22q Minded

22q Minded Supporting 22q families worldwide đź’™
Clinical psychologists specialising in 22q-related syndromes and related conditions. Dr Linda Campbell & Dr Sasja Duijff

Coaching, training & resources for families & professionals. Local services in Australia & the Netherlands
www.22qminded.com

Good news for our international community 🌍Our webinar Recognising Mental Health Needs in 22q is now available on demand...
05/03/2026

Good news for our international community 🌍

Our webinar Recognising Mental Health Needs in 22q is now available on demand with subtitles in:

🇸🇪 Swedish | 🇳🇱 Dutch | 🇩🇪 German | 🇫🇷 French | 🇪🇸 Spanish

This session explores how mental health challenges can present differently in children, teens, and adults with 22q — and how to recognise early warning signs and seek support.

Watch anytime, wherever you are.

04/03/2026

We’re a few days away from our live Q&A.

If you’ve been unsure about joining, that’s understandable.

This isn’t about looking for problems.

It’s about understanding what you’re already seeing — so you can respond calmly and early if needed.

Two sessions on Sunday (for the Americas - some sessions are held on the Saturday):
• Parents of younger children & adolescents
• Parents/carers of adults

Recording included (and can be purchased separately)

If it feels right, join us.

Many parents don’t want to “look too far ahead.”That makes sense.The aim isn’t to predict outcomes.It’s to understand wh...
03/03/2026

Many parents don’t want to “look too far ahead.”

That makes sense.

The aim isn’t to predict outcomes.
It’s to understand what’s happening now.

Clarity isn’t dramatic.
It’s steady.

In The Hidden Struggles, we explore how mental health presents in 22q across the lifespan, what subtle change can look like, and how to respond early and calmly when needed.

Live Q&A — 8 March.
Two sessions: younger children and adults.
Recording access included.

Go at your own pace.

Link in bio (instagram) or comments (Facebook)

01/03/2026

This Rare Disease Day, we're raising awareness not because 22q is actually “rare,” but because it’s often viewed that way.

Occurring in about 1 in 2,000–4,000 births, 22q11.2 DS is way more common than many realize, yet it remains widely underrecognized and understudied. Because awareness is low even in the medical community, families often face delayed diagnoses and long journeys to answers.

Common doesn’t necessarily mean visible, which is why awareness matters 💙

Yesterday was Rare Disease Day.22qMinded was honoured to be represented in Auckland at the Rare Disease Day event hosted...
01/03/2026

Yesterday was Rare Disease Day.

22qMinded was honoured to be represented in Auckland at the Rare Disease Day event hosted by the 22q Foundation Australia and New Zealand.

To stand alongside international leaders, clinicians, advocates, photographers, and families — all committed to improving the lives of people with 22q — is both humbling and energising.

Rare disease awareness is not only about visibility.
It is about collaboration.
It is about sharing knowledge.
It is about reducing isolation.

Mental health is part of the rare disease story.
Emotional safety is part of the rare disease story.
Family resilience is part of the rare disease story.

We are grateful to be part of this global 22q community.

And we remain committed to helping families interpret and respond to mental health needs with clarity and compassion.

Maria Kamper Donna McDonald-McGinn Linda Elisabet Honey Heussler Susan Christina Alanna Peck Julie Wootton Rick Guidotti 22q Foundation Australia and New Zealand - 22q Deletion and Duplication Positive Exposure

26/02/2026

We’ve heard something important from a few parents recently.

They’re hesitant to watch a webinar about mental health in 22q.

Not because they don’t care —
but because they’re worried they might see things they hadn’t noticed before.

That makes sense.

This session isn’t about overwhelm.

It’s about clarity.

It’s about helping you understand what you may already be seeing — so you can respond calmly and early, if needed.

And if questions remain, we’ll be hosting two live Q&A sessions on 8 March:
• One focused on younger children and adolescents
• One focused on adults

You don’t have to rush.
You don’t have to panic.
You don’t have to carry this alone.

Recording access is available now.

Link to registration in bio (instagram) or in the comments (Facebook).

You don’t need to wait for crisis to seek clarity.If this month’s content has resonated, this is the next step.On-demand...
25/02/2026

You don’t need to wait for crisis to seek clarity.

If this month’s content has resonated, this is the next step.

On-demand webinar access is available now.

Join the live Q&A on 8 March.

You don’t need to wait for a crisis to seek clarity.

Link in bio (insta) or comments (fb).

Clarity changes how families respond.In this webinar, we explore:• The mental health conditions most commonly associated...
21/02/2026

Clarity changes how families respond.

In this webinar, we explore:

• The mental health conditions most commonly associated with 22q — and how they present differently across ages
• The early behavioural changes that are often missed
• Practical steps for seeking assessment, communicating concerns, and navigating systems
• How to create emotionally safe environments that support wellbeing across the lifespan

This is not about fear.
It’s about informed, early, and confident support.

Recording available now.
Live Q&A — 8 March.

Over the past few weeks, we’ve explored subtle signs, cumulative load, and the ways mental health can present differentl...
20/02/2026

Over the past few weeks, we’ve explored subtle signs, cumulative load, and the ways mental health can present differently in 22q.

Many families are left with the same question:

“Is this something I should be worried about?”

In The Hidden Struggles, we walk through:

• How anxiety, depression, OCD, and psychosis-risk can present differently across childhood, adolescence, and adulthood
• Early warning signs that are often overlooked — including withdrawal, increased irritability, or sudden drops in functioning
• What signals require monitoring, and what requires more urgent support

This is a compassionate, evidence-informed session designed to help you notice what others might miss — and respond early, effectively, and with confidence.

On-demand webinar available now.
Live Q&A — 8 March.

Mental health isn’t fixed. It shifts as life changes.New demands, health challenges, transitions, and cumulative stress ...
19/02/2026

Mental health isn’t fixed. It shifts as life changes.

New demands, health challenges, transitions, and cumulative stress can all affect how someone copes, whether they’re a child, adolescent, or adult with 22q.

If you’re noticing differences over time, your observations matter.

Coping isn’t a personality trait. It’s dynamic.When demands increase — biologically, psychologically, or socially — copi...
18/02/2026

Coping isn’t a personality trait. It’s dynamic.

When demands increase — biologically, psychologically, or socially — coping capacity can narrow.

That doesn’t mean someone is failing.
It often means the load has shifted.

Context matters.

Mental health in 22q doesn’t exist in isolation.It is shaped by biological factors, psychological patterns, and environm...
14/02/2026

Mental health in 22q doesn’t exist in isolation.

It is shaped by biological factors, psychological patterns, and environmental demands — all interacting at once.

Fatigue, sleep, medical complexity, regulation differences, stress sensitivity, transitions, and misunderstanding can all add to the load someone is carrying.

When we see the full picture, distress often makes sense.

We’ve created a new free eBook, The Quiet Shifts: Noticing Mental Health Changes in 22q. 💙
If you’re already one of our 600+ newsletter subscribers, check your inbox for the download. If not, you can sign up on our website to receive your copy.

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http://www.22qminded.nl/, http://www.22qminded.com/

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