trial,” we want to amplify the voices of those who are driving progress and highlight the need for clinical trials across the globe.
🔎 🫁 Have you participated in a clinical trial and want to share your experience? Or are you advocating for more research opportunities in your country?

👉 We want to hear your story.

Every trial makes us stronger.💪 Every clinical trial brings us closer to more effective treatments.✅ Your voice can help dispel misconceptions and inspire others across the globe to take part in the future of medicine and research.

How to get involved:

📩 Email a photo of yourself and your story or statement to: maleen@phaeurope.org

Let’s show the world that there is hope in every trial. Your voice and actions drive progress. 💙💜

🎉 Exciting news, Bel Air Center users!Our premier platform for pulmonary hypertension patients and stakeholders just got...
10/03/2026

🎉 Exciting news, Bel Air Center users!

Our premier platform for pulmonary hypertension patients and stakeholders just got even better.

We’ve moved the platform to our own server - more stable, error-free, and fully ready for you. Switching is easy: just log in through our landing page and create a password (8+ characters).

🔗 Login here: https://events.belaircenter.info/pha/enterevent

💻 New content waiting for you:

🔹Keynote from PVRI Congress Dublin: Professor Paul Hassoun on PH treatment progress & next 20 years

🔹Introduction to the European Pulmonary Hypertension Expert Patient Academy (PHEPA) in partnership with Alliance for Pulmonary Hypertension and ERN LUNG

🔹Insights from the PVRI Global Patient PH Survey, presented by Wendy Gin-Sing & team

📊 Presentations are easy to find in the Recorded Presentation Room - search by keyword, speaker, or topic.

🎉 Welcome to the new and more stable Bel Air Center - more exciting content coming soon!

09/03/2026

💙 Without You, There Would Be No Us – Romania 🇷🇴 💙

To conclude our Without You, There Would Be No Us series, a message from Romania comes - a heartfelt expression of gratitude from patients whose lives depend on dedicated pulmonary hypertension specialists.

Bogdan Burduja, patient and President of the Romanian Pulmonary Hypertension Association, shares his deep appreciation for the doctors who make timely diagnosis, access to the national treatment program, and expert care possible.

He extends special thanks to Prof. Ioan Coman and his team at the C.C. Iliescu Institute of Cardiovascular Diseases, Dr. Tudor Constantinescu and his team at the Marius Nasta Institute of Pneumology, and to the dedicated specialists across Târgu Mureș, Iași, and Timișoara who continue to strengthen PH care nationwide.

From Iași, 72-year-old patient Sever Iacoban expresses special gratitude to Dr. Dragoș Marcu, whose careful diagnosis, patience, and encouragement transformed fear into hope when it was needed most.

“Without you, not only we as patients would struggle to exist—but the hope and future we are building together would not exist either.” 💙

Thank you to all PH patients who participated in this series and expressed their gratitude to doctors, caregivers, patient associations, and everyone who has provided them with support.

Asociatia Pacientilor Hipertensivi Pulmonari

🌸 Happy International Women’s Day! 🌸Some forms of pulmonary hypertension are more common in women, yet the strength, cou...
08/03/2026

🌸 Happy International Women’s Day! 🌸

Some forms of pulmonary hypertension are more common in women, yet the strength, courage, and dedication of women shape the entire PH community. From patients bravely navigating their journeys, to advocates raising awareness, to caregivers offering unwavering support, and researchers and doctors driving breakthroughs, women make a difference for every patient, regardless of age, s*x, or background.

Women with the values we reaffirm each International Women’s Day, courage, compassion, determination, and leadership, have built a stronger, more inclusive PH community for all. They remind us that empowering and supporting one another means empowering and supporting the entire community. Your dedication turns challenges into hope, your expertise transforms care, and your advocacy ensures no one faces this disease alone.

PHA Europe’s board, which until now was comprised exclusively of women PH patients and advocates, now proudly includes a male member, but it continues to be guided and inspired by the vision, dedication, and leadership of the women who shaped its foundation and drive the future of care, research, and community support.

💜 To every woman in the PH community, thank you for your courage, compassion, and relentless commitment. Together, we celebrate you today and every day. Happy International Women’s Day! 💜

➡Find out more about our initiative: www.phaeurope.org

Ninth and tenth episodes of the PVRI’s 11-part empowerment series to support people living with pulmonary hypertension (...
06/03/2026

Ninth and tenth episodes of the PVRI’s 11-part empowerment series to support people living with pulmonary hypertension (PH), their families, and carers 💪📣

🔎 Theme 9: Become a Patient Expert & Advocate – presented by Jane Sernoskie
This episode explores how lived experience can help shape real change beyond one’s personal journey. Discover opportunities to join advisory boards or steering groups, advise pharmaceutical companies, speak at conferences, and collaborate with researchers, regulators, and healthcare teams. Becoming a patient expert takes time — but when the moment feels right, lived experience offers a perspective no professional training can replace.

🔎 Theme 10: Resources & Support Networks – presented by Dora Erdelyi
This episode highlights where patients and families can find trusted information and meaningful connection. Learn about patient organisations providing guidance and advocacy, awareness initiatives such as World PH Day, trusted platforms including PHAEurope, PHA US, AfPH, and PVRI, and educational tools like books, webinars, and courses. Strong networks offer more than information — they provide reassurance, shared understanding, and a collective voice for the future of PH care.

You don’t have to face pulmonary hypertension alone - informed, connected communities create strength at every stage of the journey.

➡ Explore the series and be empowered: https://pvrinstitute.org/pulmonary-hypertension/how-empower-yourself-others

💜 Thank you, PVRI, for continuing to advance patient engagement and empowerment across the global PH community.

Pulmonary Vascular Research Institute (PVRI)

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