Women's and Children's Health Network

Women's and Children's Health Network This is the official page for the Women's and Children's Health Network.

13/11/2025

๐Ÿ’› ๐—๐—ผ๐—ถ๐—ป ๐—”๐—น๐—ฏ๐˜† ๐—ณ๐—ผ๐—ฟ ๐—ต๐—ถ๐˜€ ๐Ÿฏ ๐˜†๐—ฒ๐—ฎ๐—ฟ ๐—ผ๐—น๐—ฑ ๐—ต๐—ฒ๐—ฎ๐—น๐˜๐—ต ๐—ฎ๐—ป๐—ฑ ๐—ฑ๐—ฒ๐˜ƒ๐—ฒ๐—น๐—ผ๐—ฝ๐—บ๐—ฒ๐—ป๐˜ ๐—ฐ๐—ต๐—ฒ๐—ฐ๐—ธ ๐Ÿ’›

Alby recently visited the Child and Family Health Service (CaFHS) Paradise Clinic with his mum and big sister for his 3 year old child health and development check.

At CaFHS, our specialised staff, including child health nurses, provide free support to all families in South Australia with children from birth to 5 years of age.

Health and development checks into toddlerhood are just as important for your child as they are in the baby stages. The first 5 years are critical for your childโ€™s growth, brain development, and lifelong wellbeing.

At the 3 year old health check, the nurse will focus on:

โœ” Physical check of your child, including weighing and measuring
โœ” Developmental assessment that helps us track how your child is progressing and identify any concerns early
โœ” The importance of play and development including safe ways to explore the world around them
โœ” You and your familyโ€™s emotional health, along with your childโ€™s wellbeing
โœ” Dental health, bedtime routines, immunisations, getting ready for kindy โ€“ and much more!

๐Ÿ“ž To book your childโ€™s health and development check at your local CaFHS, call 1300 733 606.

For more information, visit www.cafhs.sa.gov.au

๐ŸŒฑ ๐— ๐—ฒ๐—ฒ๐˜ ๐˜๐—ต๐—ฒ ๐—ฆ๐—ฃ๐—ฅ๐—œ๐—ก๐—š ๐˜๐—ฒ๐—ฎ๐—บ! ๐ŸŒฑBlake (Data and Innovation), Nelly (Consultant), Chai-Lin (Consultant), Tabby (Practitioner), J...
11/11/2025

๐ŸŒฑ ๐— ๐—ฒ๐—ฒ๐˜ ๐˜๐—ต๐—ฒ ๐—ฆ๐—ฃ๐—ฅ๐—œ๐—ก๐—š ๐˜๐—ฒ๐—ฎ๐—บ! ๐ŸŒฑ

Blake (Data and Innovation), Nelly (Consultant), Chai-Lin (Consultant), Tabby (Practitioner), Jessica (Manager), and Millie (Consultant) (pictured L-R) are part of the dedicated team behind the SPRING Program, helping young people find hope and support during tough times.

The SPRING Program is a 6 week therapeutic intervention program supporting young people aged 11 to 18 experiencing self-harm, suicidal thoughts, or acute psychological distress.

Developed through collaboration by Centacare and the Child and Adolescent Mental Health Service (CAMHS), SPRING offers flexible support via phone, text, or face to face sessions through community visits, or wherever the young person feels most comfortable.

One participant from the program shared: "๐˜๐˜ตโ€™๐˜ด ๐˜จ๐˜ฐ๐˜ฐ๐˜ฅ ๐˜ต๐˜ฉ๐˜ข๐˜ต ๐˜บ๐˜ฐ๐˜ถ ๐˜ถ๐˜ฏ๐˜ฅ๐˜ฆ๐˜ณ๐˜ด๐˜ต๐˜ข๐˜ฏ๐˜ฅโ€ฆ ๐˜บ๐˜ฐ๐˜ถ ๐˜ข๐˜ค๐˜ต๐˜ถ๐˜ข๐˜ญ๐˜ญ๐˜บ ๐˜ญ๐˜ช๐˜ด๐˜ต๐˜ฆ๐˜ฏ ๐˜ต๐˜ฐ ๐˜ธ๐˜ฉ๐˜ข๐˜ต ๐˜ ๐˜ธ๐˜ข๐˜ฏ๐˜ต ๐˜ต๐˜ฐ ๐˜ด๐˜ข๐˜บ.โ€

