Pulmonary Hypertension Association Europe

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Pulmonary Hypertension Association Europe

PHA Europe is the European umbrella organization for pulmonary hypertension. PHA Europe has 40 member associations from 33 European countries.

It was founded in 2003 and is registered in Vienna, Austria, as an international non-profit organization.

30/12/2025

💙 A Story of Mission, Miracles & Voice 💙

During Christmas and as we approached the New Year, December Tales of the Miracle by Terra Cultura shared inspiring real-life stories—including Natalia Maeva, PHAEurope board member and pulmonary hypertension advocate.

Natalia’s life was saved by a lung transplant, a miracle she now carries forward by fighting for access to transplantation in Bulgaria and for all PH patients around the world. Natalia explains that her name comes from Latin and means “born with a mission.” For a long time, she wondered what that mission might be. Today, she knows: to be a voice for those who can’t speak, to open doors long closed, and to remind us all that hope and resilience matter.

“Going through a lung transplant is an incredible experience. What I received as a gift from fate must be passed on to others who need it,” Natalia says.

Today, she breathes. And as long as she breathes, she fights - for life, for patients, for miracles. 💙 Thank you, Natalia, for all that you do, and for reminding us to believe in miracles. 💙

➡Read her full story: https://bit.ly/3YhU60P

26/12/2025

from Serbia 🇷🇸💙

December brought encouraging moments for the PH community in Serbia, highlighting both patient empowerment and medical progress.

On 13 December 2025, an information day for PH patients was held in Belgrade, bringing together patients and healthcare professionals in an open, supportive setting. The meeting enabled valuable exchange of information, discussion of next steps for the patient association, and continued joint work on a petition to improve access to PH treatments—another important step in strengthening patient advocacy.

In parallel, members of the community attended the inspiring MSD event “Discoveries Forever”, dedicated to medical innovations that change lives. Prof. Dr Arsen Ristić reflected on how far pulmonary hypertension care has come, highlighting major advances in diagnostics and treatment, and the growing impact of innovative therapies. The message was clear: sustained scientific progress is translating into better outcomes and quality of life for patients.

These moments together remind us that collaboration, knowledge-sharing, and innovation are driving real hope for people living with PH.

Organizacija Plućna hipertenzija Srbija - PH Serbia

24/12/2025

Without You, There Would Be No Us 💙

Ayala Rozental, PH patient – Israel

In life, we sometimes meet heroes who change everything.
I’m fortunate to have more than one.

Dr. Rok from HaEmek Hospital was the one who looked deeper and didn’t give up until he discovered I had scleroderma and pulmonary hypertension. Because of him, I began to understand what I was facing—and how to fight it.

Professor Alexandra Balbir from Rambam Hospital walks this journey with me with extraordinary wisdom and compassion.

And then there is Professor Adir Yochai, my lung specialist—my miracle worker. Because of him, I quite literally got my breath back.

Finally, Aryeh. Even while walking the hardest path alongside his wife’s illness, he never stops giving—to other patients, to this community, to all of us. That kind of strength and generosity never goes unnoticed.

Without you, there would be no us.

Pulmonary Hypertension Israel העמותה הישראלית ליתר לחץ דם ריאתי

23/12/2025

As we approach the final days of 2025, we look back on a year full of experiences and cherished memories that guide us with optimism, strength and positivity into the year ahead.✨🎄🌟

As always, PHAEurope would like to thank all our member associations, partners, sponsors, friends, and PH patients worldwide. We are deeply grateful for your support, collaboration, and trust in our community and PHamily. Above all, we are encouraged and motivated by the ever-growing strength and hope of our PH community.

May this holiday season bring you peace, joy, and cherished moments with your loved ones, and may the New Year 2026 be filled with health, success, and new opportunities as we continue to advance together in the fight against pulmonary hypertension. 🎉

Thank you for being part of our story and for making a difference with us. 🙏

United, PH patients are not powerless.💪
PHAEurope Team

22/12/2025

from Austria 🇦🇹👏

Science Meets Fun

PH Austria came up with something special for our young members. The target group was individuals between 17 and 30 years of age, who were welcome to attend with a companion.

