15/04/2026
I never used to acknowledge my own problems very much, it was never “that bad” … but here’s a little background
I missed nearly a year of school as a child due to asthma
I couldn’t pat a dog, be near a cat or a bird without blowing out into a full fledged allergic mess
I have had bladder infections (interstitial cystitis) multiple times, with no explanation
I would spend hours in the bathroom at parties pressing on my stomach to relieve the intense bloating pain I had
I couldn’t sleep due to the pain from chronic costochondritis from the constant inflammation
I was scared to eat on my wedding day in case “something” triggered my symptoms
The list… could go on…
12 months ago a friend in this EDS/HSD space helped me connect the dots. And I am so grateful.
I wanted to share a little about my own journey to get to where I am today with understanding my body, and using my own experience to help others.
There’s so much we don’t know about Mast Cells, MCAD and MCAS, but the research is continuing, and the connection with hEDS/HSD is becoming clearer.
For me, it’s been a learning process, one of patience and understanding for my own body. And, I can pat dogs! Happy 1st anniversary 🫶🏽 🫶🏽 comment MCAS if you’d like to get the questionnaire
If you can’t connect the issues, think connective tissues 🦓
PMID : 35449490
*this post is for information purposes only and is not medical advice. If you need help please speak to your trusted healthcare providers.