24/11/2021
This looks interesting!
MARVELLOUS NEWS FOR LIPOEDEMA PATIENTS
We at lipoedema Australia are feeling validated, excited and emotional after the release of St Vincent’s Institute of Medical Research (SVI) on lipoedema.
To read that the research found our experience of lipoedema is legitimate and lipoedema fat IS NOT the same as obesity is affirming.
The team found that not only do lipoedema fat cells differ from normal fat cells in almost every way, they don't function like normal fat cells and grow at an unrestricted rate. The research offers so much hope for the future.
To dream of a cure for lipoedema has always seemed frivolous, but now possible.
Not today or tomorrow but in the future.
Lipoedema Australia has been involved with this right from the embryo stage, talking with Professor Ramin Shayan and Dr Tara Karnezis about lipoedema.
Ramin had just been appointed director of the O’Brien Research Institute (now part of SVI) and he was very empathetic and keen to become involved in research in this field. Soon after our 2016 National Conference an anonymous donor came forward and thus started the first steps.
We were involved in all the stages, advocating for patients and families to be involved, providing fat samples and DNA samples, assisting with DNA sample days and raising funds, we have been there. Everyone who participated should feel so proud today that they have done something for all women with lipoedema and for their family.
You can read the article here
https://www.nature.com/articles/s41366-021-01002-1
Why are we so over the moon about the announcement?
It will ultimately mean a cure - we believe!
This will also help towards Medicare – it will aid in our application
So instead of a cuppa coffee next week, give thanks to the main researchers here in Australia, Tara, Musarat and Ramin. Please donate the equivalent amount of money for a cup of coffee so that the next phase of the lipoedema research can commence.
You will be making a difference for yourself, your family, future generations, and lipoedema sisters around the globe so that we all can live a better life. You can donate here
https://www.svi.edu.au/support/donate.
Please ensure you List LIPOEDEMA as the Disease focus