We invited Associate Professor Dr. Christina Binder from the Cardiology Department of Vienna General Hospital (AKH Wien) to give a lecture on the topic “Understanding Echocardiography.” This was followed by an open Q&A session where all remaining questions could be addressed. The lecture was so well received that plans for another meeting next year are already underway.👈

During the subsequent lunch, participants had the opportunity to get to know one another better.

The event took place at Hotel Wimberger, a venue already well acquainted with the needs of our special guests.

🌟Afterwards, it was time for fun: we deliberately chose the date to coincide with the Comic Con Vienna that weekend. Equipped with VIP tickets, our young participants were able to experience stars such as Jamie Campbell Bower and Elijah Wood up close—and, of course, take plenty of photos.

We would like to sincerely thank MSD for their support, which gave our young members valuable insights into their hearts and an afternoon during which they could, for a while, forget about their condition.

Lungenhochdruck Austria

19/12/2025

𝗡𝗲𝘄 𝗰𝗹𝗶𝗻𝗶𝗰𝗮𝗹 𝘁𝗿𝗶𝗮𝗹 𝗺𝗶𝗹𝗲𝘀𝘁𝗼𝗻𝗲 𝗶𝗻 𝗣𝗔𝗛 💙🔎

The FDA has cleared Cereno Scientific to initiate a Phase IIb clinical trial of CS1 in pulmonary arterial hypertension (PAH). The FDA's decision enables Cereno to advance toward first patient in (FPI) in Q2 2026, with top-line data anticipated around Q4 2028.

ℹ️CS1 is a once-daily oral therapy and a histone deacetylase inhibitor (HDACi) that works through epigenetic modulation, targeting key disease-driving mechanisms in PAH such as vascular remodeling, fibrosis, and inflammation — aiming to modify the disease itself, not just relieve symptoms.

The global Phase IIb study will enroll around 126 people with PAH who are stable on current standard therapies, ensuring that all participants receive active treatment at some point during the trial.

CS1 has also been granted Orphan Drug Designation and Fast Track designation in the U.S., highlighting its potential to address a serious condition with high unmet medical need.

“Our goal with CS1 is to address the underlying mechanisms that drive PAH, not simply manage symptoms,” said Rahul Agrawal, CMO and Head of R&D at Cereno Scientific.

➡Read more: https://bit.ly/48ZxKpQ

18/12/2025

PH Patient Engagement & Empowerment Series - Introduction by Hall Skaara💜

As previously announced, Hall Skaara, PHA Europe’s Project Manager, co-leads the IDDI Patient Engagement and Empowerment Workstream and contributed significantly to developing the PH Patient Engagement and Empowerment Series launched at PVRI.

🔎Hall recorded the introductory video to the 11-part series, explaining the importance of patient engagement and empowerment. Empowerment means gaining the knowledge, skills, and confidence to actively shape your healthcare journey, improve your quality of life, and, when ready, support others.

In the introduction, Hall explains that through the resources prepared for this series, patients will be able to make more informed decisions and feel more confident in their health journey. The 11-part series focuses on key topics for PH patients. Alongside the videos, an easy-to-read leaflet on empowerment has been developed, as well as leaflets for each topic featured in the series, providing practical advice and guidance.

With these resources, patients are encouraged to take an active role in their care, connect with others, and feel supported.

Stay tuned as we share more on the series.

➡️ Explore the series here: https://pvrinstitute.org/pulmonary-hypertension/how-empower-yourself-others

Pulmonary Vascular Research Institute (PVRI)

17/12/2025

from Austria 🇦🇹👏

Recognition – 25 Years of PH Austria – Pulmonary Hypertension Initiative🏅

On November 26, the Umbrella Association of Lower Austria Self-Help Groups (Dachverband NÖ Selbsthilfe), with financial support from the Office of the Lower Austrian Provincial Government and the Austrian Health Insurance Fund (Österreichische Gesundheitskasse), invited guests to the Lower Austria Self-Help State Conference held in the Assembly Hall of the Lower Austrian Provincial Government building in St. Pölten.

🎤Representatives of public life, including:

• Robert Leitner, Chair of the ÖGK Lower Austria Regional Committee
• Elisabeth Bräutigam, Board Member of the Lower Austria Health Agency
• Provincial Councillor Martin Antauer, also Chair of NÖGUS
• Provincial Councillor Anton Kasser

honored the chairwomen and chairmen of the self-help organizations for their many years of voluntary service. They emphasized that, especially in challenging times, the work of self-help organizations is of invaluable importance.

