The Epilepsy Centre

19/02/2026

💜Purple Up ambassador Nikyah Hutchings is a voice for change 💜

Living with epilepsy since childhood, Nikyah is a powerful advocate for First Nations visibility and inclusion. She’s on a mission to break stigma, raise awareness, and ensure no one faces epilepsy alone.

⏳ March is almost here and it’s time to Purple Up!

Wear purple, decorate your space, or host an event to show your support.

Join Nikyah and register now: https://purpleupfortheepilepsycentre.gofundraise.com.au/

/NT

16/02/2026

Our amazing ambassador Lachy Gillespie from The Wiggles is inviting everyone to join him this March and Purple Up 4 Epilepsy to help raise vital funds and awareness for the 266,000 Australians living with epilepsy.

Get involved your way:
💜 Wear purple
💜 Decorate your space in purple
💜 Host a purple‑themed event or fundraiser
Let’s Celebrate, Decorate and Purple Up together!

For more information or to register, visit:https://purpleupfortheepilepsycentre.gofundraise.com.au/

/NT

05/02/2026

⏰ Early bird tickets ending soon ⏰

Our discounted early bird rates for the EmpowerHer: Epilepsy Forum 2026 end February 14 at 7pm AEST.

✨ Dr Ella Stephens will be addressing the hard questions teens often ask including lifestyle choices, partying, alcohol, relationships, contraception, and how to talk to others about their epilepsy.

Secure your ticket before prices increase
👉 https://events.humanitix.com/empowerher-epilepsy-forum-2026

02/02/2026

Epilim 100 mg sodium valproate crushable tablets are being discontinued in Australia, with withdrawal planned for 28 February 2026. This is a worldwide discontinuation by the manufacturer due to commercial viability, and supply is expected to be exhausted by late February.

Key details regarding this change:

Only the 100mg Crushable Tablet is affected: This discontinuation specifically applies to the 100 mg crushable tablet formulation (AUST R: 15373).

Other Epilim Products Remain Available: Other formulations, including Epilim 200mg and 500mg tablets, syrup, and liquid, are not affected by this change.

No Generic Alternative: At this stage, there is no direct generic equivalent for the 100mg crushable tablet.

Action Required: If you or a family member take this specific medication, you should consult your doctor, neurologist, or pharmacist to discuss suitable alternatives, such as switching to other available forms of sodium valproate, to ensure your treatment continues safely.

Do not stop or change your medication without professional medical advice. For the latest updates, you can check the Therapeutic Goods Administration (TGA) medicine shortage website.

02/02/2026

💜 Join us online for a powerful one-day virtual forum dedicated to supporting and uplifting women living with epilepsy at every stage of life. 💜

Hear from leading medical experts as they explore topics including genetics, cognition, anxiety and mood, contraception, post-partum considerations, and more.

Gain evidence-based information and practical strategies to help you navigate epilepsy with greater confidence and support.

Take advantage of our heavily discounted virtual early-bird rate of $20 ($15 concession), giving you full access to this expert-led virtual experience.

Don’t miss this unique opportunity to connect, learn, and feel supported online, alongside women and experts from across Australia and beyond.

📅 Saturday 7 March 2026
💻 Virtual event (online access)
👉 Purchase tickets: https://events.humanitix.com/empowerher-epilepsy-forum-2026

31/01/2026

Myth: Fundraising has to be big
Fact: Every donation counts and will help support people with epilepsy
Start small. Register today: https://epilepsycentre.org.au/purple_up/

/NT

29/01/2026

In a heart-wrenching post, Australian influencer and Epilepsy Advocate Erin Oudshoorn has revealed the devastating news of her daughter Luella's passing at just 6 years old on the 27th of January.

Lulu was diagnosed with with an extremely rare epilepsy West Syndrome at 11 weeks old.

We send our love and deepest condolences to Erin, Dave and Thomas and her family at this incredibly difficult time.

Heartbreaking Loss: Erin Oudshoorn Shares Tragic News About Little Lulu

In a heart-wrenching post, Australian influencer Erin Oudshoorn has revealed the devastating news of her daughter Lulu's passing at just 6 years old. Erin shared on Instagram, 'With the most painful, shattered heart, I have to tell you that our darling Lulu passed away peacefully in our arms, surrounded by family who loved her so much.' This unimaginable loss has left Erin and her husband, Dave, utterly broken. Lulu was a bright light in their lives, and through her Instagram page 'Little Lulu Love,' Erin documented her daughter's brave fight against a rare form of epilepsy known as West Syndrome. Despite their best efforts, Lulu faced relentless challenges that no child should have to endure. Erin's story is a powerful reminder of the fragility of life and the strength of love. Join us in sending love and support to Erin and her family during this incredibly tough time.

20/01/2026

Epilepsy Forum

7 March 2026 | Sydney & Virtual

Join us for a day dedicated to uplifting and supporting women living with epilepsy at every stage of life.

Date: 7 March 2026
Location: Sydney
Register now: https://events.humanitix.com/empowerher-epilepsy-forum-2026

/NT

19/01/2026

Which type of Purple are you? 💜

Let your purple personality inspire how you Purple Up this March.

1. Royal & Dramatic: Host a bold purple dinner or high-tea fit for royalty
2. Soft & Sweet: Bake, craft or create something kind and meaningful to share
3. Loud & Proud: Dress loud, go purple at work or school, and rally your crew
4. Dark & Mysterious: Candlelight dinners, or purple mood lighting

There’s no wrong answer. Purple shows up in lots of ways. And when it does, it gets people talking.

Comment 1, 2, 3 or 4 below ⬇

13/01/2026

💜 TheEpilepsy Essentials course is designed for carers, teachers, disability workers, and anyone wanting to deepen their understanding of epilepsy.

🎓 Complete online in 3 months to earn your certificate, no prerequisites needed!

🔗 Sign up now: https://epilepsycentre.org.au/access-online-training/

/NT

12/01/2026

Our amazing ambassador Lachy Gillespie from The Wiggles has a special message to share! 💜

He’s inviting everyone to join him this March and Purple Up 4 Epilepsy to help raise vital funds and awareness for the 266,000 Australians living with epilepsy.

Get involved your way:
💜 Wear purple
💜 Decorate your space in purple
💜 Host a purple‑themed event or fundraiser

Let’s Celebrate, Decorate and Purple Up together!

👉 Register here: https://epilepsycentre.org.au/purple_up/

/NT