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CareSearch Project

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CareSearch Project

Welcome to the CareSearch Project's official page.

24/04/2026

When someone you care about is diagnosed with a terminal condition, understanding what comes next can help. 💭💙 You may have been helping them for some time to manage their disease, but realise that it is progressing and death is now foreseeable.

In this video, Dr Mark Boughey talks about advanced disease and what a prognosis is. Explore Pathway 2 for more information: ▶️ https://www.carerhelp.com.au/Carer-Pathways/Pathway-2-Caring-When-Death-Is-a-Possibility

23/04/2026

Many people provide regular and ongoing care and support to a partner, relative, or friend. 🤝 In this video, Imelda shares her experience of becoming a carer for her husband following an early-onset Alzheimer’s diagnosis.🧠

This video is part of Pathway 1 of the series, created for people providing regular care.

▶️ Watch Imelda and learn about pathways https://www.carerhelp.com.au/Carer-Pathways/Pathway-1-When-Someone-Needs-Care

22/04/2026

🤝 Timely palliative care referrals

💬 Raising the topic of palliative care can be difficult, but early referral helps people with life-limiting illness access the support they need sooner. Referrals can be initiated by health professionals, patients, or family members, starting the conversation with a doctor is a good first step.

Share this with patients, carers, or anyone who may find it helpful. 💙

Learn more 🔗 https://www.caresearch.com.au/Community/Patients-and-Carers/What-is-Palliative-Care/Referring-to-Palliative-Care

21/04/2026

“Students described it as a low-pressure environment where they could practise without worrying about saying the wrong thing or causing emotional distress.” 💬

Dr Karen Hall and fellow researchers, explore how Gen AI is supporting nursing students to build confidence in EOL conversations through simulated, low-pressure learning environments. 🤖 By interacting with AI-generated characters from diverse cultural🌏, spiritual, and medical backgrounds, students were able to practise complex discussions and develop key communication skills such as empathy and active listening. 💛👂

Read the blog 🔗https://www.caresearch.com.au/About-Us/Newsroom/Palliative-Perspectives/Palliative-Perspectives-Blog-Details/ArtMID/17907/ArticleID/6545/How-Gen-AI-is-helping-nursing-students-build-confidence-in-end-of-life-conversations

20/04/2026

Study Spotlight💡

📊 Shows younger adults with life limiting conditions stay in the community when respite, carer wellbeing, navigation support🤝, and service eligibility are prioritised.

Read here🔗https://pubmed.ncbi.nlm.nih.gov/41724576/

17/04/2026

Caring needs are often complex and change over time, and introducing everything at once can feel overwhelming. 😔 A staged approach — sharing parts of the CarerHelp Information Kit when they’re most relevant — can help carers absorb information during what can be a stressful time. 🧭 Using professional judgement to align information with different stages of the caring journey can help carers feel supported, rather than overloaded. 💛

Learn more here 🔗 https://www.carerhelp.com.au/Resources/CarerHelp-Info-Kit

16/04/2026

“By equipping healthcare providers with accessible, evidence-based guidance, we can improve the quality of life for children, adults and their families during challenging times.” 💙

In this blog, A/Prof. Anthony Herbert and Dr. Greg Parker share information about the latest version of the palliMEDS app📱, which supports clinical decision-making by generalist prescribers👨‍⚕️ enabling timely symptom relief to community-based adult and paediatric palliative care patients.

Read the blog 🔗 https://www.caresearch.com.au/About-Us/Newsroom/Palliative-Perspectives/Palliative-Perspectives-Blog-Details/ArtMID/17907/ArticleID/6522/palliMEDS-app-update-Supporting-generalist-prescribers-in-palliative-care

15/04/2026

Talking about what matters most at the end of life can be challenging, but making a plan empowers you and your loved ones, ensuring your choices are respected in the years, months, and days ahead.💬🕊️

Whether you’re a carer, a family member, or planning for yourself, having these conversations early can make a world of difference. 🤝💛

supports carers with practical resources for getting started in caring, dealing with advancing illness, and managing grief and bereavement. These resources can also be used by services and health and social care professionals alike.

Visit CarerHelp website to order or download the free resources: 🔗 https://www.carerhelp.com.au/Resources

14/04/2026

“Art allowed nurses to say what words had never fully captured.” 🎨💬

Dr Michelle Stubbs, Program Convenor (Nursing) of the University of Newcastle, highlights how grief among aged care nurses is often hidden despite their close relationships with residents. 💙The study used art to help nurses express emotions that are difficult to verbalise, revealing diverse experiences of loss through colour 🌈 and symbolism.

Read the blog 🔗https://www.caresearch.com.au/About-Us/Newsroom/Palliative-Perspectives/Palliative-Perspectives-Blog-Details/ArtMID/17907/ArticleID/6525/When-art-speaks-Revealing-the-hidden-grief-of-aged-care-nurses

13/04/2026

🌱 What to expect with a life-limiting illness

Life-limiting illness brings many changes, physically, emotionally, and in everyday life💬. Understanding what may happen and how things could change over time can help people cope and feel more prepared. It can also support important decision-making along the way.

Key areas include:
🔹What quality of life means to different individuals
🔹Planning and coping with the changes
🔹Tools to recognise physical and emotional changes
🔹 Course of Illness, from diagnosis through to end of life.

Share this with patients, carers, or anyone who may find it helpful.

Learn more 🔗 https://www.caresearch.com.au/Community/Patients-and-Carers/Living-with-Illness/Changes-Over-Time

10/04/2026

As a carer, it is important that you feel like you can celebrate the person's life in the way that is most meaningful to you and the person you care caring for.

has a range of resources to support LGBTIQ+🏳️‍🌈 people caring for someone at the end of life.🕊️

Explore here:🔗 https://www.carerhelp.com.au/Communities/LGBTIQ

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08/04/2026

“One resident returned home and passed away peacefully in his own room, surrounded by familiar faces, Christmas lights🎄, and his favourite music playing🎵.”

People with disabilities often face significant barriers in accessing palliative care♿, due to poor coordination between disability and healthcare services. This can lead to hospital transfers and spend the end-of life in unfamiliar settings rather than at home👨‍👩‍👧‍👦. In this blog, Lindsey Moore and Mariana Ricci from SA Health highlights the “A Respectful Death at Home” project by Minda and Palliative Care Connect, which aims to improve end-of-life care for people with disability. The project builds staff knowledge, strengthen collaboration, and improves care pathways. 💛

Read the blog🔗 https://www.caresearch.com.au/About-Us/Newsroom/Palliative-Perspectives/Palliative-Perspectives-Blog-Details/ArtMID/17907/ArticleID/6514/A-Respectful-Death-at-Home-Minda-and-Palliative-Care-Connects-commitment-to-compassionate-end-of-life-care

Address

Level 3 (Room 306), Sturt North, Sturt Road, Flinders University
Adelaide, SA
5042

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+61872218233

Website

https://www.caresearch.com.au/

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What is the CareSearch Project?

We are a project working to support Australians with life-limiting illness and those who care for them to make informed decisions.

For over a decade, we have been providing patients and their carers and family, doctors, nurses, aged care staff, allied health professionals, and researchers access to trustworthy information and best available evidence.

You can find links to our websites and our major activities below:

· CareSearch website (www.caresearch.com) · palliAGED website (www.palliaged.com) · palliAGEDgp and palliAGEDnurse apps ( http://bit.ly/palliAGEDapps) · Engagement Project (http://bit.ly/CS_EngagementPallCare) · Palliative Perspectives blogs ( http://bit.ly/CareSearchBlog)