22q Minded

22q Minded Supporting 22q families worldwide đź’™
Clinical psychologists specialising in 22q-related syndromes and related conditions. Dr Linda Campbell & Dr Sasja Duijff

Coaching, training & resources for families & professionals. Local services in Australia & the Netherlands
www.22qminded.com

13/03/2026

Sometimes the quickest way back to yourself is through your nose.
Smell is one of our most powerful senses — and one of the most overlooked. This one is just for you. Wherever you are right now.
This is the first in a short series of sensory meditations — for whenever you need to come back to yourself.

Many parents of children with 22q tell us the same thing:“I know something is going on… I just don’t always know what to...
12/03/2026

Many parents of children with 22q tell us the same thing:

“I know something is going on… I just don’t always know what to do next.”

Our webinar library was created to support families navigating the real challenges that can come with 22q — from big emotions and anxiety to friendships, sleep, and family dynamics.

Inside you’ll find practical, thoughtful guidance designed for parents and caregivers.

Many of our webinars include subtitles to support families around the world. If your language isn’t currently available on a particular webinar, please let us know — we’re always happy to explore adding it.

Explore the full library by clicking on the link in the comment section.

08/03/2026

Couldn’t join the live Q&A? That’s completely okay.

All 22qMinded webinars — including The Hidden Struggles: Recognising Mental Health Needs in 22q — are available as on-demand recordings, so you can watch them whenever it suits you and at your own pace.

Many parents tell us they actually prefer recordings because it allows them to pause, reflect, and return to sections when they’re ready.

Our 2026 recordings are available in English with subtitles in:
• Swedish
• German
• Dutch
• Spanish
• French

If another language would be helpful — for this webinar or earlier recordings — please feel free to email us. We’re always interested in making these resources accessible to more families and professionals.

Whenever you feel ready to explore the material, the recordings are there for you.

Link in bio (Instagram) or in the comments (Facebook).

February (and the first week of March) was dedicated to mental health in 22q.Together we explored how mental health need...
08/03/2026

February (and the first week of March) was dedicated to mental health in 22q.

Together we explored how mental health needs can appear quietly and differently across the lifespan , through subtle shifts, cumulative load, and the everyday experiences families often try to make sense of.

This month wasn’t about looking for worst-case scenarios.
It was about understanding what you’re seeing now, recognising patterns, and knowing you don’t have to hold those questions alone.

Thank you to everyone who joined the conversation, through our posts, reels, webinar, and live Q&A.

The conversation continues, and The Hidden Struggles webinar remains available to watch on demand. We have added subtitles in Spanish, German, Swedish, French and Dutch. If you are interested in additional languages being added, please reach out.

A final reminder that our live Q&A sessions for The Hidden Struggles will be held tomorrow.Two sessions for parents of:•...
07/03/2026

A final reminder that our live Q&A sessions for The Hidden Struggles will be held tomorrow.

Two sessions for parents of:
• Children & adolescents with 22q
• Adults with 22q

If you’d like to join the conversation live, this is your opportunity to bring questions, listen to others, and deepen your understanding.

If live attendance isn’t possible, the recording will remain available to watch anytime. Subtitles available in Swedish, Spanish, Dutch, German and French.

Link in the comments.

Over the past month, we’ve explored subtle signs, cumulative load, and the ways mental health can present differently in...
06/03/2026

Over the past month, we’ve explored subtle signs, cumulative load, and the ways mental health can present differently in 22q across the lifespan.

If you’d like to join the conversation live, Sunday (or Saturday for some in the Americas) is your opportunity.

Two sessions, suitable for parents and carers of:
• Children & adolescents with 22q
• Adults with 22q

You can bring your questions, listen to others, or simply deepen your understanding.

If live attendance isn’t possible, the recording will remain available to watch anytime. Subtitles available in Swedish, Spanish, Dutch, German and French.

Link to the website in the bio (Instagram) or in the comments (Facebook).

