ANZDATARegistry

08/12/2025

🖥️ We are Hiring!
If you’re looking to join a highly motivated team where your work creates real impact and the criteria below 👇 reflects your skills and experience, we invite you to connect with us.

Full-Time | 12-Month Contract
About SAHMRI and ANZORRG
The South Australian Health and Medical Research Institute (SAHMRI) is dedicated to innovative research that improves lives. As part of the Australia and New Zealand Organ Replacement Registries Group (ANZORRG) you’ll contribute to advancing critical health data systems.

About the Role
We’re seeking a Lead Software Developer to provide technical leadership and hands-on development for ANZORRG’s registry information systems. You’ll lead a small team, design and deliver new features, and continuously improve existing applications to ensure they remain robust, secure, and user-friendly.

About You
▪️ You’re a technically strong, solutions-focused developer with leadership experience and a passion for delivering quality software.
▪️ Degree in Computer Science, Information Management, or equivalent
▪️ Expertise in Microsoft .NET MVC Framework, C #, and Kendo UI
▪️ Strong communication and stakeholder engagement
▪️ Ability to lead small teams and manage end-to-end delivery
▪️ Understanding of data governance, privacy, and security principles in healthcare environments.
▪️ Proven experience implementing and supporting software solutions

Apply here:

Exciting opportunity to join SAHMRI supporting the ANZORRG Registry! Lead Software Development in this hands-on role and contribute to health research

03/12/2025

🚨 Reminder: SAHMRI Registry Centre Datathon – Registrations Closing Soon! 🚨

Don’t miss your chance to be part of the SAHMRI Registry Centre Datathon, where data enthusiasts and researchers come together to tackle real-world health challenges.

✅ Registration is FREE

✅ Closing Date: 10th January

👉 Register now and secure your spot!

If selected, participants will work together in teams to solve a clinical question through applying data science tools and techniques to analyse large dataset(s).

30/11/2025

Publication Alert!
“Long-term cardiac surgery outcomes in kidney transplant and dialysis patients: A national registries analysis”, is now published in ScienceDirect.

This research provides critical insights into how cardiac surgery outcomes differ between kidney transplant recipients and dialysis patients, using comprehensive data from national registries. The findings have important implications for clinical decision-making and patient care strategies in this high-risk population.

Authors: Dominic Keuskamp, Christopher Davies, Robert Baker, Kevan Polkinghorne, Christopher Reid, Julian Smith, Lavinia Tran, Jenni Williams-Spence, Rory Wolfe, Stephen McDonald AM

📖 Read the full article here: https://www.sciencedirect.com/science/article/pii/S2666273625004279

25/11/2025

We are pleased to welcome Aline Willsmore, our new Biostatistician who has joined the ANZDATA team. Aline joins us from SAHMRI’s Biostatistics Unit in the Women and Kids Theme, where she worked on clinical trials and provided statistical consultancy to medical researchers. Aline holds a Bachelor of Science (Advanced) with Honours in Mathematics and is the final stages of completing her PhD in Statistics.

04/11/2025

We’ve launched!

The Australian and New Zealand Organ Replacement Therapies Registry Group (ANZORRG) is proud to unveil our brand new website

Visit us at: www.anzorrg.org.au

This new platform replaces the former ANZDATA website and brings together all our registry work under the ANZORRG banner with a fresh look, improved navigation, and easier access to the data and resources that matter most to our community.

Whether you're a clinician, researcher, living with kidney disease or have an affected family member or friend, we invite you to explore the new site and see how we’re evolving to better support organ donation and transplantation outcomes across Australia and New Zealand.

28/10/2025

📢 Expressions of Interest: Advanced Trainee Research Project Program (ATRPP) 2026
The ANZSN/ANZDATA Advanced Trainee Research Project Program (ATRPP) is the signature research training initiative designed to help Nephrology Advanced Trainees build research and statistical skills. Using data from the ANZDATA Registry, the program supports trainees in designing, analysing, and completing high-quality research projects.

This is a collaborative program delivered in partnership by Australian and New Zealand Society of Nephrology (ANZSN) and Australia and New Zealand Dialysis and Transplant Registry (ANZDATA). It strengthens registry quality assurance activities and aligns with the Australia and New Zealand Society of Nephrology (ANZSN)’s pillars of research, education, and advocacy.
Program Highlights:
✅Trainees will be expected to attend meetings with their fellow trainees enrolled in the program approximately weekly-fortnightly.
✅They will be expected to discuss progress updates regularly with the Epidemiology Fellow and present their project updates at the ANZDATA Research meeting bi-annually.
✅Trainees may additionally have the opportunity to present their work at the ANZSN Annual Scientific Meeting.
While projects must be led by a Trainee, it is desirable Trainees have one or more supervisors for the project locally. Trainees and/or their local supervisors should have a research idea or an area of interest. ANZDATA and the ANZSN-ANZDATA Clinical Epidemiology Fellow can assist in developing and refining a suitable research project that uses data from the ANZDATA Registry in conjunction with the trainee.
Who should apply?
Preference will be given to:
• Trainees earlier in RACP Nephrology Advanced Training (1st or 2nd year Advanced Training) with the aim of completing the research project for submission to fulfil training requirements
• Trainees based at hospitals/institutions without local statistical or research support (See Policy 2.8: Guidance on statistical support for external researchers)
📌 EOI's for 2026 will close:
Friday, March 6th, 2026 at 5:00 pm ACST
For more information contact: Dana Forcey, dana2@anzdata.org.au
For EOI submission email: anzdata@anzdata.org.au