Since July 2024, SPRING has:
โ€ข responded to 259 enquiries
โ€ข supported 138 young people
โ€ข 25 young people currently engaged in the service
โ€ข avoided 85% hospitalisation

Referrals are accepted from a variety of pathways, including:
๐Ÿฅ Womenโ€™s and Childrenโ€™s Hospital (WCH)
๐Ÿง  CAMHS Acute Care Services
๐Ÿ’ป Virtual Urgent Care
๐Ÿ“ž CAMHS Connect
๐ŸŒ CAMHS Community Services

For more information about SPRING and how to access this service, visit https://tinyurl.com/3t3w3nvj

After being diagnosed with Acute Lymphoblastic Leukemia in July 2024, 11 year old Anika (pictured middle) was forced to ...
10/11/2025

After being diagnosed with Acute Lymphoblastic Leukemia in July 2024, 11 year old Anika (pictured middle) was forced to pause regular schooling. Thanks to the Haematology Oncology School Team (HOST) Program at Hospital School SA (HSSA) at the Womenโ€™s and Childrenโ€™s Hospital (WCH), sheโ€™s been able to keep up with her learning.

The HOST Program, coordinated by both clinical and non-clinical staff, supports school-aged children undergoing treatment for cancer or haematological conditions โ€“ just like Takuto, HSSA Teacher, Tash, Michael Rice Centre for Haematology Oncology (MRCHO) Nurse, and Matthew, HSSA Principal (pictured L-R).

Anikaโ€™s dad, Adam (pictured right) shares, โ€œAnika has always been an academic and interested person, so we were worried about the impact this diagnosis would have on her education going forward.โ€

โ€œWe were so blessed with the HOST Program. Weโ€™ve had weekly visits to the hospital and this program has been great at making use of all the in-between moments and just making sure Anika was engaged and happy.โ€

Anika was able to work on the same projects as her peers at her original school, just completed from HSSA instead.

Anika says, โ€œI did Hospital School online, and it really helped me because it made me feel like I wasnโ€™t falling behind.โ€

โ€œI feel really ready for high school because Hospital School has made me feel like Iโ€™ve achieved academically."

Now, after 18 months of treatment, her prognosis is looking very good and is back at her own school and happy.

A huge thank you to Anika and her family for sharing her story, and to the HOST Program team for making education accessible and enjoyable for every child. ๐Ÿ’›

For more information on HSSA at WCH, visit https://tinyurl.com/3s3znvj4

The Pageant Royal Family made an extra special stop on their National Pharmacies Christmas Pageant travels today when th...
08/11/2025

The Pageant Royal Family made an extra special stop on their National Pharmacies Christmas Pageant travels today when they visited patients at the Womenโ€™s and Childrenโ€™s Hospital (WCH).

Children like 8 year old Isobel, 2 year old Dash plus our Cassia Ward staff were treated to a sprinkle of Christmas magic as the characters visited some of the wards and shared their festive cheer.

We hope all the pageant goers had a fun morning watching all the floats and seeing Santa arrive. It's officially Christmas season and there's only 47 days to go! ๐ŸŽ„๐Ÿ””

06/11/2025

And what about it?

05/11/2025

Meet Anton, a Registered Nurse at the Womenโ€™s and Childrenโ€™s Hospital (WCH) SA Pathology Collection Centre who helps little ones feel calm and cared for during their tests with the help of child-friendly devices, ๐—ฆ๐—บ๐—ถ๐—น๐—ฒ๐˜†๐˜€๐—ฐ๐—ผ๐—ฝ๐—ฒ and ๐—•๐—จ๐—ญ๐—ญ๐—ฌ. ๐Ÿ’™

SA Pathologyโ€™s experienced staff know how to make visits positive for even our littlest patients. The Smileyscope VR headset (ages 4+) uses immersive worlds and music therapy to distract from procedures, while BUZZY uses gentle vibration and cooling to reduce pain and anxiety, suitable for all ages.

