Epilepsy Queensland

Epilepsy Queensland For over 50 years, Epilepsy Queensland has been the beacon of hope for people living with, and impacted by epilepsy.

We envision:

An individual understood and supported to live life well
A community aware, removing barriers and in search of a cure
An organisation financially strong, ready to deliver and measure impact

Look who's joined our purple plush family! 🦥🦉This year we have welcomed a Sloth and an Owl to our plush line up - but no...
06/02/2026

Look who's joined our purple plush family! 🦥🦉

This year we have welcomed a Sloth and an Owl to our plush line up - but now they need names, and that's where YOU come in!

Drop your name suggestions down below and we'll choose the most popular ones to go head-to-head in a poll on our Instagram stories next week.

Our Sloth and Owl are available to purchase now on our shop, alongside some of our old favourites 🦘🦙🐮

As always, all profits from merchandise sales go towards keeping our vital services available for the 50,000 Queenslanders living with epilepsy and their families.

Get yours today: https://myimpact.epilepsyqueensland.com.au/shop

04/02/2026

🫟 Something PURPLE is coming! 🫟 We are of course talking about Make March Purple 2026! Are you ready to Muck Up for Epilepsy?​

Whether at home, school, work, or your local sporting club, this year is all about stepping outside your comfort zone and doing something bold and a little out of the ordinary for a great cause.​

Take on the Purple Muck Challenge or go purple your way - it all makes a difference in helping to raise awareness and vital funds for epilepsy support services, programs and research.​

Stand up, stand out, and stand with the 270,000 Australians whose lives are mucked up by epilepsy.​

Register now at www.makemarchpurple.org.au​

Epilim (Sodium Valproate) 100mg crushable tablets will be discontinued worldwide and de-listed from the PBS, with stock ...
15/01/2026

Epilim (Sodium Valproate) 100mg crushable tablets will be discontinued worldwide and de-listed from the PBS, with stock expected to be exhausted in late February. We know changes like this can be concerning, particularly for people who rely on a specific formulation.

At this stage, there is no generic equivalent for the 100mg crushable tablets. However, other Epilim formulations and doses remain available, including tablets, liquids, and sugar-coated tablets.

If you or someone you support is affected, we strongly encourage you to speak with your neurologist, consultant, or specialist to discuss suitable alternatives and ensure any changes are made safely. Please do not stop or change medication without medical advice.

For further information, please visit https://www.tga.gov.au/safety/shortages-and-supply-disruptions

Did somebody say "accessible music festival"!? The countdown is on until the inaugural Gather & Grow festival hits the B...
09/01/2026

Did somebody say "accessible music festival"!?

The countdown is on until the inaugural Gather & Grow festival hits the Brightside Outdoors stage on Saturday, January 17.

Hosted by Moonbow Music, the festival was created as a celebration of their fourth year of operation, but Founder, Maddie O'Brien, wanted to make an even bigger impact through the event by choosing to fundraise for Epilepsy Queensland.

As someone who is personally impacted by epilepsy, Maddie wanted to create an event for people just like her who may not have the chance to attend traditional festivals or concerts. Working closely with the venue, Gather & Grow festival will feature a dedicated chill-out zone for those with sensory sensitivities, a toned-down lighting design to reduce photosensitivity triggers and other accessibility measures.

"Gather & Grow is about more than just a lineup," Maddie says, "it's about creating community and celebrating the people who make live music thrive".

Find out more 👉

Presents are wrapped, plans are made, and the countdown is on - Christmas is almost here.But there’s still time to give ...
24/12/2025

Presents are wrapped, plans are made, and the countdown is on - Christmas is almost here.

But there’s still time to give one last, truly meaningful gift 💜🎁

A donation to Epilepsy Queensland’s Christmas Appeal means our team can continue to provide tailored support and education that bridges the gap between clinical care and everyday life — not just at Christmas, but all year round.

This festive season, your generosity can make a real difference.

Give your final gift today and help change lives: bit.ly/EQ_CA25

2025 is almost at an end, and so are our office hours for the year.The Epilepsy Queensland office will be closed from mi...
22/12/2025

2025 is almost at an end, and so are our office hours for the year.

The Epilepsy Queensland office will be closed from midday, 24 December, 2025 until we reopen on Monday, 5 January.

If you are in need of support or information during that time, we encourage you to contact 13 HEALTH.

We wish all of our community a joyful holiday break, a very Merry Christmas, and Happy New Year!

Over the weekend, we were deeply honoured to be part of the unveiling of the Lozza’s Legacy B-Triple — a moving tribute ...
15/12/2025

Over the weekend, we were deeply honoured to be part of the unveiling of the Lozza’s Legacy B-Triple — a moving tribute to the life and legacy of 21-year-old Lauren “Lozza” Smith, whose life was tragically cut short by epilepsy.

