04/04/2022
All Bladder Cancer patients and family members.
Your HELP is needed to participate in a 2022 bladder cancer patient experience study (online questionnaire + phone interview).
As a thank you for your time, each participant will be offered a $50 Coles/Woolworths voucher.
To register, please click on the link below:
https://www.cc-dr.org/2022aublc/
Please register now and support this very comprehensive study covering all aspects of bladder cancer and help make a difference now and to future care for all patients and families.
Who can participate?
People who have been diagnosed with bladder cancer and their family members are welcome to participate in the study. You will need to be over 18 years old and living in Australia.
What is involved?
The study will include an online questionnaire that will take approximately 30 minutes to complete, as well as a structured interview by telephone that will take approximately 30 – 45 minutes.
Background:
The Centre for Community-Driven Research (CCDR) in partnership with BEAT Bladder Cancer Australia are conducting a Patient Experience, Expectations and Knowledge (PEEK) study in Bladder Cancer. PEEK studies give us a clear picture of what it is like to be a patient at a given point in time as well as a way forward to support patients and their families with treatments, information and care. The last study was conducted in 2018 and it was the largest mixed methodology study conducted worldwide within the previous five years for bladder cancer. This 2022 study will provide key data to be used in comparison against the data collected in 2018. Help us find out what has improved and what changes are needed.
CCDR are a charity that conducts research to help patients have their voice heard. PEEK is a comprehensive study covering all aspects of disease experience from symptoms, diagnosis, treatment, healthcare communication, information provision, care and support, quality of life, and future treatment and care expectations.