The WCH SA Pathology Collection Centre is open Monday to Friday 8am to 5pm and Saturday 8.30am to 11.30am and is committed to providing a positive experience.

They accept any type of collection form and there is no need to book, just arrive and take a number!

A big thank you to our incredible pathology staff for the care you provide to infants and young children, and for making difficult moments easier for our youngest patients.

For more information, visit https://tinyurl.com/3e3daf7a

โ€œ๐™๐™ž๐™ข๐™š ๐™จ๐™ฉ๐™ค๐™ค๐™™ ๐™จ๐™ฉ๐™ž๐™ก๐™ก ๐™ฌ๐™๐™š๐™ฃ ๐™๐™š ๐™ฌ๐™–๐™จ ๐™—๐™ค๐™ง๐™ฃ ๐™จ๐™ฉ๐™ž๐™ก๐™ก. ๐™๐™๐™š๐™ง๐™š ๐™ฌ๐™–๐™จ ๐™ฃ๐™ค ๐™ฃ๐™š๐™ฌ๐™—๐™ค๐™ง๐™ฃ ๐™˜๐™ง๐™ฎ, ๐™Ÿ๐™ช๐™จ๐™ฉ ๐™ค๐™ซ๐™š๐™ง๐™ฌ๐™๐™š๐™ก๐™ข๐™ž๐™ฃ๐™œ ๐™จ๐™–๐™™๐™ฃ๐™š๐™จ๐™จ. ๐˜ฝ๐™ช๐™ฉ ๐™—๐™š๐™ฃ๐™š๐™–๐™ฉ๐™ ๐™ฉ๐™๐™–๐™ฉ ๐™ฌ๐™–๐™จ ๐™ก๐™ค๐™ซ๐™š...
30/10/2025

โ€œ๐™๐™ž๐™ข๐™š ๐™จ๐™ฉ๐™ค๐™ค๐™™ ๐™จ๐™ฉ๐™ž๐™ก๐™ก ๐™ฌ๐™๐™š๐™ฃ ๐™๐™š ๐™ฌ๐™–๐™จ ๐™—๐™ค๐™ง๐™ฃ ๐™จ๐™ฉ๐™ž๐™ก๐™ก. ๐™๐™๐™š๐™ง๐™š ๐™ฌ๐™–๐™จ ๐™ฃ๐™ค ๐™ฃ๐™š๐™ฌ๐™—๐™ค๐™ง๐™ฃ ๐™˜๐™ง๐™ฎ, ๐™Ÿ๐™ช๐™จ๐™ฉ ๐™ค๐™ซ๐™š๐™ง๐™ฌ๐™๐™š๐™ก๐™ข๐™ž๐™ฃ๐™œ ๐™จ๐™–๐™™๐™ฃ๐™š๐™จ๐™จ. ๐˜ฝ๐™ช๐™ฉ ๐™—๐™š๐™ฃ๐™š๐™–๐™ฉ๐™ ๐™ฉ๐™๐™–๐™ฉ ๐™ฌ๐™–๐™จ ๐™ก๐™ค๐™ซ๐™š ๐™–๐™ฃ๐™™ ๐™ฅ๐™ง๐™ž๐™™๐™š ๐™›๐™ค๐™ง ๐™– ๐™˜๐™๐™ž๐™ก๐™™ ๐™ฌ๐™š ๐™ฌ๐™ค๐™ช๐™ก๐™™ ๐™–๐™ก๐™ฌ๐™–๐™ฎ๐™จ ๐™˜๐™๐™š๐™ง๐™ž๐™จ๐™, ๐™ฎ๐™š๐™ฉ ๐™ฃ๐™š๐™ซ๐™š๐™ง ๐™จ๐™š๐™š ๐™œ๐™ง๐™ค๐™ฌ.โ€ โ€“ Annabel (pictured with her family), mum of Miles.

At 21 weeks pregnant, Annabel was admitted to the Womenโ€™s and Childrenโ€™s Hospital (WCH) under the care of the Maternal Fetal Medicine Service (MFMS), after doctors detected Miles had a major brain abnormality.

