Aaron's Day

Aaron's Day Aaron Diagnosed 2yrs old 20th Dec 2022
Stage IV Refractory Neuroblastoma
He lived and loved fiercely and was incredibly brave.

I will love you always and can't wait to be with you again - to infinity and beyond buddy πŸŒŒπŸ’«

23/11/2020 - 27/08/2025πŸ•ŠοΈπŸŽ—οΈ

03/01/2026

It's sissy's Birthday tomorrow buddy. She is missing you. When she is sad and thinking of you she watches the music videos on YouTube that you used to watch together. Me&U song - you are best friends forever side by side me and you... It kills me because you were the best brother and her forever friend. You looked up to her but she also looked up to you. You were a little Big Bro.

She got an extra present today because you reminded me about it in my dreams last night. To be fair I'd been thinking of it for a couple of weeks as I know it would have been the present you'd tell me to get her if you were here. We'll be setting up a fish tank for some goldfish. I promised you both for our new house we'd get a tank. This one is just a small one until maybe we get an axolotl πŸ€”

You had wicked dance moves and loved living life together.

31/12/2025

We miss you and love you. Ella didn't want to go into 2026 without you. She didn't want to be in a year you weren't here. I'm thankful for my beliefs because it doesn't hit me in that way.

We hung out with the neighbours and did glowsticks and games and sparklers like we usually would have. I'm walking into 2026 grateful I'm able to. I think that's enough. We are going to do some awesome things but for now we are still being gentle with ourselves as we face so many firsts without you ❀️

Happy New Year buddy πŸŽ†
I'll always remember our times watching fireworks together. You always had so much wonder and awe about them. Your big bright eyes looking up to the sky.

As we get ready to face our first Christmas without you here I am unsure of how I'm feeling. It's almost like I am stuck...
24/12/2025

As we get ready to face our first Christmas without you here I am unsure of how I'm feeling. It's almost like I am stuck.

Christmas time was when you were diagnosed 3 yrs ago. Your first surgery on the 23rd, first chemo on the 24th. I have the smells of the hospital linger in the air around this time of year. The sanitiser, the soap, the alcohol wipes, your breath after going under anaesthesia. The spew, the vomit. The way that my skin tingled if I got any of your bodily fluids on me while you were having chemo. That's what Christmas feels like to me.

At the same time though, I hear giggles, I feel joy and love and excitement, because through all of it we showed up for each other and lived like little kids. With a love for Santa, the community and local events and of course presents!! You and Ella showed me Christmas in every possible brilliant way it dims the hard stuff but it's still there.

Now that I am experiencing Christmas since you died it's all of those things but something more too. A weight or a magnet in my chest pulling me, away from the present, longing to be with you or you with me. I feel you with us and then at times I don't because I feel so many other things too.

This is a hard time of year for so many families. Too many. We remember our angels every day but tonight as you put presents under the tree and get ready to gather with your family, be sure to share a moment of acknowledgement for those whose lives are turned inside out by the tragedy of a new diagnosis, who have to leave their Christmas morning before even eating breakfast to head to the hospital for a fever. For the kids who are too sick to eat and miss out on sharing Christmas with their siblings.

Wishing your Christmas to be the best you can make of it, with all the love you have in your heart and remember to take the photos. All of them. Even if mum protests, take them of her with these kids. Be sneaky about it and share it only to her or surprise her by printing them off later. Make sure they are the candid ones too and not just the posed/forced ones. Get that glimmer in her eye that she has only for her children and Mum's, don't forget the Dads.

We will live buddy, we will show up for each other and I know you will be with us. Merry Christmas πŸŽ„πŸŽ πŸŽ…

3 years ago today our world turned inside out. You began your hospital stays that lasted the longest time. I had never b...
20/12/2025

3 years ago today our world turned inside out. You began your hospital stays that lasted the longest time. I had never been more heartbroken or fearful. My gorgeous boy you were so brave. I am so sorry we couldn't make it all better but I did get you home.

I am flooded with memories and emotions from that first night. I don't remember properly but I'm pretty sure the first two weeks I barely slept. I mean who am I kidding... this was the beginning of no more than 2-3hrs at a time kind of sleeping for years. It had already almost been like that in the months leading up to your diagnosis. I'll never really know how it all felt for you but what I do know is that you made the best of everyday you could and you fought hard to get better. You made me so proud my baby boy. I am so thankful I got to be your Mummy.

We have Christmas coming too and you are very much missed. So many cool presents won't be under our Christmas tree 😞
I always loved seeing you open up your presents from Santa πŸŽ… Ella is so excited for Christmas but then she misses you and she is torn between joy and sadness. You know us... The sad is ok but we always feel the joy, you helped show us how to do that.

