The Epilepsy Centre

04/12/2025

We are so pleased to share that the changes to the PBS criteria of Epidyolex (cannabidiol) for the treatment of seizures associated with Lennox-Gastaut syndrome (LGS) are NOW LIVE.

Summary of the changes from December 1, 2025 :

• Authority Required (STREAMLINED) for LGS - 17678

• Requirement for an electroencephalogram (EEG) changed to “where possible”

• Removed specific EEG features, seizure frequency and type, and the number of adjunctive antiseizure medications

• Neurologists AND Paediatricians are able to prescribe for both initial and continuation treatment.

These changes will ensure equitable, affordable, and timely access to Epidyolex for patients living with LGS.

The form and strength of cannabidiol 100 mg/mL oral liquid, 100 mL is Oral liquid 100 mg per mL, 100 mL and it comes in a pack of 1.

What you will pay NOW for cannabidiol 100 mg/mL oral liquid, 100 mL is determined by your entitlement. The Medicare Card price is $31.6, the Entitlement Card price is $7.7 and the Safety Net price is $0.

Previously priced at $5200 - $83,193 per patient per year depending on patient weight and dosage.

03/12/2025

Infantile Spasms Awareness Week (ISAW) is held annually from December 1-7 to raise awareness about this rare and serious type of seizure. Infantile spasms are considered a medical emergency, and early diagnosis and treatment are crucial to prevent permanent brain damage.

01/12/2025

A little purple inspiration!! We can’t wait to Purple Up with you next March.

💜 Show up, team up and Party Up for Purple Day 💜

Mark you diaries and register your interest here: https://epilepsycentre.org.au/purple_up/

/NT

28/11/2025

Wigs on, Game On, Get ready to Purple Up next March!

Mark you diaries and register your interest here: https://epilepsycentre.org.au/purple_up/

/NT

25/11/2025

We’re excited to share that Lachlan Gillespie, the Purple Wiggle, is one of our proud ambassadors for Purple Up next March!

Join us to wear purple, decorate your space with purple, or host a purple-themed event to raise awareness and support.

Mark your diaries next March to Purple Up!

Register your interest here to receive reminders and all the details: https://epilepsycentre.org.au/purple_up/

/NT

21/11/2025

Australia! Get ready to Purple Up!

Next March, we’re turning South Australia and the Northern Territory purple for epilepsy awareness and we want YOU to join the movement.

Pick a day in March and Purple Up—yourself and your world! Wear purple, decorate your space with purple, or host a purple-themed event to show your support.

Create lasting impact by raising funds throughout March. Rally your friends, family, or colleagues to support life-changing research, education, and epilepsy services.

👉 Register your interest to Purple Up by emailing us at enquiries@epilepsycentre.org.au

/NT

06/11/2025

The Epilepsy Centre "Bosses Day Out" 2025 - More photos to share, fantastic photos with phenomenal people!!

05/11/2025

Thank you to everyone who attended our yearly Corporate sell out Event "Bosses Day Out"!

Sharing some wonderful images of the day with more to come.

01/11/2025

Today is Lennox-Gastaut syndrome International Awareness Day.

What is Lennox-Gastaut syndrome?

Lennox-Gastaut syndrome is a severe and rare form of epilepsy.with an estimated incidence of 0.1 to 0.28 per 100,000 people per year. It accounts for 1-4% of all childhood epilepsy cases and about 1-2% of all epilepsy patients. Seizures begin in early childhood, usually before the age of 4 years.

Children, adolescents, and adults with Lennox-Gastaut syndrome have multiple types of seizures that vary among individuals. Common seizure types include: Tonic seizures (stiffening of the body, upward eye gaze, dilated pupils, and altered breathing patterns), Atypical absences (staring spells), Atonic seizures (brief loss of muscle tone, which could cause abrupt falls), Myoclonic seizures (sudden muscle jerks) and Generalized tonic-clonic seizures (muscle stiffness and rhythmic jerking).

There may be periods of frequent seizures mixed with relatively seizure-free periods. Although not always present at the onset of seizures, most people living with Lennox-Gastaut syndrome experience some degree of impaired intellectual functioning or information processing, along with developmental delays and behavioral disturbances. A particular pattern of brain electric activity can be seen using electroencephalogram (EEG).

Lennox-Gastaut syndrome can be caused by a variety of conditions, including: Brain malformations, Tuberous sclerosis, Perinatal asphyxia, Severe head injury, Central nervous system infection,
Inherited genetic and inherited degenerative or metabolic conditions.

26/10/2025

Wonderful news that our current Government, the first in our 49 years of existence is providing funding for a further 4 years. Specifically for the equivalent of three Full Time Registered Nurses!

Picture with our Health and Wellbeing Minister the Honourable Chris Picton MP (left to right) is CEO Robyn Wakefield and Vice-Chair Letizia Gentile at our yearly Corporate Luncheon Event on Friday the 24th where he made the wonderful announcement.

Thank you sincerely for your absolute genuine care for people living with Epilepsy and for making a true difference.

When it comes to epilepsy care, knowledge really is power.

We’re backing The Epilepsy Centre with another $1 million to keep training hospital staff and paramedics across SA - giving them the skills to save lives and support people when they need it most🧑‍⚕️👨‍⚕️

13/10/2025

💜 FREE Gutters & Downpipes + Supporting The Epilepsy Centre! 💜

This October, Roof Seal® is giving back! Book a full roof restoration or new roof and get free gutters & downpipes while helping raise funds for The Epilepsy Centre.

Don’t wait. Gutters and downpipes are often overlooked until costly damage happens. Lock in your October roofing project today and make a real difference!

👉 Book now: www.roofseal.com.au

/NT

03/10/2025

🚨 New Refresher Course! 🚨

Stay confident and prepared with our 30–45 min Emergency Medication (Midazolam) Refresher.

✅ Adaptive content tailored to your knowledge gaps
✅ Timesaving without compromising on quality

✨ Introductory Offer: $30 OFF applied at checkout! Available until 30 September.

Start today 👉 https://epilepsycentre.org.au/access-online-training/