Annabel shared, โ€œAfter many tests, it was clear that our baby had suffered a brain haemorrhage in utero, which had caused extensive damage to developing brain matter.โ€

โ€œWhen it was time for Miles to be born, the midwives were incredible. The care they gave during such a harrowing and heartbreaking time is something I will never forget and will forever be grateful for.โ€

โ€œWitnessing grief as raw as that of a bereaved parent is confronting, and we felt understood and supported at every moment.โ€

Miles was stillborn in December 2018.

โ€œWe were able to hold Miles, have photographs with him and soak up the precious time we had before leaving the hospital. It is the worst feeling in the world to put your baby down and leave them, knowing youโ€™ll never see or hold them again. But knowing we were leaving Miles in the care of the WCH midwives made this impossible step that little bit easier.โ€

โ€œMy advice to parents who face similar heartache is simple โ€“ grieve how you need to grieve. The loss of a much-loved and wanted baby at any stage of pregnancy or infancy is a unique grief that only those who have experienced it can truly understand.โ€

โ€œSeek professional help as soon as you think you need it, and donโ€™t be ashamed to tell someone how youโ€™re really feeling.โ€

โ€œIโ€™m incredibly proud to still be involved with the WCH as an advisor and guest for healthcare professionals in this space. By sharing my story, I hope I can give other families hope whilst helping those providing care feel more supported in their roles.โ€

A heartfelt thank you to Annabel for sharing your story. Remembering Miles ๐Ÿค

For more information on our Grief Resources, visit https://tinyurl.com/2mtcwy7a

If you know someone grieving the loss of a loved one, support is available through the Red Tree Foundation by calling 8332 1066 or https://tinyurl.com/2wbtnmjy

โ€œ๐˜ ๐˜ด๐˜ข๐˜ต ๐˜ข๐˜ฏ๐˜ฅ ๐˜ญ๐˜ช๐˜ด๐˜ต๐˜ฆ๐˜ฏ๐˜ฆ๐˜ฅ ๐˜ฑ๐˜ข๐˜ต๐˜ช๐˜ฆ๐˜ฏ๐˜ต๐˜ญ๐˜บ, ๐˜ข๐˜ฏ๐˜ฅ ๐˜ฐ๐˜ฏ ๐˜ฉ๐˜ฆ๐˜ณ ๐˜ฅ๐˜ช๐˜ด๐˜ค๐˜ฉ๐˜ข๐˜ณ๐˜จ๐˜ฆ ๐˜ฅ๐˜ข๐˜บ, ๐˜ด๐˜ฉ๐˜ฆ ๐˜จ๐˜ข๐˜ท๐˜ฆ ๐˜ฎ๐˜ฆ ๐˜ข ๐˜ฃ๐˜ช๐˜จ ๐˜ฉ๐˜ถ๐˜จ ๐˜ข๐˜ฏ๐˜ฅ ๐˜ต๐˜ฉ๐˜ข๐˜ฏ๐˜ฌ๐˜ฆ๐˜ฅ ๐˜ฎ๐˜ฆ ๐˜ง๐˜ฐ๐˜ณ ๐˜ด๐˜ฑ๐˜ฆ๐˜ฏ๐˜ฅ๐˜ช๐˜ฏ๐˜จ ๐˜ต๐˜ช๐˜ฎ๐˜ฆ ๐˜ธ๐˜ช๐˜ต๐˜ฉ ๐˜ฉ๐˜ฆ๐˜ณ...
29/10/2025

