31/03/2026
Dear we genuinely hope this is an opportunity to listen and learn from what has been an incredibly distressing experience for our family tonight.
Without going into too much detail, when an autistic child presents to hospital with a physical health concern, but communicates in an unpredictable, distressed and overwhelmed way, they still deserve access to healthcare.
When it is known that a child communicates in these ways, and at the first sign of distress the response is to call security and es**rt them out under a “zero tolerance” approach, it raises serious concerns about whether appropriate adjustments are being made for disability, and whether their rights are being upheld.
We absolutely understand the importance of safe working environments and that staff need to feel safe, there is a line, but that wasn’t in question here.
Please understand that there are many reasons why communication does not look calm, clear, or “socially expected”… and it can be confronting if you are viewing it through a lens of judgment not understanding what they might be going though underneath the meltdown.
That should not be the point at which care is withdrawn and zero tolerance is enacted. That’s not fair, it’s so much more nuanced than that. And the impact of being treated that way is so much more deeper than you realise.
Experiences like these raise serious concerns about potential breaches of disability discrimination law, human rights obligations, and access to safe, appropriate healthcare. But above that, it’s not neuro-affirming and it would be great if you had disability liaison officers available so when these things happen we have someone to turn to… but above that, please consider investing in training to help educate those who don’t understand that all “behaviour” is communication.
Ps huge love to all the affirming rch staff 💛
Mary-Anne Thomas MP fyi