26/09/2025
✨Invisible battles✨
This memory popped up and it is still as relevant to share as it was then.
As I reflect, I am so grateful that I had this opportunity and it was such a positive step for me to go through with my hysterectomy. It’s not the op that is the import at message though, it is being taken seriously, having agency over your body and your health and also being BELIEVED.
I could write (and so probably will) another one similar on but that is for another day.
To all you folks out there, trying to get through a day as you fight battles no one can see. I see you 👀, and I send you a tonne of love.
Sophie Gleitzman Naturopath Charlotte Pointeaux - Ceremonial Priestess & Spiritual Business - I’ll always be so grateful to you both.
✨Adenomyosis/Invisible Illness✨
So, I’m at it again, about to share with you some deep personal stuff and as usual my process around deciding what is relevant and helpful to share and what is not has been completed. This is necessary, as I really feel like it should be talked of more, if you feel you can, and I do!
I’ve been experiencing a chronic condition that for many (let’s be real, I’m getting old so it’s many, many, many but I’m just using the one many 😉) years, with many different tests and medical professionals, was misunderstood, undiagnosed, misdiagnosed, dismissed, and ignored.
It left me with feelings of shame and mountains of guilt. Not liking myself much and feeling like I was a hypochondriac who couldn’t do life as well as others.
What I have learnt over the past 2 years by working with some badass legends who have changed my life, is that what I thought I was doing, moaning, being unreliable, lazy was, in fact a complete myth and in fact, I was doing life, often pushing myself despite this chronic and invisible condition.
I have a very real, and at times debilitating, little researched condition called adenomyosis.
I won’t go into the ins and outs of it too much, you may be eating your dinner. But it is a gynaecological condition that has caused, amongst other things, chronic inflammation in my body.
I had spent so many years feeling that I was overreacting, was being a burden and in constant fear of letting people down. Like constant.
I would also be hypervigilant to a flare up, so once I would feel the familiar visit from my old ‘mate’ fatigue or migraine or aches and pains, it would build up a storm of fear and criticism inside my mind along with the physical symptoms. That’s without even considering the period pains.
The ‘here we go again’ would start to chime in and so the physicality of what I was experiencing would be compounded 10-fold by the mental and emotional anguish around my inability to show up in the world Once. Again.
When I met the practitioner/magician Sophie Gleitzman Naturopath and not only did she believe every word, she theorised that it sounded like I had adenomyosis, it was like a scene from a movie when the clouds clear and the sun begins to shine and birds begin to chirp.
Then Dr Andrew Zuschmann joined in and it started to feel like there was possibility.
It was still a hard slog, many appointments, and conversations along the way with me feeling like I had to hold that mental load of carrying all the different findings from different practitioners to each other so we could truly build a picture.
Trying different treatments, many, many tests, and procedures to attempt to ward of the most invasive, a hysterectomy.
Yet, here I find myself on the eve of having a hysterectomy. It feels scary. It is major surgery after all, which I am lucky enough to have never experienced before. I am also scared that after all of this, not much will change (I have a sense that is most likely ole mate ‘inner critic’ though just trying to keep me grounded and not expect too much, or maybe letting me know that all this effort on everyone else’s part better be worth it!”).
But I am filled with gratitude to all the people who’ve helped me discover myself on this journey, to trust in my gut.
I don’t think it would have been possible if I hadn’t worked with the wizardress that is Charlotte Pointeaux - Wild Feminine Cycle Coach. Charlotte and I worked together for 6 months in a way that was heart and soul led rather than thought out and it ended up being very much about me reconnecting with my womb. Forging a new relationship with it, being able to stop with the old messages of having a broken one, or my periods being a nightmare, or this part of my body being diseased and unwanted.
My work with Charlotte helped me get to a place where I fell in love with my womb, I was able to have so much gratitude for it. I was able to change the past story around my horrendous and painful periods, my menstrual related depression and anxiety, my struggles falling pregnant, my babies that my uterus couldn’t hold on to.
I was able to see it for what it HAD provided me, the ability to grow life, the precious babies that had been there and then left too early and what that taught me about myself and empathy for others, and of course my amazing humans that I did grow and birth.
I was able to see the amazing gift that I had been gifted, a uterus that not everyone who deserves, gets one.
I was able to say thank you to her, and to let her know that I could hear how tired she was and how hard she had worked for me over the years. I was able to let her know she could bow out now. Have a rest.
So, as of tomorrow, she will not be part of my body anymore, and I write this with tears on my face, and love in my heart (and of course huge levels of anxiety and fear coursing through me too 😉 – operations eeeeekkkk – pain – eeekkkk)
But I wrote this to honour her, I wrote it to speak to all of you who also live with chronic and invisible conditions. To people who feel they are ‘weak’, or not ‘tough enough’, or don’t ‘show up’ enough. F**k that, you ROCK!!!
To live with a backdrop of discomfort, pain, isolation, apprehension, a sense of not being believed, a feeling that you need to mask and being generally exhausted and still opening your eyes each morning and giving it all another go, you are SUPERHEROS. I see you! I salute you!
Wish me luck x