The program was rounded off by the lecture “Courage to Aim High” by former ski jumper Thomas Morgenstern. In five key points, he illustrated how to face change in life actively and courageously:

1. The courage to be the pilot of your own life
2. The courage to embrace enthusiasm
3. The courage to change
4. The courage to deal with pressure and setbacks
5. The courage to make decisions

These are challenges we all know very well.💙💪

Lungenhochdruck Austria

16/12/2025

from Croatia 🇭🇷💙

The 4th National Meeting on Pulmonary Hypertension, organised by the Croatian Thoracic Society, once again highlighted how essential a multidisciplinary approach is for pulmonary hypertension — a complex, progressive, and still often under-recognised condition. The meeting brought together pulmonologists, cardiologists, and rheumatologists, who shared up-to-date knowledge on PH classification, diagnostic options, therapeutic strategies, and the challenges faced in daily clinical practice. Special attention was given to complex forms such as CTD-PH, alongside insights and experiences from leading PH centres across Croatia.

This exchange of expertise across specialties reinforces the importance of collaboration in improving early diagnosis, optimising treatment, and addressing the real-life needs of people living with pulmonary hypertension. The inclusion of patient representation further strengthened the discussions, ensuring that care remains patient-centred and grounded in lived experience.

PHAEurope warmly welcomes the active involvement of the PH patient association “Plava krila” and its president, Zdenka Bradač, and thanks all professionals for their dedication, expertise, and empathy.

PH "Plava krila "Croatia 👏🙌

11/12/2025

from Romania 🇷🇴💙👏
Progress and advocacy for pulmonary hypertension patients.

A recent working-group meeting, held as part of the AER project (Efficient Access to Health System Resources for Patients), focused on analyzing the challenges faced by patients with pulmonary hypertension in Romania, particularly access to diagnosis, treatment, and financing.

Asociatia Pacientilor Hipertensivi Pulmonari, together with COPAC (Coalition of Organizations of Patients with Chronic Disorders) and Point PA&PR, led discussions on ensuring uninterrupted treatment, improving patient monitoring, and including psychological support and transport services in reimbursed healthcare packages. A key priority was the creation of a centralized registry of PH patients, planned for implementation by summer 2026, as well as the establishment of a national center of surgical expertise to provide specialized interventions.

Representatives of CNAS (Casa Națională de Asigurări de Sănătate, the Romanian National Health Insurance House) expressed support for these initiatives, highlighting the importance of a strategic, patient-centered approach to rare diseases like pulmonary arterial hypertension (PAH).

💙 Asociația Pacienților Hipertensivi Pulmonari continues to play a vital role in advocating for equitable access to care and turning systemic challenges into concrete solutions for the PH community in Romania.

10/12/2025

🌟 Without You, There Would Be No Us 💙
Hungary shares a deeply moving story for our campaign — the story of Petra and the extraordinary woman who raised her: Mária.

“I was born prematurely and developed several conditions, including pulmonary hypertension. From the very beginning, I needed oxygen therapy, close monitoring, and continuous medical attention. Throughout my childhood and teenage years, I faced many crises, could not attend school regularly, and completed my studies as a private student.

I would not be here today if it were not for Mária, who raised me with unwavering dedication. She is not my biological mother, yet she became my Mother in every way that truly matters. As a doctor, she always knew what I needed and ensured I received the right care at the right moment.

I am endlessly grateful for her commitment, her strength, and her love. She protected me, supported me, and at the same time made sure I experienced joy, adventure, and the beauty of life. She is my greatest support — my safe place — and I am so lucky to have her.

It’s hard to put into words the gratitude and respect I feel for her, so I would like to share a verse from my favourite poet, Ervin Aranyosi, from The Treasures of the World:

✨ ‘Life itself is our greatest treasure,
and if you live your days with an open heart,
if your soul is warmed by gratitude and love,
you have found the path of miracles.’ ✨

💙 Thank you, Petra, for sharing your story — and thank you, Mária, for showing what love, care, and humanity can mean in the life of someone living with PH.

Tüdőér Egylet PH 🙌

Adresse

Wilhelmstrasse 19
Wien
1120

Telefon

+4314023725

Webseite

http://www.phaeurope.org/

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