I love you Aaron ❀️

14/12/2025

I am so glad we came this year. We went last year, I threw Aaron from last year in amongst this year's pictures. I was able to talk about him today without crying. That was nice. Being around people that just get it. I didn't know of anyone else there who had lost their child, I felt like maybe we weren't supposed to be there. I just wanted to see the rest of this year out doing the things we would have done if he was here. If he was here we would have done this. If he was here I would have done all the Christmas decorations and all the Christmas events possible. It's what we've always done when not tied to a hospital bed. There's a small part of me that wants to shut myself away but it's only small and it's easy to identify that as a really unhealthy option. I got to love you out loud today buddy. I remembered you, I talked about you to people who knew about you and your fight, I got to see their little warriors and their siblings having fun just like regular kids and it was healing. We are grateful πŸ’›

We left a happy Quokka solar light at your kindy buddy. I took a picture in the veggie patch you were helping with on yo...
12/12/2025

We left a happy Quokka solar light at your kindy buddy. I took a picture in the veggie patch you were helping with on your last week at kindy. Your teachers will be finding a special spot to keep him ☺️

We even saw the resident possum and Ella fed her an apple with your teachers help 🍎

A Hammerbarn Christmas photo last year. Had I known it was going to be your last Santa photo buddy I would have made sur...
06/12/2025

A Hammerbarn Christmas photo last year. Had I known it was going to be your last Santa photo buddy I would have made sure to get a nicer one too. You had a lot of reluctance to the Santas and much preferred the Grinch from the year before at Southbank πŸ˜… I love this photo though it fits. Chaos and fun πŸŽ„πŸ₯°πŸŽ…

We attended Aaron's Kindy Christmas Party this morning. It was hard but not at the same time. He loved kindy, his teache...
02/12/2025

We attended Aaron's Kindy Christmas Party this morning. It was hard but not at the same time. He loved kindy, his teachers, friends and of course the sand pit πŸ˜…

I swear I could see him dancing and doing the activities the kids were doing today, maybe it was just my imagination but I just could see his character and energy doing all the things. Ella was participating with the group to help too.

The lovely kindy put a slideshow together of Aaron and mentioned about him not making it to the end of the year. Tears were shed and I appreciated the hugs. I wish I had mentioned he had cancer from the beginning. The hospital was telling us to try and live life normally. It was the only normal he had and it was for only 6 months. I know it was his most favourite 6 months.

We love you always Aaron. I thought today that all these kids have something special for the rest of their life. An angel friend always with them. They will always have you.

I very much loved the footprints dedicated to you among the handprints of your friends. We were meant to leave some of Aaron's cars today but Ella left them in the car and we will be getting a little solar light for the kindy garden.

Ella and I went to what would have been your first birthday party for a friend. Your special friend, we spoilt her with ...
29/11/2025

Ella and I went to what would have been your first birthday party for a friend. Your special friend, we spoilt her with all the gifts we thought you'd have loved to get her including this guy. You both shared a love for them πŸ˜‚ We saw another friend who you played with at the park one time and so many of your kindy classmates. Buddy it was hard but I am so damn grateful that we made a friend out of this lovely girls Mumma, to continue to include us and help us through this time is truly something. I hope you know how loved you are buddy, you even got a party bag I will put with your special things ❀️

23/11/2025

You have the coolest bravest Aunty who kept her promise and jumped out of a plane for you on your birthday. I think she wanted to do something scary because of all that she watched you go through. She did Zoomies in the sky buddy all for you and I'm so happy we all came together to watch Aunty fall out of the sky πŸ˜‚ I know you were with her all the way. Happy 5th Birthday from your Aunty Jorj. She made a special tshirt to wear and it brought a tear. You are so loved buddy πŸ˜‡β€οΈπŸͺ½

Happy Birthday my sweet boy. You should have turned 5 πŸ˜”πŸ’”When you were first diagnosed I was terrified and I felt the odd...
23/11/2025

Happy Birthday my sweet boy. You should have turned 5 πŸ˜”πŸ’”

When you were first diagnosed I was terrified and I felt the odds were certainly not in your favour - I promised myself that we will get you to your 5th birthday. After some time, and seeing your fight I said nope that's not enough I want you to reach double digits. We didn't even get you to 5 yrs old. Not something in my control really but when you are faced with fighting something so huge and seeing so much loss on the wards, you want to strive for something because it was so hard to face.

You lived hard, you had so much love and joy for life buddy. In the simplest things. Good food, good company, adventures at the parks and community fun days and of course going to school.

Mumma will get a drone with a camera when I find the right one - the ones at target weren't the ones because I'm pretty sure you wanted the controller/phone to show you what the drone sees in real time.

I hope you are up to mischief wherever you are. We love you always πŸ’ž

We have Aaron's Birthday coming up on Sunday. Everything feels a little extra heavy. The tears flow more freely and not ...
21/11/2025

We have Aaron's Birthday coming up on Sunday. Everything feels a little extra heavy. The tears flow more freely and not even in a super sad way. This process of feeling this loss has been so slow. I haven't had a rage about it or crying so hard I can't pick myself up from the floor. Admittedly that level of crying only happened once during a period of treatment where sleep derivation was at the forefront and uncertainty for Aaron at that time was at an all time high with the spiel from his doctors being "it's to be expected" when it was more than that for him and for me. One of those times he was on the brink of death and I only know now how true that was - I've seen it now so I know I was right. Hospice was hard because of that time. How was he supposed to not get better from this, reality for us was that we'd brought him back from worse before why couldn't we do it again?

Aunty Jorj is jumping out of a plane on Sunday. Ella wants us to get you a birthday present. One thing on your list was a drone with a camera, I do wish I had surprised you with it while you were still here. I will grab one tomorrow and hope that I can fly it for you. I didn't get nearly enough pictures of your birthday last year. You did get told about your Puppy wish coming true and had a fun day. I didn't think it would be our last together baby boy πŸ˜”

Address

Brisbane, QLD

Website

Alerts

Be the first to know and let us send you an email when Aaron's Day posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram