ANZDATARegistry

04/11/2025

We’ve launched!

The Australian and New Zealand Organ Replacement Therapies Registry Group (ANZORRG) is proud to unveil our brand new website

Visit us at: www.anzorrg.org.au

This new platform replaces the former ANZDATA website and brings together all our registry work under the ANZORRG banner with a fresh look, improved navigation, and easier access to the data and resources that matter most to our community.

Whether you're a clinician, researcher, living with kidney disease or have an affected family member or friend, we invite you to explore the new site and see how we’re evolving to better support organ donation and transplantation outcomes across Australia and New Zealand.

28/10/2025

📢 Expressions of Interest: Advanced Trainee Research Project Program (ATRPP) 2026
The ANZSN/ANZDATA Advanced Trainee Research Project Program (ATRPP) is the signature research training initiative designed to help Nephrology Advanced Trainees build research and statistical skills. Using data from the ANZDATA Registry, the program supports trainees in designing, analysing, and completing high-quality research projects.

This is a collaborative program delivered in partnership by Australian and New Zealand Society of Nephrology (ANZSN) and Australia and New Zealand Dialysis and Transplant Registry (ANZDATA). It strengthens registry quality assurance activities and aligns with the Australia and New Zealand Society of Nephrology (ANZSN)’s pillars of research, education, and advocacy.
Program Highlights:
✅Trainees will be expected to attend meetings with their fellow trainees enrolled in the program approximately weekly-fortnightly.
✅They will be expected to discuss progress updates regularly with the Epidemiology Fellow and present their project updates at the ANZDATA Research meeting bi-annually.
✅Trainees may additionally have the opportunity to present their work at the ANZSN Annual Scientific Meeting.
While projects must be led by a Trainee, it is desirable Trainees have one or more supervisors for the project locally. Trainees and/or their local supervisors should have a research idea or an area of interest. ANZDATA and the ANZSN-ANZDATA Clinical Epidemiology Fellow can assist in developing and refining a suitable research project that uses data from the ANZDATA Registry in conjunction with the trainee.
Who should apply?
Preference will be given to:
• Trainees earlier in RACP Nephrology Advanced Training (1st or 2nd year Advanced Training) with the aim of completing the research project for submission to fulfil training requirements
• Trainees based at hospitals/institutions without local statistical or research support (See Policy 2.8: Guidance on statistical support for external researchers)
📌 EOI's for 2026 will close:
Friday, March 6th, 2026 at 5:00 pm ACST
For more information contact: Dana Forcey, dana2@anzdata.org.au
For EOI submission email: anzdata@anzdata.org.au

Send a message to learn more

21/10/2025

💡New Research on Kidney Disease and Pregnancy Outcomes

Authors: Sadia Jahan, Christopher Davies, Yu-Tyan Chen, Elizabeth Sullivan, Shilpa Jesudason and Erandi Hewawasam

Researchers used linked data ANZDATA and perinatal datasets from four Australian states , to observe women who started dialysis or received a kidney transplant within 12 months after childbirth.

📖 Read more here:

Pregnancy may unmask or worsen kidney disease, in some cases leading to postnatal kidney failure. Outcomes in these women remain poorly defined.

20/10/2025

📢 New Publication Alert
Title: Frequency of therapy alerts during the first 30 days of automated peritoneal dialysis and its relationship to time on treatment

Authors: Annie Conway, Jarrad Hopkins, Michelle Ovenden, Monique Borlace, David Johnson, Jenny Chen, Kamal Sud, Neil Boudville and Stephen McDonald AM

💡 Could early alerts predict dialysis outcomes?
Early therapy alerts during automated peritoneal dialysis (APD) matter. Using linked data from Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) and Vantive’s Sharesource platform, our research shows that a higher alert burden in the first 30 days is linked to increased risk of hemodialysis transfer within 12 months.

✅ Key takeaway: Addressing alerts early could help improve PD continuation and patient outcomes.

🔗 Read more here:

Introduction Therapy alerts during automated peritoneal dialysis (APD) can cause significant disruptions to patients’ sleep and quality of life and may portend ...

01/10/2025

Team Bean There Run That – the official ANZDATA crew – is proud to support the Red Socks Run this October, raising awareness and funds for kidney health across Australia.

We’re running, walking, and moving to stand with the 1.8 million Australians living with kidney disease. Every step we take helps fund life-changing research, support services, and advocacy through Kidney Health Australia.

Team members: Alexa Dinant, Christopher Davies, Dana H, Georgina Irish, Feruza Kholmurodova, Isabelle Haklar, Lachlan McMichael, Lavern Greenham, Madison Cachagee

💥 Want to help us make a difference?

👉 Support our team or join the movement:

I'm raising money for a cause close to my heart and would love your support.

01/10/2025

19/09/2025

🚨 New Publication Alert! 🚨: The Impact of Donor and Recipient Diabetes on Patient and Graft Survival in Kidney Transplant Recipients
Excited to share a recent publication in Kidney International Reports that explores how diabetes in kidney transplant donors and recipients affects both patient survival and graft longevity.
Authors: Alessandra Orsillo, Feruza Holmuradova, Philip A. Clayton, Steven Chadban, Alison Weightman, Georgina Irish

📊 Using data from the ANZDATA Registry (2003–2022), the study found:
Recipient diabetes is associated with reduced patient and graft survival.
Donor diabetes also negatively impacts graft outcomes, especially when both donor and recipient have diabetes.
These findings underscore the importance of risk stratification and personalized care in transplant decision-making.
🔗 Read the full article: https://lnkd.in/gj3wTYCm

19/09/2025

🌟We’re delighted to celebrate the achievements of 𝐃𝐫. 𝐆𝐞𝐨𝐫𝐠𝐢𝐧𝐚 𝐈𝐫𝐢𝐬𝐡, ANZDATA’s Executive Director of Projects and Analytics, who has recently been awarded her PhD for her thesis “𝐷𝑒𝑐𝑖𝑠𝑖𝑜𝑛 𝑀𝑎𝑘𝑖𝑛𝑔 𝑖𝑛 𝐾𝑖𝑑𝑛𝑒𝑦 𝑇𝑟𝑎𝑛𝑠𝑝𝑙𝑎𝑛𝑡𝑎𝑡𝑖𝑜𝑛.”

Her research presents studies exploring decisions in kidney transplantation, including the creation of tools to assist with decision making and the development of a risk prediction model aimed at forecasting survival and quality of life after a transplant.

Remarkably, five of her thesis chapters have already been published, and during her PhD journey she also authored an additional 14 papers.

🎓A huge congratulations to Georgie on this outstanding accomplishment!🌟 ANZDATARegistry Georgina Laura

17/09/2025

🚨 Publication Alert! 🚨
Sharing our latest work published in Nephrology:
"Variability in Dialysis Access Over Time and Across Centres in Australia and New Zealand"

This study dives into how dialysis access varies across centres and over time, and how both patient and centre-level factors influence these outcomes. Using data from ANZDATA and unit surveys, we found that things like having a home haemodialysis nurse or a “PD-first” policy can make a real difference in ensuring patients start dialysis with definitive access.
Why does this matter? Because better dialysis access planning means lower risks, better outcomes, and more equitable care for people living with kidney failure.
📄 Read the full article here:

Aim The Australian and New Zealand Society of Nephrology (ANZSN) established a quality indicator (QI) program to measure performance and reduce variation of nephrology care. This program relies on r...