The Epilepsy Centre

29/01/2026

In a heart-wrenching post, Australian influencer and Epilepsy Advocate Erin Oudshoorn has revealed the devastating news of her daughter Luella's passing at just 6 years old on the 27th of January.

Lulu was diagnosed with with an extremely rare epilepsy West Syndrome at 11 weeks old.

We send our love and deepest condolences to Erin, Dave and Thomas and her family at this incredibly difficult time.

Heartbreaking Loss: Erin Oudshoorn Shares Tragic News About Little Lulu

In a heart-wrenching post, Australian influencer Erin Oudshoorn has revealed the devastating news of her daughter Lulu's passing at just 6 years old. Erin shared on Instagram, 'With the most painful, shattered heart, I have to tell you that our darling Lulu passed away peacefully in our arms, surrounded by family who loved her so much.' This unimaginable loss has left Erin and her husband, Dave, utterly broken. Lulu was a bright light in their lives, and through her Instagram page 'Little Lulu Love,' Erin documented her daughter's brave fight against a rare form of epilepsy known as West Syndrome. Despite their best efforts, Lulu faced relentless challenges that no child should have to endure. Erin's story is a powerful reminder of the fragility of life and the strength of love. Join us in sending love and support to Erin and her family during this incredibly tough time.

20/01/2026

Epilepsy Forum

7 March 2026 | Sydney & Virtual

Join us for a day dedicated to uplifting and supporting women living with epilepsy at every stage of life.

Date: 7 March 2026
Location: Sydney
Register now: https://events.humanitix.com/empowerher-epilepsy-forum-2026

/NT

19/01/2026

Which type of Purple are you? 💜

Let your purple personality inspire how you Purple Up this March.

1. Royal & Dramatic: Host a bold purple dinner or high-tea fit for royalty
2. Soft & Sweet: Bake, craft or create something kind and meaningful to share
3. Loud & Proud: Dress loud, go purple at work or school, and rally your crew
4. Dark & Mysterious: Candlelight dinners, or purple mood lighting

There’s no wrong answer. Purple shows up in lots of ways. And when it does, it gets people talking.

Comment 1, 2, 3 or 4 below ⬇

13/01/2026

💜 TheEpilepsy Essentials course is designed for carers, teachers, disability workers, and anyone wanting to deepen their understanding of epilepsy.

🎓 Complete online in 3 months to earn your certificate, no prerequisites needed!

🔗 Sign up now: https://epilepsycentre.org.au/access-online-training/

/NT

12/01/2026

Our amazing ambassador Lachy Gillespie from The Wiggles has a special message to share! 💜

He’s inviting everyone to join him this March and Purple Up 4 Epilepsy to help raise vital funds and awareness for the 266,000 Australians living with epilepsy.

Get involved your way:
💜 Wear purple
💜 Decorate your space in purple
💜 Host a purple‑themed event or fundraiser

Let’s Celebrate, Decorate and Purple Up together!

👉 Register here: https://epilepsycentre.org.au/purple_up/

/NT

09/01/2026

💜 Purple Up with Nikyah 💜

Living with epilepsy since childhood, Nikyah Hutchings knows how powerful visibility can be, especially in communities where epilepsy is still misunderstood or rarely spoken about.

Through her voice and platform, she’s helping break stigma, start conversations, and remind people living with epilepsy that they are not alone.

This Purple Up, stand with Nikyah. Wear purple. Start a conversation. Show your support in a way that feels right to you.

👉 Register here: https://epilepsycentre.org.au/purple_up/

/NT

07/01/2026

💜 Purple Up with Dr Kaitlyn Parratt 💜

Dr Kaitlyn Parratt is lending her voice to Purple Up this March and she’s inviting you to stand with her.

As a Neurologist and Epileptologist, Vice President of the Epilepsy Society of Australia, Dr Parratt sees firsthand why awareness, understanding and action matter.

Watch, share, and Purple Up alongside Dr Parratt to help break stigma and support the epilepsy community.

👉 Register here: https://epilepsycentre.org.au/purple_up/

/NT

22/12/2025

💜 Meet Nikyah Hutchings – A Voice for Change! 💜

We’re thrilled to welcome Nikyah Hutchings as an ambassador for Purple Up next March!

A trailblazer in Indigenous media, Nikyah champions First Nations visibility and sparks conversations about culture and inclusion nationwide. Living with epilepsy since childhood, she knows the reality of a condition often misunderstood, especially in communities where health resources are scarce.

Her mission? Break stigma. Amplify awareness. Ensure no one faces epilepsy alone.

📅 Purple Up is coming! Wear purple, decorate your space, or host an event to show your support.

👉 Register now for updates: https://epilepsycentre.org.au/purple_up/

/NT

18/12/2025

Three organisations. One mission. 💜 This March, Epilepsy Action Australia, The Epilepsy Centre SA/NT, and Epilepsy WA are partnering for Australia’s biggest Purple Day. Together, we’re making epilepsy visible and raising funds for vital support. Will you join us?

👉 Register your interest and we’ll send you more info in the new year: https://epilepsycentre.org.au/purple_up/

/NT

17/12/2025

Our Office will close on Friday 19 December 2025 and re-open Monday 12th January 2026.

If you need urgent support during this time, please contact Lifeline on 13 11 14 or Beyond Blue on 1300 224 636.

In an EMERGENCY CALL 000.

(For all other appointments including training enquiries, please email enquiries@epilepsycentre.org.au - This email will be checked daily).

We wish you and your family only the safest and happiest Christmas and New Year.