โ€œ๐˜ ๐˜ด๐˜ข๐˜ต ๐˜ข๐˜ฏ๐˜ฅ ๐˜ญ๐˜ช๐˜ด๐˜ต๐˜ฆ๐˜ฏ๐˜ฆ๐˜ฅ ๐˜ฑ๐˜ข๐˜ต๐˜ช๐˜ฆ๐˜ฏ๐˜ต๐˜ญ๐˜บ, ๐˜ข๐˜ฏ๐˜ฅ ๐˜ฐ๐˜ฏ ๐˜ฉ๐˜ฆ๐˜ณ ๐˜ฅ๐˜ช๐˜ด๐˜ค๐˜ฉ๐˜ข๐˜ณ๐˜จ๐˜ฆ ๐˜ฅ๐˜ข๐˜บ, ๐˜ด๐˜ฉ๐˜ฆ ๐˜จ๐˜ข๐˜ท๐˜ฆ ๐˜ฎ๐˜ฆ ๐˜ข ๐˜ฃ๐˜ช๐˜จ ๐˜ฉ๐˜ถ๐˜จ ๐˜ข๐˜ฏ๐˜ฅ ๐˜ต๐˜ฉ๐˜ข๐˜ฏ๐˜ฌ๐˜ฆ๐˜ฅ ๐˜ฎ๐˜ฆ ๐˜ง๐˜ฐ๐˜ณ ๐˜ด๐˜ฑ๐˜ฆ๐˜ฏ๐˜ฅ๐˜ช๐˜ฏ๐˜จ ๐˜ต๐˜ช๐˜ฎ๐˜ฆ ๐˜ธ๐˜ช๐˜ต๐˜ฉ ๐˜ฉ๐˜ฆ๐˜ณ. ๐˜›๐˜ฉ๐˜ข๐˜ต ๐˜ธ๐˜ข๐˜ด ๐˜ข โ€˜๐˜ต๐˜ฉ๐˜ช๐˜ด ๐˜ช๐˜ด ๐˜ธ๐˜ฉ๐˜บ ๐˜โ€™๐˜ฎ ๐˜ฉ๐˜ฆ๐˜ณ๐˜ฆโ€™ ๐˜ฎ๐˜ฐ๐˜ฎ๐˜ฆ๐˜ฏ๐˜ต.โ€ โ€“ Sally, Womenโ€™s and Childrenโ€™s Health Network (WCHN) volunteer

This month, weโ€™re proud to celebrate Sally as our Volunteer of the Month, recognising her kindness, warmth and the meaningful impact she brings to families at Helen Mayo House (HMH) - an inpatient service that provides care to parents who have significant mental health problems in the postnatal period.

Sally joined WCHN wanting to make a difference in peopleโ€™s lives through care, kindness and human connection. Whether sheโ€™s offering a listening ear or giving a parent a short moment to rest, her presence brings comfort and positivity to those around her.

Sally shared, โ€œEach time I attend HMH, itโ€™s a completely different experience. The conversations and connections I have each week remind me how much good is being done here.โ€

Thank you, Sally, for your generosity and the care you bring to every interaction โ€“ you are a valued part of our volunteer family, and we are so grateful to have you. ๐Ÿ’œ

If youโ€™ve ever thought about giving back or connecting with your community, why not become a volunteer like Sally?

Learn more at wchn.sa.gov.au/volunteers.

For more information on HMH, visit https://tinyurl.com/9z5m45ak

28/10/2025

Meet 13 year old Ed, who uses robotic therapy to help improve his walking pattern and find much needed relief from constant pain and discomfort.

Ed was born with an unidentifiable condition that affects his ability to walk, causing him to tire easily and making everyday life difficult. Despite extensive rounds of testing, Ed and his family have unfortunately not been able to find a diagnosis.

It wasnโ€™t until Ed was introduced to the Lokomat โ€“ a robot at the Womenโ€™s and Childrenโ€™s Hospital (WCH) Centre for Robotics and Innovation offering robotic therapy โ€“ that he found his pain eased and his mood lifted.

The Lokomat helps patients develop the ideal walking pattern, teaching their muscles what to do through targeted repetition and motivation using TV screens.

After just 8 sessions, Ed has gained greater mobility and endurance, his pain has eased, and his sleep and mood have improved.

Tammi, Edโ€™s mum says, โ€œAfter Ed has used the robot, weโ€™ve found heโ€™s able to walk a lot better with his heels first and has much more endurance and stamina.โ€

โ€œItโ€™s like playing video games with your legs, rather than your hands and he loves playing video games.โ€

Thank you to Ed and Tammi for sharing your story and we hope the Lokomat continues to positively support your journey. ๐Ÿ’™

For more information on the Centre for Robotics and Innovation, visit https://tinyurl.com/mr227ndm

