Tobias - Growing Against All Odds

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Tobias - Growing Against All Odds

Tobias contracted Meningococcal Septicemia at 4.5 months old. He survived, became an amputee, and continues to defy the odds.

His journey is a testament to resilience, family, community, and the will to thrive against all challenges thrown his way.

24/02/2026

Hey everyone!
Katie here and with a bit of a long post.
This is hard for me to even think about writing and knowing what to ask for right now... Thank goodness for good friends and chat gpt 😂 we are in a rental situation atm...

After all we have been through, this is a bit of a kick in the guts when we are finally feeling some sort of normality finally being at home with the kids.

We’ve been given ONE WEEK to decide whether to sign a new lease — with a rent increase, new conditions, and only a 6-month term. Our current lease doesn’t end until the start of May, and we have here for 4 years. But we’re being asked to commit now or risk a Notice to Leave.
We have chosen to open the possibility of a new rental to ourselves. We are nowhere in a position to purchase or build. Wouldn't that be the dream!

After everything Tobias has been through, and our other beautiful kids, we have worked so hard to rebuild some stability. School routine. Therapy routine. Making life as normal as possible with our new world.

We understand landlords have rights. We understand the market is tough.

But we are asking — is there anyone who can help?

• Does anyone know of accessible 4–5 bedroom rentals in the Northern Beaches of Cairns?
• Are there any disability housing supports or advocacy services we should be contacting?
• Has anyone successfully negotiated for a longer lease or periodic option in similar circumstances? Although, they have told us in the offer email this can't be an option.
• Are there community contacts, property owners, or agencies who are compassionate in situations like ours?

We’re not looking for sympathy — just guidance, connections, or options.

Tobias needs wide doorways, accessibility space, and stability.

Moving isn’t just packing boxes for us — it’s equipment, modifications, transport, and a huge emotional shift.

If you have advice, contacts, or even just a share to widen the net, we’d appreciate it more than you know.
Thank you for walking beside us through this journey.

💚🐜💚
Here's a cute photo of Tobias in a taxi to brighten your day
💚🐜💚

23/02/2026

You all know we are big supporters (and clientele haha) of Ronald McDonald House Charities North Australia 🎉

Did you know though, there are two massive events in the Cairns and Tropical Far North region that also support them?

We have decided to take part in both (family events) this year!

So, below are the two links to "Team Tobias" for Cairns Marathon Festival and Run Port Douglas 🎉🎉 if you're thinking of joining, but unsure of what the day is about, pm me, join our team, or grab some friends and create your own!!

We are super excited to raise some awareness and some spirits but having our family join in these two significant events for Far North Australia!!!

13/02/2026

We've been very quiet over here.
Clearly not an "influencer family" for the socials 🤦🏽‍♀️😅
But, don't worry, we've been busy working hard!

Tobias is about to step up in the world of power and say goodbye to the kids chair! 🧑🏽‍🦼

Watch this space!!!! 🎉🎉

30/01/2026

When the family cuteness is just overloaded!

Sneaky peaky of a mini shoot the amazing Carissa from did for us recently for a few different reasons 🙊💕

Be sure to go take a look at her page, you'll fall in love with not only her art, but her own story also!

🫶🏽

28/01/2026

We are so blessed living where we do!
In a very last minute, "can we afford this? F**k no. Let's go!" moment, we booked the long weekend away with the kids in a little fishing town down the road!
Because it was so random and last minute, we didn't bother checking the weather 😅 lots of heavy rain, nature walks, fishing, and pool chills were had and it was just what we needed to finish off the school holidays!
Thanks for having us
We can't wait to return.

19/01/2026

We love our community and meeting other superstars around us!
and her owner bumped into us at Rusty's on the weekend and what a super special pair they are!
I'm sure we will see you again real soon you cute fluffball!

07/01/2026

Tobias and I had a bit of a hectic 24 hours... 🥴
We caught a flight to Townsville for an appointment and laser surgery session. We had to leave dad and the older kids at home this time.
He also has massive issues atm seeing anyone in scrubs/uniform 😔 so the first appointment straight from the plane was not fun.
We went from there to have a late lunch and settle into our home away from home at with some new toys ❤️

Unfortunately, with his last admission in Cairns over new years, the anesthetist last night decided it was too risky going ahead with GA today, and I completely understand! We don't want to risk anything going wrong for Tobias when it could be prevented! It could have also been cancelled well ahead of us arriving if the right people spoke to the right team. This isn't one person's fault, it's a lot of missed communication from a lot of people. Lesson learnt. And yet another thing I can add to my list to do myself next time just to be sure 😴

We had a sleep, didn't have to fast this morning 🎉 so had some breakfast 🥞 went to say a quick hello and goodbye to kids ward, Tobias had a nap and we got onto another flight home!
So thankful Tobias flies so well ✈️
Let's hope it doesn't happen again any time soon, (sickness or change in appointments) and we get a new surgical date for his scars soon!!

Now, happy and at home, mum is going to rest and get ready for whatever next week brings 😉 It's not always fun and games, there is a lot going on behind the scenes in Tobias' journey, and it's really tough sometimes.
But, we remain thankful every day that we get to live this life and have him home with us, and continuously learning things on the way!

03/01/2026

Tobias is home ❤️

It was another scare for us. No one wants to see their baby lethargic, unresponsive and not well! And for us, it brings back a lot of triggers and we don't stuff around!

We are just thankful to have a team at Cairns Base for our kids in the community who care and get onto everything so quickly! And they really do love their jobs.

We hope everyone has had a great Christmas and New Year's break and are well onto the way for a great 2026! 🎉

31/12/2025

Well, two weeks ago when we came for a Christmas party, we didn't believe we'd end up spending New Year's here too!! 😂

In true Tobias style, he's saving some firsts for years to come. His birthday and Christmas at home and not the hospital were enough for 2025, and he seems to believe we can save new years for 2026/2027 to be home for 🤦🏽‍♀️🫣

He woke up later than usual the other day, and began vomiting and became lethargic way too quickly for us to comfortably sit at home with no answers for why it came on so fast!

All tests so far have thrown negative results, which is great! But also leaves a lot unanswered as to where this little setback has come from!
We are hopeful that this is one way his body responds to his teething/cutting. But no definite on this.
He woke up this morning much better after some fluids, sugars and antibiotics, and we even managed a little walk in the breeze this afternoon before the rain set back in from the sea!

Here's allllll our everything crossed that next week's Townsville trip for his appointments is smooth sailing and in and out like we have planned! Haha

Address

165-171 Esplanade, Cairns North QLD
Cairns, QLD
4870

Website

https://www.fnqyaf.org.au/youth-support/donations/

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