CLINUVEL PHARMACEUTICALS LTD

CLINUVEL PHARMACEUTICALS LTD Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from CLINUVEL PHARMACEUTICALS LTD, Medical and health, 535 Bourke Street, Melbourne.

CLINUVEL is a global specialty pharmaceutical group focused on developing and commercialising treatments for patients with genetic, metabolic, systemic, and life-threatening, acute disorders, as well as healthcare solutions for specialised populations.

Erythropoietic protoporphyria (EPP) is characterised by intense phototoxic reactions when exposed to visible light sourc...
21/11/2025

Erythropoietic protoporphyria (EPP) is characterised by intense phototoxic reactions when exposed to visible light sources. These debilitating reactions have been described as akin to “lava flowing underneath the skin” and have a significant impact upon quality of life for those living with EPP.

A recent study asked EPP patients about the experience of their most recent phototoxic reaction. Adults reported an average pain score of 7.6 out of 10, and adolescents reported a score of 7.2, with symptoms typically lasting about five days before resolving.

CLINUVEL is committed to advancing care for EPP patients worldwide, helping them receive the treatment they urgently need to reduce the impact of phototoxic reactions and improve daily life.

CLINUVEL’s Patient Assistance Program (PAP) helps eligible patients with erythropoietic protoporphyria (EPP) in the USA ...
11/11/2025

CLINUVEL’s Patient Assistance Program (PAP) helps eligible patients with erythropoietic protoporphyria (EPP) in the USA get financial assistance for treatment.

Reach out to our team to find out if you are eligible and begin the application process here: https://scenesse.com/public/patient-assistance-program/

11/11/2025

CLINUVEL’s Managing Director, Dr Philippe Wolgen, together with the Investor Relations team, will attend the Stifel Healthcare Conference in New York this week.

Dr Wolgen will present updates on CLINUVEL’s latest clinical and corporate developments, and the team will participate in one-on-one investor meetings.

Engaging with the investment community remains a key priority for the Company and we look forward to joining leaders from across the healthcare sector at this important event.

A recent publication from China reported on a patient whose severe liver dysfunction appeared before the typical phototo...
10/11/2025

A recent publication from China reported on a patient whose severe liver dysfunction appeared before the typical phototoxic symptoms of erythropoietic protoporphyria (EPP). Tragically, the disease progressed to liver failure within a year.

Because phototoxicity was absent, diagnosis of EPP was delayed until blood testing revealed extremely high levels of free erythrocyte protoporphyrin IX, a molecule that accumulates in EPP patients’ blood and liver.

This case underscores a critical point that EPP should be considered in unexplained liver disease, even without phototoxic symptoms.

Early recognition could make a life-saving difference.

___
Source:
Y. J. Zhang, S. P. Huang, Z. Y. Shang, M. Liu, and C. T. Tu, “Recurrent Liver Dysfunction in Erythropoietic Protoporphyria: A Case With Compound Heterozygous FECH Mutations,” Journal of Digestive Diseases (2025): 1–4, https://doi.org/10.1111/1751-2980.70000.

One global study found that approximately 55% of individuals with vitiligo regularly modify their clothing to conceal af...
05/11/2025

One global study found that approximately 55% of individuals with vitiligo regularly modify their clothing to conceal affected areas. This includes wearing long sleeves, trousers, or additional layers, even in warm weather.

These findings underscore the significant emotional impact vitiligo can have on daily life, self-perception, and social interactions.
Efforts to educate the online community are essential to demystifying vitiligo, reducing the stigma and supporting those living with this autoimmune condition.

CLINUVEL is actively sharing key information about vitiligo and collaborating with creators who live with the condition, empowering them to share their experiences and help others with similar diagnoses.

Erythropoietic protoporphyria (EPP) is rare and often difficult to diagnose, leading many patients to wait years for ans...
30/10/2025

Erythropoietic protoporphyria (EPP) is rare and often difficult to diagnose, leading many patients to wait years for answers. A recent case in the ACG Case Reports Journal highlights why earlier recognition is critical.

A 21-year-old woman with long-standing photosensitivity developed progressive jaundice and liver dysfunction. After ruling out common causes, biopsies and genetic testing confirmed EPP with severe liver involvement. She ultimately required a liver transplant.

This case illustrates the need for greater awareness of EPP among clinicians and the public. Recognising the connection between phototoxicity and liver disease can lead to faster diagnosis and, ultimately, better outcomes.

The CLINUVEL team are excited to attend the 2025 Conference & Incentive Travel (C&IT) Awards this evening. Our Pavilion ...
17/10/2025

The CLINUVEL team are excited to attend the 2025 Conference & Incentive Travel (C&IT) Awards this evening.

Our Pavilion of Photomedicine, which was showcased at AAD 2025, is shortlisted in the Pharma & Healthcare Event of the Year category.

Best of luck to all nominees!

Today is . First recognised in 1992, the initiative aims to raise awareness of mental health issues around the world an...
10/10/2025

Today is . First recognised in 1992, the initiative aims to raise awareness of mental health issues around the world and to mobilise efforts in support of mental health.

The psychological impact of living with conditions such as vitiligo and erythropoietic protoporphyria (EPP) is often overlooked, yet it represents a significant burden in addition to the physical symptoms that patients experience.

CLINUVEL has continuously advocated for a comprehensive approach to patient care that aims to help improve mental well-being alongside physical health.

CLINUVEL’s Vitiligo Hub aims to unite the vitiligo community and provide helpful support resources for those living with...
08/10/2025

CLINUVEL’s Vitiligo Hub aims to unite the vitiligo community and provide helpful support resources for those living with the autoimmune condition.

Whether you are newly diagnosed, been living with vitiligo for many years or a caregiver/friend of someone with vitiligo, the hub will provide resources for every stage of your journey.

Sign up to receive exclusive notifications on new articles, interviews, upcoming events and more: https://brnw.ch/21wWrv5

At CLINUVEL, we create, develop and deliver innovative pharmaceutical and healthcare solutions where there is a medical ...
06/10/2025

At CLINUVEL, we create, develop and deliver innovative pharmaceutical and healthcare solutions where there is a medical need, consumer demand and limited solutions.

Our technologies are designed to go beyond existing offerings, adding value where it matters most.

We also recognise that pioneering technological innovation requires robust regulatory and market preparation.

With every step forward, we remain committed to advancing healthcare for patients and communities worldwide.

Learn more about CLINUVEL here: https://brnw.ch/21wWnt7

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535 Bourke Street
Melbourne, VIC
3000

Telephone

+61396604900

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