CLINUVEL PHARMACEUTICALS LTD

CLINUVEL PHARMACEUTICALS LTD Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from CLINUVEL PHARMACEUTICALS LTD, Medical and health, 535 Bourke Street, Melbourne.

CLINUVEL is a global specialty pharmaceutical group focused on developing and commercialising treatments for patients with genetic, metabolic, systemic, and life-threatening, acute disorders, as well as healthcare solutions for specialised populations.

Have you joined CLINUVEL’s Vitiligo Hub?It aims to unite the vitiligo community and provide resources for those living w...
28/11/2025

Have you joined CLINUVEL’s Vitiligo Hub?

It aims to unite the vitiligo community and provide resources for those living with or caring for someone with this autoimmune condition.

Sign up here: https://brnw.ch/21wXTGw

As a biotech company, CLINUVEL’s story is an unconventional one. Our Founder, Dr Philippe Wolgen, joined the Company’s B...
25/11/2025

As a biotech company, CLINUVEL’s story is an unconventional one. Our Founder, Dr Philippe Wolgen, joined the Company’s Board in 2005, and has a few takeaways to share after 20 years of running the Company.

In this WIRED piece, Dr Wolgen discusses his philosophy and approach to having a focused strategy, recruiting talent, and navigating the challenging landscape of the industry.

Read the interview here: https://brnw.ch/21wXNGC

As winter approaches in the Northern Hemisphere, sun protection remains important. Even though the weather is cooler and...
24/11/2025

As winter approaches in the Northern Hemisphere, sun protection remains important. Even though the weather is cooler and the sun feels weaker, ultraviolet (UV) radiation is still present.

UVA rays, which cause photodamage and skin cancer, are present all year and can even pass through clouds and windows.

UVB rays, responsible for sunburn and skin cancer, may be weaker in autumn, but they still contribute to long-term skin damage.
For those with conditions like , daily sun protection is essential since depigmented skin can burn more easily.

CLINUVEL recommends talking to your dermatologist about the best photoprotective regimen for your lifestyle and skin type, keeping in mind that the use of a broad-spectrum SPF sunscreen on exposed areas every day to protect against cumulative UV damage may be needed all year round.

Erythropoietic protoporphyria (EPP) is characterised by intense phototoxic reactions when exposed to visible light sourc...
21/11/2025

Erythropoietic protoporphyria (EPP) is characterised by intense phototoxic reactions when exposed to visible light sources. These debilitating reactions have been described as akin to “lava flowing underneath the skin” and have a significant impact upon quality of life for those living with EPP.

A recent study asked EPP patients about the experience of their most recent phototoxic reaction. Adults reported an average pain score of 7.6 out of 10, and adolescents reported a score of 7.2, with symptoms typically lasting about five days before resolving.

CLINUVEL is committed to advancing care for EPP patients worldwide, helping them receive the treatment they urgently need to reduce the impact of phototoxic reactions and improve daily life.

CLINUVEL’s Patient Assistance Program (PAP) helps eligible patients with erythropoietic protoporphyria (EPP) in the USA ...
11/11/2025

CLINUVEL’s Patient Assistance Program (PAP) helps eligible patients with erythropoietic protoporphyria (EPP) in the USA get financial assistance for treatment.

Reach out to our team to find out if you are eligible and begin the application process here: https://scenesse.com/public/patient-assistance-program/

11/11/2025

CLINUVEL’s Managing Director, Dr Philippe Wolgen, together with the Investor Relations team, will attend the Stifel Healthcare Conference in New York this week.

Dr Wolgen will present updates on CLINUVEL’s latest clinical and corporate developments, and the team will participate in one-on-one investor meetings.

Engaging with the investment community remains a key priority for the Company and we look forward to joining leaders from across the healthcare sector at this important event.

A recent publication from China reported on a patient whose severe liver dysfunction appeared before the typical phototo...
10/11/2025

A recent publication from China reported on a patient whose severe liver dysfunction appeared before the typical phototoxic symptoms of erythropoietic protoporphyria (EPP). Tragically, the disease progressed to liver failure within a year.

Because phototoxicity was absent, diagnosis of EPP was delayed until blood testing revealed extremely high levels of free erythrocyte protoporphyrin IX, a molecule that accumulates in EPP patients’ blood and liver.

This case underscores a critical point that EPP should be considered in unexplained liver disease, even without phototoxic symptoms.

Early recognition could make a life-saving difference.

___
Source:
Y. J. Zhang, S. P. Huang, Z. Y. Shang, M. Liu, and C. T. Tu, “Recurrent Liver Dysfunction in Erythropoietic Protoporphyria: A Case With Compound Heterozygous FECH Mutations,” Journal of Digestive Diseases (2025): 1–4, https://doi.org/10.1111/1751-2980.70000.

One global study found that approximately 55% of individuals with vitiligo regularly modify their clothing to conceal af...
05/11/2025

One global study found that approximately 55% of individuals with vitiligo regularly modify their clothing to conceal affected areas. This includes wearing long sleeves, trousers, or additional layers, even in warm weather.

These findings underscore the significant emotional impact vitiligo can have on daily life, self-perception, and social interactions.
Efforts to educate the online community are essential to demystifying vitiligo, reducing the stigma and supporting those living with this autoimmune condition.

CLINUVEL is actively sharing key information about vitiligo and collaborating with creators who live with the condition, empowering them to share their experiences and help others with similar diagnoses.

Erythropoietic protoporphyria (EPP) is rare and often difficult to diagnose, leading many patients to wait years for ans...
30/10/2025

Erythropoietic protoporphyria (EPP) is rare and often difficult to diagnose, leading many patients to wait years for answers. A recent case in the ACG Case Reports Journal highlights why earlier recognition is critical.

A 21-year-old woman with long-standing photosensitivity developed progressive jaundice and liver dysfunction. After ruling out common causes, biopsies and genetic testing confirmed EPP with severe liver involvement. She ultimately required a liver transplant.

This case illustrates the need for greater awareness of EPP among clinicians and the public. Recognising the connection between phototoxicity and liver disease can lead to faster diagnosis and, ultimately, better outcomes.

The CLINUVEL team are excited to attend the 2025 Conference & Incentive Travel (C&IT) Awards this evening. Our Pavilion ...
17/10/2025

The CLINUVEL team are excited to attend the 2025 Conference & Incentive Travel (C&IT) Awards this evening.

Our Pavilion of Photomedicine, which was showcased at AAD 2025, is shortlisted in the Pharma & Healthcare Event of the Year category.

Best of luck to all nominees!

Address

535 Bourke Street
Melbourne, VIC
3000

Telephone

+61396604900

Website

Alerts

Be the first to know and let us send you an email when CLINUVEL PHARMACEUTICALS LTD posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to CLINUVEL PHARMACEUTICALS LTD:

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Category