20/03/2026
EEG Day 2 update 💜
Day 1 — Sofia did absolutely amazing. It took around 2 hours to place all the electrodes, and she was chatting away and even thanking the nurse… all while excitedly talking about her upcoming birthday 🥹 Her patience and resilience never stop amazing me.
A few hours after we got home, the cap started slipping, pulling on some of the electrodes and causing discomfort and dystonia. She kept saying “itchy” and “annoying,” which was so hard to see.
This morning we headed back to the neurology clinic for round 2. Another 1.5 hours later, everything was reattached and secured with glue and extra tape. It definitely looks more sturdy now — just hoping it stays comfortable and not too hot or itchy 🤞
Fingers crossed it all stays in place overnight!
I’d forgotten how challenging EEG's can be… dressing, hoisting, and everyday tasks all become that little bit harder. Taking it one step at a time 💛