Haemophilia Foundation Queensland

18/11/2025

Just in case you missed it, you can catch up on all the Australian Bleeding Disorders Conference presentations and poster information online now... see link below 👇

The Conference presentations and posters are now available for you to view online!

During the Australian Bleeding Disorders Conference we heard 77 presentations from 59 speakers and viewed 15 posters, exploring new and emerging therapies, newly diagnosed, women and girls with bleeding disorders, youth, and so much more!

Check them out on our website: https://tinyurl.com/conf25-presos-and-posters

18/11/2025

HFQ Men's and Partners Christmas Lunch! Have you RSVP’d yet?
Don’t miss out on a relaxed afternoon of good food, great company, and Christmas cheer!

📅 Saturday 6th December OBE's Christmas Lunch with Partners.
🕛 12:00pm – 2:30pm
📍 BrewDog, 77 Metroplex Ave, Murarrie

👉 RSVP by Friday 28th November
Email info@hfq.org.au
or call/text Lauren on 0419 706 056.

It’s the perfect way to wrap up the year together... we’d love to see you there! 🎅✨

14/11/2025

🩸 People with haemophilia have an alteration (or mutation) on their F8 or F9 gene, preventing their body from producing enough clotting factor for blood to clot properly.

🧬 Gene therapy for haemophilia aims to give the body a functional version of the F8 or F9 gene.

The new ✨ Gene therapy for haemophilia ✨ factsheet is for people with haemophilia, their families and carers. It walks you through:

✅ What is gene therapy?
✅ Types of gene therapy
✅ How gene therapy works
✅ Who is eligible for gene therapy
✅ Potential benefits
✅ Risks and side effects
✅ Treatment process
✅ Making a decision

And much more!

👉 You can download the factsheet (or order a print copy) from our website: https://www.haemophilia.org.au/GETsFactSheets

12/11/2025

🎅🎄Make sure to RSVP to the HFQ Christmas events! 🎅🎄

1. HFQ Men’s & Partners 2025 Christmas Lunch!

📅 Saturday 6th December
🕛 12:00pm – 2:30pm
📍 BrewDog, 77 Metroplex Ave, Murarrie.

OR

2. Christmas Wreath Workshop just for the ladies! 🌸

📅 Sunday 23rd November, 10:30am – 12:30pm
📍 Vend Marketplace, Virginia
👉 RSVP by 14th November 2025
You’ll design and take home your very own Christmas wreath. It's the perfect way to kick off the festive season! All materials are provided - just bring your creativity and Christmas spirit.

📧 Email info@hfq.org.au or call/message Lauren on 0419 706 056 to RSVP.
It’s the perfect chance to catch up, share some laughs, and celebrate the holiday season together 🎁✨

10/11/2025

? The gene alteration causing haemophilia is passed down from parent to child through generations.
Men with haemophilia will pass the gene alteration on to their daughters but not their sons.

Women who carry the gene alteration can pass it on to their sons and daughters.

Haemophilia is a hereditary condition and occurs in families. However, in 1/3 of cases it appears in families with no previous history of the disorder. This is called a 'spontaneous mutation' and occurs when there is a gene mutation or alteration during reproduction.

10/11/2025

Today we remember and honour all who have served and sacrificed for our freedom. Lest we forget. 🌺

05/11/2025

⏳THE EVOLUTION OF HAEMOPHILIA TREATMENTS⏳

From nonfactor therapies to the development of gene therapy, haemophilia treatments have evolved a lot since the introduction of cryoprecipitate in the 1960s.

❔ Where did your journey begin, and how has your treatment changed over the years? Let us know in the comments! ✏
This infographic was adapted from 'The Evolution of Hemophilia Therapeutics: An Illustrated Review', produced by María G. Español, Jessica N. Mistretta, Michael D. Tarantino and Jonathan C. Roberts. View the full version here: https://www.rpthjournal.org/article/S2475-0379(23)05736-9/

04/11/2025

🎄🎅 HFQ Men’s & Partners 2025 Christmas Lunch! 🎅🎄

Join us as we wrap up the year with some festive cheer! 🌟
Our O.B.E.'s and partners are invited to a relaxed afternoon filled with good company, great food, and plenty of Christmas spirit.

📅 Saturday 6th December
🕛 12:00pm – 2:30pm
📍 BrewDog, 77 Metroplex Ave, Murarrie.

It’s the perfect chance to catch up, share some laughs, and celebrate the holiday season together 🎁✨

🎄 RSVP by Wednesday 26th November to secure your spot!

We can’t wait to celebrate Christmas with you! 🎅🍻
To RSVP or for more info, contact Lauren Green on 0419 706 056 or email info@hfq.org.au.

04/11/2025

🏇💙 Did you know that horses can have bleeding disorders too? Just like humans, Haemophilia A and von Willebrand Disease (VWD) have been found in a range of horse breeds - even thoroughbred racehorses!

HFQ wishes all the punters the best of luck today for Melbourne Cup! 🍀🐎

04/11/2025

🎄✨ FESTIVE FUN ALERT! ✨🎄
Only 3 spots left - don’t miss out!

HFQ is hosting a Christmas Wreath Workshop just for the ladies! 🌸
📅 Sunday 23rd November, 10:30am – 12:30pm
📍 Vend Marketplace, Virginia
👉 RSVP by 14th November 2025

Join us for a relaxed and creative morning filled with fun, laughter, and holiday cheer. 🎀 You’ll design and take home your very own Christmas wreath. It's the perfect way to kick off the festive season!

🎅 All materials are provided - just bring your creativity and Christmas spirit.

📧 Email info@hfq.org.au
or 📱 call/message Lauren on 0419 706 056 to RSVP.

31/10/2025

🧁🩸

Beautiful display at Royal Brisbane and Womens Hospital for Bleeding Disorders Awarenness Month.

29/10/2025

🎟️ LAST CHANCE! 🎟️
You’ve seen all the amazing prizes worth over $24,000 - now’s the time to grab your last-minute HFQ Raffle tickets! 💎🎁

👉 https://rafflelink.com.au/hfq2025

Every ticket supports people living with bleeding disorders. ❤️🩸
Raffle drawn 31st October – don’t miss out!