Myeloma Australia

Myeloma Australia Myeloma Australia is the only Australian myeloma specific not-for-profit organisation. They can all be found at: https://myeloma.org.au/resources/

We support, educate, inform, empower and bring hope to people who are living with myeloma, and their loved ones. Myeloma Australia publishes many online resources to guide you through myeloma. These resources include our booklets such as ‘Myeloma – A Comprehensive Guide’ and ‘Living Well with Myeloma’, information sheets and treatment fact sheets.

Tomorrow join Professor Miles Prince and Specialist Myeloma Nurse Lucy Murphy for a information education event on myelo...
21/11/2025

Tomorrow join Professor Miles Prince and Specialist Myeloma Nurse Lucy Murphy for a information education event on myeloma. An overview and update will be given along with an interactive Q and A session. This webinar will be live streamed through our website on Saturday 22 November at 10.00am AEDT.

For more information, contact: nurses@myeloma.org.au or if you require technical assistance on the day our Specialist Myeloma Nurses are available on 1800 693 566, the session will be recorded and available for playback on the same link above.

Link in our bio.

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 21...
20/11/2025

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 21st November to 27th November. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/ZtL5Jdq
For the most up to date information, please visit our events page on our website buff.ly/ZtL5Jdq.

20/11/2025

You may have seen in the news last week that from 1 November 2025, people who are diagnosed with myeloma and deemed ineligible for a stem cell transplant will be able to access a new treatment combination – daratumumab, lenalidomide and dexamethasone. There are many people diagnosed with myeloma who are deemed ineligible for a stem cell transplant. This could be due to age or being unable to tolerate the large dose of chemotherapy required for a stem cell transplant. This is a great new treatment option for myeloma patients of the future.

Our CEO Mark Henderson and Medical and Scientific Advisory Group member Dr Angie Yong were in Adelaide with Health Minister, Mark Butler to participate in the national press release. Myeloma Australia and our community heavily contributed to the advocacy surrounding this PBAC application and we want to sincerely thank everyone who took the time to contribute their lived experience via the Department of Health’s consumer comments portal.

Did you know?People with myeloma will achieve greater benefits from supervised, individualised exercise that involves hi...
17/11/2025

Did you know?

People with myeloma will achieve greater benefits from supervised, individualised exercise that involves higher intensity aerobic (increased heart rate) and muscle strengthening exercises. Some hospitals also offer a prehab program. Speak to your treating team about what is best for you.

To find out more head to our Livingwell Info sheet on Exercise and myeloma via the link

https://myeloma.org.au/resources/

Big Red Bows have officially landed in the Myeloma Australia shop — grab yours while stocks last! ❤️🎀 https://shop.myelo...
17/11/2025

Big Red Bows have officially landed in the Myeloma Australia shop — grab yours while stocks last! ❤️🎀

https://shop.myeloma.org.au/

The year I turned 40 by Anita La Forgia, VICI had just blown out the candles on my 40th birthday cake, with everyone tel...
17/11/2025

The year I turned 40 by Anita La Forgia, VIC

I had just blown out the candles on my 40th birthday cake, with everyone telling me that “life begins at 40.” Yet I had a persistent ni**le in my hip that wouldn’t go away. How does a sore hip lead to blood cancer? One moment I was sitting in my osteopath’s office, and before I knew it, after weeks of referrals and scans, I was in hospital undergoing radiation treatment with a plasmacytoma in my hip. All caused by myeloma, a blood cancer I had never heard of.

To read the rest of Anita's MyeStory visit our webpage https://myeloma.org.au/myestory

If you would like to share your MyeStory click here to read our submission guidelinehttps://myeloma.org.au/.../2025/07/Guidelines-Myestory.pdf

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 14...
13/11/2025

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 14th November to 20th November. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/ZtL5Jdq
For the most up to date information, please visit our events page on our website buff.ly/ZtL5Jdq.

Save the date for the Myeloma Australia Gather Round Breakfast on Friday 10 April 2026 at Adelaide Convention Centre 8.0...
11/11/2025

Save the date for the Myeloma Australia Gather Round Breakfast on Friday 10 April 2026 at Adelaide Convention Centre 8.00am.

More information to follow!

Join Professor Miles Prince and Specialist Myeloma Nurse Lucy Murphy for a information education event on myeloma. An ov...
10/11/2025

Join Professor Miles Prince and Specialist Myeloma Nurse Lucy Murphy for a information education event on myeloma. An overview and update will be given along with an interactive Q and A session. This webinar will be live streamed through our website on Saturday 22 November at 10.00am AEDT.

For more information, contact: nurses@myeloma.org.au or if you require technical assistance on the day our Specialist Myeloma Nurses are available on 1800 693 566, the session will be recorded and available for playback on the same link above.

https://myeloma.org.au/2025-annual-national-myeloma-update/

Did You Know?The Myeloma Real Equity Project team has had an incredible year. Over the past 12 months, they have:> Trave...
09/11/2025

Did You Know?

The Myeloma Real Equity Project team has had an incredible year. Over the past 12 months, they have:

> Travelled more than 58,500 km
> Held 144 educational and support events
> Visited over 45 regional, rural and remote communities
> Welcomed 10 new Nurse Link Nurses
> Created countless new connections and memories along the way

The project is focused on improving awareness, education and access to care for people living with myeloma and their families in regional, rural and remote (RRR) Australia.

By providing face-to-face support and education to patients, families, and healthcare professionals, the team continues to build strong community connections and empower local organisations to deliver meaningful, “in-place” support.

✨ Geraldton, Sans Souci & Heidelberg are LOCKED IN for My Greatest Call 2026! ✨Join us on Sunday 29 March 2026 for My Gr...
07/11/2025

✨ Geraldton, Sans Souci & Heidelberg are LOCKED IN for My Greatest Call 2026! ✨

Join us on Sunday 29 March 2026 for My Greatest Walk, raising awareness and funds for Myeloma Australia 💜

👟 Registrations include a free t-shirt with postage
📍 Over 30 sites nationwide — or walk where you want!

One walk. One community. One cause. 💪

👉 Register now: https://shop.myeloma.org.au/pages/my-greatest-walk

🎉 We’re over halfway there! 🎟️ Over 50% of tickets for the My Greatest Call Luncheon 2026 are already sold — don’t miss ...
07/11/2025

🎉 We’re over halfway there! 🎟️ Over 50% of tickets for the My Greatest Call Luncheon 2026 are already sold — don’t miss your chance to be part of this special day supporting Myeloma Australia. 💜

Grab your ticket today before they’re gone!
https://events.humanitix.com/my-greatest-call-long-lunch-2026

Address

Melbourne, VIC

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+611800693566

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