Send a message to learn more

21/10/2025

💡New Research on Kidney Disease and Pregnancy Outcomes

Authors: Sadia Jahan, Christopher Davies, Yu-Tyan Chen, Elizabeth Sullivan, Shilpa Jesudason and Erandi Hewawasam

Researchers used linked data ANZDATA and perinatal datasets from four Australian states , to observe women who started dialysis or received a kidney transplant within 12 months after childbirth.

📖 Read more here:

Pregnancy may unmask or worsen kidney disease, in some cases leading to postnatal kidney failure. Outcomes in these women remain poorly defined.

20/10/2025

📢 New Publication Alert
Title: Frequency of therapy alerts during the first 30 days of automated peritoneal dialysis and its relationship to time on treatment

Authors: Annie Conway, Jarrad Hopkins, Michelle Ovenden, Monique Borlace, David Johnson, Jenny Chen, Kamal Sud, Neil Boudville and Stephen McDonald AM

💡 Could early alerts predict dialysis outcomes?
Early therapy alerts during automated peritoneal dialysis (APD) matter. Using linked data from Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) and Vantive’s Sharesource platform, our research shows that a higher alert burden in the first 30 days is linked to increased risk of hemodialysis transfer within 12 months.

✅ Key takeaway: Addressing alerts early could help improve PD continuation and patient outcomes.

🔗 Read more here:

Introduction Therapy alerts during automated peritoneal dialysis (APD) can cause significant disruptions to patients’ sleep and quality of life and may portend ...

15/10/2025

Celebrating the Inaugural Indigenous Datathon
On October 11–12, Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) proudly partnered in the first-ever Indigenous Datathon at QUT Brisbane, hosted by the Indigenous Data Network. This was an inspiring event that brought together clinicians, data scientists, policy experts, and Indigenous leaders to explore ethical, impactful uses of health data.
Mentors from across disciplines supported the teams, including Christopher Davies and Dana Forcey from ANZDATA, who brought valuable expertise in clinical registry interpretation and Indigenous data governance.
Guided by the CARE Principles for Indigenous Data Governance, teams worked with de-identified ICU and renal datasets which included a first of its kind linked dataset from ANZICS and ANZDATA which to address real world health challenges and proposed community led solutions.

This event set a new benchmark for collaboration, cultural respect, and innovation in clinical research. We’re excited to continue building on this momentum to support Indigenous health equity and data sovereignty.
📸: Australian Research Data Commons (ARDC) - Marc Grimwade

15/10/2025

2025 Wrap up
Huge congratulations to members of the ANZDATA Parenthood Working Group for their outstanding contributions at this year’s ADIPS/SOMANZ Conference held in Auckland last week!

🏆 Su Jen Chua received the SOMANZ Best Clinical Oral Presentation: Claire McLintock Memorial Award for her impactful presentation using ANZDATA:
“Graft outcomes following pregnancy with a functioning kidney transplant in Australia and New Zealand.”

📊 Sagun Banjade presented a poster based on ANZDATA analysis:
“Pregnancy and neonatal outcomes in women receiving home-based dialysis: An ANZDATA Registry Analysis.”

12/10/2025

Congratulations, Georgie!

We are excited to announce our first finalist for SAHMRI’s 2025 Discovery Circle!

Dr Georgina Irish, Senior Research Fellow with ANZDATARegistry, has been selected for her project looking to increase kidney transplant success by using more precise allocations.

Stay tuned to find out who our other two finalists are!

01/10/2025

Team Bean There Run That – the official ANZDATA crew – is proud to support the Red Socks Run this October, raising awareness and funds for kidney health across Australia.

We’re running, walking, and moving to stand with the 1.8 million Australians living with kidney disease. Every step we take helps fund life-changing research, support services, and advocacy through Kidney Health Australia.

Team members: Alexa Dinant, Christopher Davies, Dana H, Georgina Irish, Feruza Kholmurodova, Isabelle Haklar, Lachlan McMichael, Lavern Greenham, Madison Cachagee

💥 Want to help us make a difference?

👉 Support our team or join the movement:

I'm raising money for a cause close to my heart and would love your support.