24/03/2026
Last year after getting COVID I wasn’t able to run without my heart rate racing out of control.
I would feel dizzy, nauseous, faint… I wouldn’t sweat at all and I would be smashed by fatigue following higher intensity activities. These are just some of the symptoms of dysautonomia, that for me was triggered by a viral infection.
Last year I decided I was going to have to re-train my body and my systems how to run again. I registered for the Hobbiton Half Marathon in New Zealand and started the process.
I focused on monitoring my heart rate while training, during both running and strength, focusing on rest periods to keep my heart rate stable. I adapted routine modifications including compression garments to reduce swelling in my hypermobile tissues, electrolytes before running to increase blood volume and a visor to reduce over heating.
This week, I fly to New Zealand and get to run the race that helped me fall in love with running again.
We’re not crazy for wanting to do the things our hearts desire, we just have to learn how to do it in a body that works differently ❤️
I recognise everyone is unique, the spectrum of the 14 EDS subtypes, and particularly hEDS and HSD can look very different, I recognise levels of ability can vary.
Finding ways to work with your unique body is so important, and surrounding yourself with a healthcare team who truly understand this is just as important ❤️
I wanted to share my story, because it’s one I’m personally very proud of. I’ve worked hard to get to this point and I can’t wait to run 21km through the hills of Middle Earth in an elf costume on the weekend 💪🏽