โ€œ๐—œโ€™๐˜ƒ๐—ฒ ๐—ฏ๐—ฒ๐—ฒ๐—ป ๐—ฎ ๐—›๐—ฒ๐—ฎ๐—ฟ๐˜๐—ณ๐—ฒ๐—น๐˜ ๐—ฝ๐—ต๐—ผ๐˜๐—ผ๐—ด๐—ฟ๐—ฎ๐—ฝ๐—ต๐—ฒ๐—ฟ ๐—ณ๐—ผ๐—ฟ ๐Ÿญ๐Ÿฑ ๐˜†๐—ฒ๐—ฎ๐—ฟ๐˜€. ๐—œ๐˜ ๐—ถ๐˜€ ๐—ฎ ๐—ต๐˜‚๐—บ๐—ฏ๐—น๐—ถ๐—ป๐—ด ๐—ฎ๐—ป๐—ฑ ๐—ฒ๐˜…๐˜๐—ฟ๐—ฎ๐—ผ๐—ฟ๐—ฑ๐—ถ๐—ป๐—ฎ๐—ฟ๐˜† ๐—ฒ๐˜…๐—ฝ๐—ฒ๐—ฟ๐—ถ๐—ฒ๐—ป๐—ฐ๐—ฒ, ๐—ฎ๐—ป๐—ฑ ๐—œ ๐—ณ๐—ฒ๐—ฒ๐—น ๐—ฝ๐—ฟ๐—ถ๐˜ƒ๐—ถ๐—น๐—ฒ๐—ด๐—ฒ๐—ฑ ๐˜...
27/10/2025

โ€œ๐—œโ€™๐˜ƒ๐—ฒ ๐—ฏ๐—ฒ๐—ฒ๐—ป ๐—ฎ ๐—›๐—ฒ๐—ฎ๐—ฟ๐˜๐—ณ๐—ฒ๐—น๐˜ ๐—ฝ๐—ต๐—ผ๐˜๐—ผ๐—ด๐—ฟ๐—ฎ๐—ฝ๐—ต๐—ฒ๐—ฟ ๐—ณ๐—ผ๐—ฟ ๐Ÿญ๐Ÿฑ ๐˜†๐—ฒ๐—ฎ๐—ฟ๐˜€. ๐—œ๐˜ ๐—ถ๐˜€ ๐—ฎ ๐—ต๐˜‚๐—บ๐—ฏ๐—น๐—ถ๐—ป๐—ด ๐—ฎ๐—ป๐—ฑ ๐—ฒ๐˜…๐˜๐—ฟ๐—ฎ๐—ผ๐—ฟ๐—ฑ๐—ถ๐—ป๐—ฎ๐—ฟ๐˜† ๐—ฒ๐˜…๐—ฝ๐—ฒ๐—ฟ๐—ถ๐—ฒ๐—ป๐—ฐ๐—ฒ, ๐—ฎ๐—ป๐—ฑ ๐—œ ๐—ณ๐—ฒ๐—ฒ๐—น ๐—ฝ๐—ฟ๐—ถ๐˜ƒ๐—ถ๐—น๐—ฒ๐—ด๐—ฒ๐—ฑ ๐˜๐—ผ ๐—ต๐—ฒ๐—น๐—ฝ ๐—ณ๐—ฎ๐—บ๐—ถ๐—น๐—ถ๐—ฒ๐˜€ ๐—ฐ๐—ฟ๐—ฒ๐—ฎ๐˜๐—ฒ ๐—น๐—ฎ๐˜€๐˜๐—ถ๐—ป๐—ด ๐—บ๐—ฒ๐—บ๐—ผ๐—ฟ๐—ถ๐—ฒ๐˜€ ๐—ผ๐—ณ ๐˜๐—ต๐—ฒ๐—ถ๐—ฟ ๐—ฝ๐—ฟ๐—ฒ๐—ฐ๐—ถ๐—ผ๐˜‚๐˜€ ๐—ฐ๐—ต๐—ถ๐—น๐—ฑ๐—ฟ๐—ฒ๐—ป.โ€ โ€“ Helen, State Coordinator of Heartfelt

Heartfelt provides free professional photography for families who experience stillbirth, have critically premature or ill babies in the Neonatal Intensive Care Unit (NICU) or Paediatric Intensive Care Unit (PICU), or have children up to around 16 years of age living with serious or terminal illness.

Before joining Heartfelt, Helen spent 26 years as a Paediatric Intensive Care Nurse at the Womenโ€™s and Childrenโ€™s Hospital (WCH), which inspired her passion for creating lasting memories.

โ€œIt was always such a privilege to care for children and their families during some of the hardest moments of their lives. I felt that in some small way, I could make a difference โ€“ much like the work we do with Heartfelt.โ€

โ€œOver the years, I learned how to hold space for families whose children were dying โ€“ to simply be present without fear, without needing to fix what couldnโ€™t be fixed.โ€

โ€œMany of the children I cared for stay with me still, in a quiet and spiritual way. I often feel their presence behind me, giving me courage for the work I do now.โ€

โ€œI eventually stepped away from nursing about 13 years ago. But I soon found a way to bring all those parts of myself together through Heartfelt.โ€

โ€œNow, as the photographer and State Coordinator at Heartfelt, I feel Iโ€™ve come full circle โ€“ still walking beside people through love, loss, and meaning, just in a different way.โ€

โ€œOur volunteer photographers travel across Australia and New Zealand, coming to hospitals, hospices, homes, or any special place chosen by the family, whenever the time feels right.โ€

Families can contact Heartfelt directly, or healthcare workers, friends, or funeral directors can make a referral on their behalf with consent. Every session is offered with compassion, sensitivity, and care, and there is never any charge for the service.

We sincerely thank Helen for her selfless work over the years, and for creating meaningful memories for families during some of lifeโ€™s most difficult moments.

For more information on Heartfelt, visit https://heartfelt.org.au/

Thank you to the families for generously allowing us to share their images.

Five year old cheeky monkey Lily lives with spina bifida, a congenital condition where the spine and spinal cord donโ€™t f...
24/10/2025

Five year old cheeky monkey Lily lives with spina bifida, a congenital condition where the spine and spinal cord donโ€™t form properly โ€“ but sheโ€™s dancing away all odds.

At just 1 week old, Lily underwent surgery in the Neonatal Intensive Care Unit (NICU) at the Womenโ€™s and Childrenโ€™s Hospital (WCH) to repair her lipomyelomeningocele, a type of spina bifida where a fatty mass attaches to the spinal cord.

Since then, sheโ€™s had annual MRIs, multiple hospital stays, and further surgery at age 2 to detether her spinal cord.

Renรฉe, Lilyโ€™s mum says, โ€œLily has received incredible care from the WCH since birth. Lily has had involvement with the Neurosurgery team, Paediatric Rehabilitation, Orthotics, Orthopaedics, Urology and many more. The coordinated care at WCH has made a huge difference in helping Lily live a full and active life.โ€

โ€œLily uses a wheelchair for anything outside the house or classroom and has worn bilateral ankle-foot orthosis (AFOs) since she was 1 years old to support her mobility. She started walking at 2 and a half, which was such a sweet surprise to us.โ€

โ€œMy advice is simple โ€“ children with spina bifida can live such full, fun and joyful lives. When Lily was diagnosed, we didnโ€™t know what her future would hold. Looking back, I wish we hadnโ€™t spent so much time focused on the โ€˜what-ifโ€™sโ€™.โ€

โ€œYour child will amaze you. Let them be involved in wherever their passion lies. Lily does calisthenics and does solos twice a year in the inclusion section. She shines on stage and dances her little heart out.โ€

โ€œShe has a huge personality and a very quick wit. Sheโ€™s already decided that when she grows up, she wants to be a comedian. But in her words โ€“ โ€˜A sit down comedian, not a stand up one - because I have a wheelchairโ€™.โ€

โ€œYour child deserves the same opportunities as everyone else and when given the chance, theyโ€™ll show you how much theyโ€™re capable of. Theyโ€™ll have plenty of people assuming they canโ€™t do something - so believe in them. Support their passions and celebrate every win, big or small.โ€

A big thank you to Renรฉe and Lily for sharing your inspiring story this . ๐Ÿ’›

Address

72 King William Road
Adelaide, SA
5006

Alerts

Be the first to know and let us send you an email when Women's and Children's Health Network posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category