Jaxson’s Journey

03/11/2025

Every family with a loved one battling cancer understands the gut-wrenching feeling that comes with waiting for the results of those routine three-monthly scans.

“Scanxiety” is the term used to describe the anxiety, fear, and dread people experience before, during, and after medical scans. It’s a completely normal response for anyone undergoing regular testing — and for us, it happens every three months.

Unfortunately, our latest results have brought another challenge. Jaxson’s scans revealed that the cyst surrounding his tumour has yet again changed and made some negative symptoms reappear. Over the past few weeks, he has been experiencing intense head pain, tears, and bouts of screaming. The recent storms and fluctuating barometric pressure certainly haven’t helped his discomfort either.

Back in April, we faced a similar issue caused by the same cyst and managed to reduce the swelling with corticosteroids. At that time, the medical team also recommended a craniotomy — an option we firmly declined. Once again, we’ve chosen to avoid surgical intervention, as we are fully aware of the potential long-term complications such procedures could bring for Jaxson.

We also declined inpatient care, as we truly believe that home is where healing and happiness thrive.

Oncology has prescribed another seven-day course of Dexamethasone. It’s a harsh medication with significant side effects, but it’s crucial for reducing the swelling quickly. Alongside this, we’ve been supporting Jaxson with natural anti-inflammatory supplements to assist in easing the inflammation.

Below are Jaxson’s most recent scan images, showing the difference between:
A — the most recent scan, and
B — the scan taken three months ago.

Yes, this is another bump in his journey — another twist and turn. But despite every setback we’ve faced, we will continue to advocate fiercely and do absolutely everything in our power to get our boy through this.

Like we always say, can you please keep Jaxson in your prayers. 🙏

Hug your family tight.
💙 Jaxson & Family

18/08/2025

18/08/2025

Every year the Brisbane Catholic Education (BCE) hosts an Event to recognize excellence within its schools and among its staff. This event includes the BCE Excellence Award, the Spirit of Catholic Education Award, and the BCE Student Voice Award, among others. These awards highlight outstanding achievements in teaching, leadership, community engagement, and student support.

This year St Eugene had several finalists who have all contributed in playing an important role for Jaxson to return to school. One particular staff member Ruth Sharman, nominated for the TUH Award for Excellence in Safety and Wellbeing has worked behind-the-scenes to make Jaxson’s
return to school come into fruition.

Ruth has advocated for Jaxson from the very start. Going back to school wasn’t something we thought of as there were so many uncertainties and legalities and we didn’t know where Jaxson would fit.

Ruth worked tirelessly for many months to get all the necessary requirements filled, so that Jaxson could finally join his friends and fellow classmates for the start of 2025. Her dedication, care & attention isn’t just towards Jaxson but to every student that she comes in contact with at St Eugenes College.

Our boy has flourished since he has returned back to school. This has impacted many areas towards helping his rehabilitation & has added so much positivity to everyone’s hearts. Of course, none of this was ever possible without the dedication & commitment from this exceptional lady and team Jaxson.

We are so thrilled to announce Ruth Sharman has been recognised as the winner for the 2025 Brisbane Catholic Education - Excellence in Safety and Wellbeing.

Congratulations to all finalist at St Eugenes College, we are immensely proud of your love, persistence and devotion.

Team Jaxson will forever be winners in our hearts. 💙💙

Hug your family tight
❤️ Jaxson & Family