Harmony Restored

16/08/2021

Information on covid vaccine and people with disability and their informal carers

https://www.facebook.com/1476789762532907/posts/3042987912579743/

NSW: Sydney Pfizer disability/carer/support worker priority booking link: https://22214.covidhub.com.au/hca.v.php

SA: How and where to get a vaccination booking in SA for disabled people, carers and teens (and support workers). (Some testing info too)
Save this or share to your timelines as I will keep this updated.
Have you had a lousy time trying to get you or someone you love a covid19 vaccination?

The vaccination rollout has been a mess for disabled people and carers. It’s frustrating, and life threatening, as we are seeing unfold in the eastern states. So here’s the skinny for info in SA, brought together after literally months of hassling authorities and being dragged from pillar to post. I still don’t have all the info I need, but we’re getting there.
The reasons for all the mess really don’t make any sense, and actually, I’m not going to try and explain why, because to be honest, it’s all doing my head in…

So… I’ll just get you the info you need to know.

1. NDIS Participants 12+ (federal clinics), their families and workers 16+ are all eligible NOW, and can book online at https://www.health.gov.au/initiatives-and-programs/covid-19-vaccines BUT there may be a quicker/better option for you below – please read on!.

2. NDIS participants 12-15 (State clinics) are also able to get vaccinated, but to make sure vaccination clinics are prepared to manage any sh*tty reactions, SA Health asks that families of these children make an appointment with their GP to get the shots, and if their GP doesn’t do shots, (or your child needs the backup of the WCH) then to make an appointment to get a referral to have the shot at the WCH (where they have all the kid sized equipment in case someone has a bad reaction). When you go to your GP, the GP is supposed to call a hotline at the WCH to see whether the GP can give the shot, or whether the child should be referred to the WCH.

3. NDIS participants who can travel for their shots, but might not manage at the usual vaccination centres, can go to the Enfield or Brighton Vaccination Hub run by Aspen –– they should be more attune and accommodating for disabled people – let them know what is needed when you book.

• Disabled people and workers: Enfield Residential Aged Care and Disability Service Clinic. Phone 8161 9606 or call call 0437 325 123 for special arrangements.

• Disabled people and family carers: The Aspen clinic at Minda at Brighton is also available for disabled people and family carers to book – there are even some same day appointments available! Click here to book: https://bit.ly/3m5EtYC or call 0448 428 225 for same day bookings. I hear the team here are very accommodating and will even do a jab for an anxious or less mobile participant while in their car if that is what is needed.

• Support and Aged Care workers: Aspen Medical Aged Care and Disability Vaccination Hub, Medindie. Phone 0437 325 123

• Support and Aged Care workers: Highgate Park Clinic. Phone 8272 1988

4. If there are two or more disabled people at your home, your vaccinations can be done at home, apparently, according to the website, but the Federal government line and the SA Gov line handballed me back and forth – I hope to update this info during the day after I reach out to other contacts. Again. (I’m sure they’re all sick of me, too bad so sad)

5. Lastly, if you are bed bound, or your behavioural support needs mean that attending a clinic in person (or in the car) is genuinely not an option, if you have a GP who has access to the vaccines, they should come to you, but if your GP doesn’t have access, then you can… I JUST DON’T KNOW THE ANSWER. I’m sorry. I am hunting this down and will edit when I get the info.

Tips and tricks –

• I hear some of the regular vaccination clinics are requesting proof of disability, so I suggest you bring the first page of your NDIS plan as evidence, especially if your disability is not all that easy to “see”.

• While glitches may well allow you to book a 12-15yo at a regular vaccination clinic, chances are you will be turned away once you get there – save yourself the stress and use the process as outlined above.

• Family carers ARE eligible – and that includes siblings etc who are 16+ - don’t forget these folks.

• General disability related vaccination information is at https://bit.ly/2VOPFOz

COVID Testing in-home for those who are home/bed bound:
There are only 60 of these appointments available in metro Adelaide each day from 8-4pm (plus regional visits if you’re within 30 minutes of one of their regional testing labs) – so please, only use this if you absolutely are unable to attend a drive through or walk-in testing clinic. More info here: https://bit.ly/3AMwTG3

Auslan:
Clinpath have a COVID testing with Auslan service at their Mile End drive through testing site on Tuesday and Thursday mornings from 8-1pm 21 James Congdon Drive. No bookings required - https://www.clinpath.com.au/covid-19/auslan-service/

There’s a heap of Easy Read resources about covid vaccinations in general at https://www.health.gov.au/resources/collections/covid-19-vaccination-easy-read-resources, and https://www.downsyndrome.org.au/resources/coronavirus-information/easy-read-resources/ and some social stories at https://pathfindersforautism.org/coronavirus-social-stories/

Please share this info. It’s really important. Please no edits. If you’ve got more info to add – please post it here and I’ll update.