Built with the generous support of OBrienco Transport and its partners, the specially-branded B-Triple will carry Lauren’s story across the country, helping to spark vital conversations about epilepsy, SUDEP (Sudden Unexpected Death in Epilepsy), and the profound impact epilepsy has on families and communities.

We extend our heartfelt thanks to Lauren’s parents, Craig and Susan, her friends, the transport community, and everyone who played a role in bringing this tribute to life. Your compassion and commitment are helping to raise awareness and ensure more Australians understand the realities of living with epilepsy and SUDEP.

Lozza’s Legacy continues to inspire and unite us in our purpose to empower people impacted by epilepsy to live safely, confidently, and with dignity 💜

Read more here: https://epilepsyqueensland.com.au/resource-hub/laurens-legacy/

We're well and truly in the thick of the festive season and gearing up for end of year holidays, but what does that mean...
11/12/2025

We're well and truly in the thick of the festive season and gearing up for end of year holidays, but what does that mean for people with epilepsy?

Traditions that we take for granted are often challenging or anxiety-inducing for the 50,000 Queenslanders living with this complex condition.

Long days at the beach, going on family outings to look at Christmas light displays or catching up with friends at Christmas parties aren't always the fun, exciting activities many of us know them to be.

We need your help to build a community that is safer and more inclusive for the thousands of Queenslanders and their families impacted by epilepsy.

By donating to Epilepsy Queensland's Christmas Appeal, you are ensuring our vital work bridging the gap between clinical care and everyday life can continue to meet the needs of our community.

Give generously this Christmas: bit.ly/EQ_CA25

06/12/2025

What a day! 💜🏏

Day Three of the Ashes and The Holsh Experience - Home of the Gabbatroopers takeover did not disappoint. From the the crew marching into the Gabba with a live trumpet fanfare to a full squad of Gabbatroopers at Easy Times Brewing Co bringing the energy - today was something special.

A huge thank you to everyone who joined in and purchased raffle tickets. Together, we’ve raised over $5,500 to support the 50,000 Queenslanders living with epilepsy. Your enthusiasm (and legendary costumes!) make a real impact.

We’re incredibly grateful to Holsh for inviting us to join this epic event, his generosity, and his ongoing commitment to championing charities and Epilepsy Queensland.

Haven’t entered the raffle yet? There’s still time to join the fun and support a great cause. 👇
https://myimpact.epilepsyqueensland.com.au/gabbatroopers

Parents and carers of children with Developmental and Epileptic Encephalopathies (DEEs) are invited to join an online fo...
06/12/2025

Parents and carers of children with Developmental and Epileptic Encephalopathies (DEEs) are invited to join an online focus group to share your priorities, challenges, and ideas for change.

Your voice is an essential part of a national conversation to improve research, care, and support for families living with DEE.

Thursday 11 December | 7:00-8:30pm AEDT
• Format: Online Zoom Meeting
• Reimbursement: $80 (Gift Card or EFT)

The DEE Roundtable Steering Committee are seeking a mix of parents and carers with lived experience across all life stages - from infants to young adults, and across metro, regional, and rural areas in Australia.

This is your chance to make sure the real needs of families are heard, documented, and acted on.

Register your interest here: https://bit.ly/48iWwCe

December has arrived, and with it comes the joy and sparkle of the festive season. For the 50,000 Queenslanders living w...
05/12/2025

December has arrived, and with it comes the joy and sparkle of the festive season. For the 50,000 Queenslanders living with epilepsy, the festive season can bring something very different—uncertainty, fear and isolation.

You have the power to change that, today.

Something so simple as feeling truly connected can be a challenge for many people with epilepsy this Christmas.

By making a donation to the Epilepsy Queensland Christmas Appeal, you can help create a community where people living with epilepsy feel understood, supported and safe.

Give Queenslanders with epilepsy the gift of confidence, connection and a community that stands beside them this Christmas.

Donate now: bit.ly/EQ_CA25

Address

Level 2, Gabba Towers, 411 Vulture Street
Woolloongabba, QLD
4102

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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Welcome to Epilepsy Queensland

Epilepsy Queensland is dedicated to optimising the quality of life of people with epilepsy and their carers/families through information, support, counselling, education, training, NDIS support, advocacy and research. We also offer in-service training and workshops for health, disability and education organisations so they are better placed to help people with epilepsy.

We aim to increase public awareness and raise community understanding of epilepsy. Epilepsy occurs in one in 50 people and yet there are many misconceptions. Our National campaign to raise awareness occurs in March each year culminating in Purple Day on 26 March. On our page throughout the year we share our members epilepsy stories, information, epilepsy facts and news to help break down the misconceptions and bring epilepsy out of the shadows.

Rugby League legend Wally Lewis is our Patron. Following the successful release of his book ‘Out of the Shadows’ detailing his journey with epilepsy, Wally became a great ambassador for Epilepsy Queensland and an advocate for people living with epilepsy.