06/03/2026

Mental health in 22q changes across the lifespan.

What raises questions at 5 may look very different at 15 — and different again in adulthood.

That’s why this weekend’s live Q&A is split into two sessions:
• One focused on children and adolescents
• One focused on adults

Because the questions families bring change over time.

If you’ve been following this month’s conversation about subtle signs, cumulative load, and mental health in 22q, this is an opportunity to deepen that understanding.

Join us live on Sunday (in the Americas you can tune in Saturday or Sunday) — or watch the recording at your own pace. Subtitles available in Swedish, Spanish, Dutch, German and French for the recorded webinar.

To buy a ticket use the link to website in the bio (Instagram) or click on the link in the bio.

👇 Under 18s
👆 Adults

Good news for our international community 🌍Our webinar Recognising Mental Health Needs in 22q is now available on demand...
05/03/2026

Good news for our international community 🌍

Our webinar Recognising Mental Health Needs in 22q is now available on demand with subtitles in:

🇸🇪 Swedish | 🇳🇱 Dutch | 🇩🇪 German | 🇫🇷 French | 🇪🇸 Spanish

This session explores how mental health challenges can present differently in children, teens, and adults with 22q — and how to recognise early warning signs and seek support.

Watch anytime, wherever you are.

04/03/2026

We’re a few days away from our live Q&A.

If you’ve been unsure about joining, that’s understandable.

This isn’t about looking for problems.

It’s about understanding what you’re already seeing — so you can respond calmly and early if needed.

Two sessions on Sunday (for the Americas - some sessions are held on the Saturday):
• Parents of younger children & adolescents
• Parents/carers of adults

Recording included (and can be purchased separately)

If it feels right, join us.

Many parents don’t want to “look too far ahead.”That makes sense.The aim isn’t to predict outcomes.It’s to understand wh...
03/03/2026

Many parents don’t want to “look too far ahead.”

That makes sense.

The aim isn’t to predict outcomes.
It’s to understand what’s happening now.

Clarity isn’t dramatic.
It’s steady.

In The Hidden Struggles, we explore how mental health presents in 22q across the lifespan, what subtle change can look like, and how to respond early and calmly when needed.

Live Q&A — 8 March.
Two sessions: younger children and adults.
Recording access included.

Go at your own pace.

Link in bio (instagram) or comments (Facebook)

01/03/2026

This Rare Disease Day, we're raising awareness not because 22q is actually “rare,” but because it’s often viewed that way.

Occurring in about 1 in 2,000–4,000 births, 22q11.2 DS is way more common than many realize, yet it remains widely underrecognized and understudied. Because awareness is low even in the medical community, families often face delayed diagnoses and long journeys to answers.

Common doesn’t necessarily mean visible, which is why awareness matters 💙

Yesterday was Rare Disease Day.22qMinded was honoured to be represented in Auckland at the Rare Disease Day event hosted...
01/03/2026

Yesterday was Rare Disease Day.

22qMinded was honoured to be represented in Auckland at the Rare Disease Day event hosted by the 22q Foundation Australia and New Zealand.

To stand alongside international leaders, clinicians, advocates, photographers, and families — all committed to improving the lives of people with 22q — is both humbling and energising.

Rare disease awareness is not only about visibility.
It is about collaboration.
It is about sharing knowledge.
It is about reducing isolation.

Mental health is part of the rare disease story.
Emotional safety is part of the rare disease story.
Family resilience is part of the rare disease story.

We are grateful to be part of this global 22q community.

And we remain committed to helping families interpret and respond to mental health needs with clarity and compassion.

Maria Kamper Donna McDonald-McGinn Linda Elisabet Honey Heussler Susan Christina Alanna Peck Julie Wootton Rick Guidotti 22q Foundation Australia and New Zealand - 22q Deletion and Duplication Positive Exposure

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Maitland, NSW

Website

http://www.22qminded.nl/, http://www.22qminded.com/

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