Pic desc: a young woman with Down syndrome, wearing a blue surgical mask holing her sleeve to show a bandaid on her upper arm, with her other hand doing a thumbs up, next to another lady wearing a mask. Photo credit: Children’s Hospital Colorado

14/07/2021

Aldi special today.
Electric salt or pepper mills.
Easy to use for those with issues with their hands and arms.

$9.99 each comes in 6 colours.

10/06/2021

Just about to talk on a webinar see below for details.
The times are eastern standard Time.

05/04/2021

NDIS about and applying

NDIS and DSP are not linked . You can be on 1 and not qualify for the other .
Being a NDIS participant will not effect your DSP or any other income support payment you might be on.

It only effects mobility allowance.

NDIS is not for covering everyday expense, medical/ medications , dental or other things covered by other government departments.

It's to cover the costs of having a Disability like therapies, support workers, cleaners, gardeners, assistive technology to assist you and more.

NDIS has 3 steps and these are covered in the booklets I'll link to below.
1. Are you eligible and how to apply
2. Planning meeting and how to get a great plan
3. How to use your plan and get the most from it and have the best life possible.

You do not need to wait to apply for NDIS. But having the support of your medical team is important. As there is a form for them to full in.

Once you have NDIS there is 4 ways the plan can be managed.

1. Agency managed. This gives you the lowest level of choice and control, you can only use registered providers ( often not the best and limited) and.if you need anything you need to get it all approved.

2. Plan managed.
This gives you more choice and control. You don't need to use registered providers. Someone else looks after the invoices and paying them.

3.
Self managed.
This gives you the most choice and control. You don't need to use registered providers and you have the responsibility of paying the bills, and keeping the invoices.

4. A mix of some or all of the above .

Personally I'd never recommend agency managed unless there was no other option.

You can get a support coordinator to help you learn about the plan and help you to implement it .

To apply you do a request for access and then when you get sent the form of printed it you hand that in.

Booklets can be found here. There is pdf and word options plus easy read if you need.
I'd suggest reading them 1 at a time and take your time to understand each first.
https://www.ndis.gov.au/about-us/publications/booklets-and-factsheets

Access request form is near the top of this page
https://www.ndis.gov.au/how-apply-ndis/what-access-request-form -request-form

Booklets and Factsheets on a variety of topics including: Participant booklets, about the NDIS, developing and starting your plan, families and carers, specific supports and services. Includes Easy English and some printed versions - available from you local office or by calling 1800 800 110 for inf...

14/02/2021

Today I'm at a market
Pop in for a chat if your free or have questions about NDIS plans or CentreLink

05/11/2020

People with a Disability or those caring for a person with a Disability this resource is amazing.
It's a helpful folder to have. It keeps its all together. Also has triggers and how to deal with them and all other stuff. Esp for those with ASD and non verbal or can't express themselves

https://cid.org.au/resource/my-health-matters-folder/

30/06/2020

New business cards just came in.

06/05/2020

NDIS mentoring
Plan and self managed only.

New to NDIS and looking for help to navigate through the system.

Need help working through what you can and can't claim.

Want to learn the easiest and simplest ways to self manage your own or loved ones plan that is worked out while incorporating your Disability.

Then WE can help.

Message for more information.

19/03/2020

We now offer NDIS mentoring .

This is where we help you to understand your plan and how to get the best out of it.
We also can support you in setting up and continued support to be able to self manage

We also have a young man who can help set up tech items including Google home , wifi lights , and other items .

We are not a NDIS registered provider
We can only work with plan and self managed plans
Feel free to message us for more information

30/12/2019

I've donated 10GB of my data to help power a young Australian's potential. If you're an Optus customer, you can help The Smith Family through a few simple clicks on the My Optus app.

Learn more at optus.com.au/donate-your-data

Help power the potential of young Aussies in need.